NT 4.6 12 week scan

[notinthestarsigns]

Hi,

I had my 12 week scan today. I had declined the combined testing but the sonographer told me that she had to check the NT as she could see increased fluids. It was all very scary and I didn’t really know what was going on, particularly given I was on my own and my husband couldn’t be there. I have been referred for an appointment with the consultant on Thursday when I will have another scan and if the concerns are still there I can have the harmony test on Thursday if I wish, albeit I will have to pay. This is my first pregnancy so I feel a bit all over the place right now, has anyone else been through a similar experience?

No it’s really hard to understand until you’re there yourself. I had supported friends through similar but realize I hadn’t truly understood what they had been through until I was there myself. It is so very hard. We are here for you though ❤️

Remember there’s no right or wrong way to deal with this - if work is a helpful distraction then it’s the right thing to be doing. I took some time off initially but went back to work before we had the amnio and it did help to have something to occupy me and also give a bit of structure to my day. I was very wobbly though and my boss knew what I was going through so I just did some very easy work and she covered for me if I was having a bad day. If you’re able to confide in someone at work that might help...? Equally I had many days where I couldn’t really get out of bed. Just be led by how your body is feeling.

I wish there was something more I could do, really feel for you. I hope you manage to get some sleep tonight - it does definitely help with how you feel the next day. I think once the shock subsides your body does start to settle in to a rhythm somehow. You will get through this ❤️ Take care of yourself Xxx

@welshmercury I’m so very sorry for what you’re going through 💔 Xxx

I haven't been through this but didn't want to read without saying that I'm sorry for what you're going through and hope you're ok Xx

Hi, just thought I would give everyone an update. I had a midwife appt today, she found the baby’s heartbeat straight away and said that the baby was also very active. I really wasn’t expecting this as from what the consultant said I was expecting to have lost the baby by now. There are of course still a lot of concerns which I won’t find out anything more about until I see the consultant but it was nice to have a positive experience at an appointment for a change! X

Hi
I wanted to let you know about my experience last year. I had my 12 week scan in April and was told the NT measurement was 4mm. I was in bits and thought the worst. This combined with my blood results came back as a 1:24 chance there was problems. I researched google and got some positive stories and some sad stories. I was booked in for a CVS however the day before I was to get this they decided they couldn’t do this due to where my placenta was. I was going to have to wait a few weeks for an Amino. We decided to pay for the private harmony test. This came back as low risk. We decided to carry on with extra scans, all other scans did not pick up any problems and in October I gave birth to a healthy baby boy although it was noticed at birth that the placenta only had two cord blood vessels. For some reason this was not picked up in any scans although they were looking closely at everything but I am glad they didn’t pick this up as I think this would have convinced me something was wrong. I hope you get good results.

Thanks for the update OP. Can I ask why you didn't want the combined test done at 12 weeks? Have they since done it?

My 1st pregnancy we'd paid for NIPT at 10 weeks, which showed trisomy 13. NT at 11 weeks was 6.5mm and there were multiple abnormalities seen on a scan. It ended in TFMR.

I'm sure you are anxious to have another scan and see how things are going. Did they say why they are waiting 4 weeks to do another one? That seems really excessive. It seems most people are given one 2 weeks after wards, even during the pandemic. x

I just thought I would update this thread as I know when I was anxiously reading anything I could find it helped if there were updates with outcomes of what had happened. I went back for a consultant appt at 16 weeks 5 days. At that point no further issues were picked up and the consultant gave us a 50 percent chance of baby being born alive and well which seemed amazing given how bleak it had seemed previously. The membranes had not quite fused so the consultant could not do an amnio so we were booked in for another appt a week later.

When we went back at 17+5 I had the amnio and again no further issues were picked up on the scan. Unfortunately last week when we got the results we found out our baby had trisomy 13, which was about the worst possible outcome we could have had, and a big shock given the scan had shown everything as being normal apart from the raised NT. We were then faced with the awful decision of having to decide whether to terminate or not due to the baby having such a poor prognosis.

We went to see the consultant on Monday this week and there were no decisions to be made as the baby’s heart had stopped beating.

I went into be induced on Wednesday morning and gave birth to our baby boy on Thursday when I was 20 weeks. It was heartbreaking not to bring our baby home but we spent all day with him which although sad was nice in a way I never could have imagined possible.

Whilst unfortunately ours was not a happy ending, I hope it is helpful to provide an update and would like to thank everyone on here for their messages along the way x

@notinthestarsigns thank you for updating during such a horrible time for you. This is my first time commenting on this thread but I had read it a couple of weeks ago. I’m so sorry your story didn’t have the ending you wanted and dreamed of. I’m glad you got that time with your little boy. The world is so unfair sometimes. Look after yourself xxxx

I’m laying here at 4am wide awake waiting for amino results from my test on Friday - after almost 4 weeks of repeated bad news from scans and bloods since my 12 week scan. The waiting and unknown is awful. I’m sorry for everyone that has and is going through this process xxxx

@Redhead43 I really hope you get better results than we did, I will be thinking of you. The feeling of being in limbo is just awful and it sounds like you have had that feeling ever since the 12 week scan like we did. The wait after the amnio was particularly hard and I remember getting very little sleep! Try and look after yourself as much as you can, it is such a hard thing to go through x