20 week scan - only saw one heart chamber

[abbaroony]

I had my anomaly scan at 20+5 today and the sonographer could only see 1 chamber of the heart. She said that everything else looked as it should but that this is a significant heart abnormality. We have been referred to fetal medicine and are going for a follow up scan tomorrow.

I know that really we just have to wait until tomorrow when we can find out more, but I was wondering if anyone has been through a similar experience?

I feel completely pessimistic - the way that the sonographer, and then the various people who have called me this afternoon about tomorrow appointment spoke to me, made it sound like they were offering their condolences after the worst news. My husband in the other hand is being really optimistic, saying that until we know more we shouldn’t worry and that he thinks that essentially it’ll all be fine.

I’m just finding the not-knowing so hard.

I have no advice, but bumping this for you. Wishing you all the best for tomorrow

All the best for tomorrow.

Thank you both.

I feel sick with worry - swing from imagining that I’ll be in for a TFMR by the end of the week to having a baby who has problems but an overall positive outlook.

Feeling very lucky that I’m only having to wait 24 hours between scans. Thank god for the NHS.

Hope it's all going well today

Thinking of you guys. ❤️

Only just saw this but wishing you all the best, I hope the scan today is helpful.

Couldn't read and run, not to scare you but I had to have a tfmr at 24wks last month as my baby ds was diagnosed with hypoplastic left heart syndrome and his heart was too broken to be fixed so my partner and I had to have the pregnancy terminated. It's 4wks today since having him and I don't feel sad or guilty anymore I just feel relief that he wouldn't of known pain and suffering in the few hours/days he would of lived. Wishing you and your partner and baby all the best and I hope you get good news from your scan

I had my 20wkbscan on the Monday, a scan with my consultant on Tuesday. Specialist fetal medicine scan on the Thursday then the tmfr on the Friday. I wanted to get things done quickly to ease the pain

Hope it’s going well today

Thinking of you today 🤍

Thinking of you. Don't have any answers for you but hope everything went ok?!

I hope that you had some good news today. But if the news was not as you hoped I wish strength for you.

I have been thinking of you today x

Thanks everyone for checking in and thank you @ArrrMeHearties for sharing your story.

I’m afraid it wasn’t good news - our baby was diagnosed with trucuspid atresia. This is essentially where one side of the heart doesn’t form properly.

There are a series of 3 surgeries that can be done within the first 3 years to reconfigure how the heart works, but it was explained to us that this is a ‘workaround’ not a fix, so it’s likely that our child would experience further problems / complications down the line, but the severity of these can not be predicted.

We now have an incredibly difficult decision to make.

I have booked in for an amniocentesis on Monday to see whether the heart problem could be linked to any other chromosomal abnormality - they also said that the baby was measuring small and that the cord only had a single artery, which on their own wouldn’t be considered as major problems, but the three things together could be a sign of a wider problem.

The past few days have been incredibly difficult and emotional as I’m sure you can imagine - you know that the purpose of the 20 week scan is to look for problems like this, you just never imagine it’ll happen to you. It feels like our whole world has been turned upside down.

Im sorry OP. What a big decision. Sending you strength whatever you decide x

I'm
So sorry x

So sorry to read this. Sending you strength and moral support whatever you decide.

Really sorry to hear your news. There is a charity who specialise in single ventricle heart conditions called Little heart matters and ARC might also be useful. Our middle child had a different single ventricle condition, she passed away at 5 weeks but it was a very complex case and different to yours. Hope your amnio goes well, the build up was worse than the procedure for me.

I'm so sorry OP.

I'm so sorry to hear your news @abbaroony. That is such a tough decision to make. Sending lots of love and strength.

Sending you much love and support @abbaroony. My circumstances are very different but understand the world being turned on its head for you suddenly as the unexpected happens with pregnancy. Sending you a big hug and thinking of you at your next appt.

Oh I’m so sorry to hear this for you and your partner. Sending you big hugs for the both of you. Xx

I'm so sorry op. Whatever decision you maker is the right one for you.

I'm so sorry you have such a difficult decision to make. Lots of love to you.