1 in 15 chance

[inneedofhelpandsupport]

Hi all, I'm new on here but thought I would give it a shot to try and get some help, support, advice or reassurance for my current situation as I'm going slightly mental!

So after a 2.5yr journey trying to conceive, our first round of IVF was successful in April this year (thank you god) and we've just had our 12 week scan.

The NT was 1.2mm and all looked good and we opted for the bloods too as I'm 40.....low and behold, I got a call Monday to say following the blood test results I'm 1 in 15 chance of Downs.
bHcg - 2.75
PAPP - A - 0.31

We have booked a NIPT this Friday but I cant stop thinking, crying, googling!

It would just be rubbish if we were the 1! I'm trying to hold onto the stats of less than 7% chance and the NT results was good.

Any comments would be much appreciated smile

So this nightmare is getting worse! I had an email from the clinic today to say the lab has requested a redraw of bloods cause they didn’t have enough detail dna - anything more than 4%!
I’m just so devastated as it means more waiting.....and getting more preggers! I have my 16wk apt next Tuesday..... and I still don’t know what the future holds :(

Oh I’m so sorry, that’s not what you needed!

Im just wondering if at this point a CVS/amnio might give you quicker answers? Or would you be able to get yours fast tracked in view of your gestation?

Sending big un-mumsnetty hugs your way

Been there got the horrible t-shirt that no one wants to wear. The waiting is horrific. You are a blimmin hero for getting this far. Just hang on in there.

My beautiful 9 yr old, it turns out, did not have downs. But I know the experience of thinking that he did made me mentally stronger than I have ever been.

My strategy for coping with the catastrophic thinking of "what it's" was just to think (whatever the scenario was) that I would make it ok.

Stay positive. I know that feeling of wanting to go back to that bubble, before you knew and you were almost a different person. Well this you, that's faced this wait and managed to try to be positive, this you is a strong, amazing person. An incredible mum to be. Everything crossed for you.

*what if's

Ah thank you so much…what lovely posts.
Idontdrinktea, tbh it may be much of a muchness with the results for the amnio…they would do a referral today/tomor and I’d prob get an apt this week and then results maybe up to a week…I chose to go for bloods again this afternoon and so fingers crossed results are back by next tues/weds.
No fast tracking which is ridiculous as I’m 16 wks on Sunday and have the apt tues for the heartbeat…I’m bonding more and more.
Summerhouse…great words thank you and I hear what your saying…my husband and I have chatted again tonight and cried! We have talked about the what if many times and you’re right in the fact…we have each other and we can and will get through this x

Sending you lots of hugs. It is so so hard. I remember being in that limbo, and just so heartbreaking to be in that situation. You will get through this. Be kind yourself and stay strong. X x x

Thank you Rainbowpurple…it’s just a matter of time.
Just asking again, as it gives me hope and reassurance….anyone else got similar results to me…and had a 1 in 15 chance…
Ivf pregnancy
Age 40 (40 8 mths at term)
NT 1.5mm at 13 +5
BHCG 2.75
Papp a 0.31
Thank you for all your support x

Hi @inneedofhelpandsupport I just thought I'd check in to see if you had results back yet. I'm so sorry to hear they've been delayed and you have to wait again, that must be awful. Hopefully the next results come back quickly and with good results.

I'm not sure if they can fast track them for you unfortunately, here (Scotland) they only analyse the bloods for the whole of the nation once a week so that might be part of the issue depending on where you are.

Hi OM82, thanks for checking in.
So no results as yet, you might have read on the thread, I had the blood tests done again Monday afternoon so sent off that day. It would be amazing if we heard tomor as it’s our wedding anniversary this weekend but not holding out much hope.
We also have our 16 wk heartbeat apt next Tuesday which feels a little strange as I want to be excited but also want to know if our future may look different.
The tears have dried a little and I’ve tried to keep busy and positive x

Hi all.....after an agonising 4 weeks...I had a call from the hospital this morning and my NIPT for T21 has come back low chance.
I have had a morning of tears as feel very relieved and exhausted it from it all.
Throughout the past 4 weeks, although it has been horrendous, it has brought me and my husband closer....we have cried together, talked so openly together and prayed....we discussed things we never thought we would have to....and we even talked about the future if the results were different.
Of course I am pleased but i truly believe these things are sent to test/try us and we learn from them in very strange and different ways..thank you again for all your support and positive words xx

I am so so pleased for you. I'm currently going through the same, although a 1 in 5 chance for me (and 1 in 89 for patau/edwards), also after ivf. Best of luck with the rest of your pregnancy!

Thanks DoctorBambino.....yes I saw your thread and commented several times....I know what your going through...its so so tough and seems unfair and the waiting is just horrific but i'm through it now and like I said in my last post, we would have got through it either way :)
stay strong, one day at a time xx

Oh yeah I didn't link the name sorry! Anyway I'm really happy for you 😊

So good to hear about your result!

@inneedofhelpandsupport I am so pleased about your news! Both for the baby and for getting closer with your DH. I wish to you both, health and happiness! Lot's of love dears!