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Antibodies in blood early blood test

60 replies

Milita123 · 12/04/2020 08:55

Hello girls,
I just got a phone call yesterday morning from some midwife, she said that antibodies were found in my blood. She never said what kinda but i think she mentioned Rhesus disease and aneamia in baby bla bla bla. I was too stressed to understand. She asked me if i had blood transfusion in the past and when i daid no she became silent. She could not explain me a thing, a lot of we dont know wr not sure, it just happens. I started searching and i only see the ladies with Rhesus negative or after blood transfusion having it. I am Rhesus positive, so is my husband, i never had any blood transfusions in my life. We do have a 4 years old daughter.and ive never had this while pregnant with her. Anyone had same experience, i am crying my eyes out :(

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Fabuleuse · 14/04/2020 17:42

Everyone's blood is full of all sorts of these things that are given letters. For example, you might have c, D, E, but no K and he might have C, K, M, etc. There are loads and loads of these things. It's like blood groups - everybody is different. You're born with them. So he didn't catch them. The problem is when two people's blood mixes, the response is sometimes that antibodies are created in response to the things your blood doesn't have, so your body produced anti-K antibodies in response to mixing with blood that had K in it.

I didn't get any extra scans due to the antibody issue because my levels stayed so low throughout that they didn't think anything was going to happen. For context, for my antibody issue a level of 7.5 is when they start properly worrying, and the highest mine ever got was 0.3. I think at such an early stage there's not much to see on a scan. If antibody levels were concerningly high later on in pregnancy then I'm sure you'd be scanned regularly.

Fabuleuse · 14/04/2020 17:59

Also when they say dangerous, I think what they mean is that anti-K is one of the ones that is at a higher risk of causing problems. For example, you could have say anti-M or anti-E which theoretically could cause problems for the baby but in practice don't tend to. The three highest risk ones AFAIK are anti-c, anti-K and anti-D. But just because you have a higher risk antibody doesn't mean is guaranteed to be dangerous to the baby. I was in a similar position with anti-c and nothing happened.

Milita123 · 14/04/2020 18:25

Fazbuleuse i cant thank you enough for keeping me possitive. You dont know how much it means to me. I am just so. Lost at the moment. I think i had a panic attack outside when walking with my daughter. Instarted avoiding everyone and outside world doesnt interest me anymore. Thats how stressed i am. My heachake is killing me and i didnt sleep properly at all :( i am so scared even if everyone tells me its gonna be ok im still frightened :(

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Daisychain191 · 16/04/2020 16:41

@Milita123 I just wanted to share my experience. I had this too but I'm RH-. I had blood tests throughout pregnancy and all of my levels were perfect. Then out of the blue they shot up and I was induced at 36 weeks. Baby was fine and I had scans to check too. But upon delivery it showed the antibodies had affected my baby. It was absolutely devastating at the time because there's not much info on this at all. My baby spent about a couple of weeks in NICU with phototherapy but now at 1 year old she absolutely fine! I'm not telling you this to scare you, but I wish someone had told me this when I was crying myself to sleep with worry, that it was all going to be ok.
Just keep on top of your blood tests and ask as many questions as you can. You'll be ok and so will baby.

Milita123 · 16/04/2020 16:50

Daisychain191 thank you. I am so scared that im. Not gonna get proper care. Thats my biggest fear at the moment. Those ladies in the facebook. Group scares me they say you should get this or that but they all in america and their health system is very different. Andany things isnt same. Like get the best doctor. Where imgonna get best doctor. Its not private its nhs...

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Daisychain191 · 16/04/2020 17:42

I know it's easier said than done but ignore them. Honestly the best thing you can do is follow every test up and ask questions on why they're doing what etc to get the best understanding. That's what I did and it helped a lot. With the NHS, everything is routine anyway so you will receive good care anyway. I'm happy to answer any questions if you have any and hopefully I can help.
I'm sure the majority of these cases turn out absolutely fine, whereby the level stays quite low and no intervention is needed. I was just a bit unlucky but as I said my baby was absolutely fine :)

Milita123 · 16/04/2020 17:53

I am a bit scared that they spottet it so early inthink i wad just 6 weeks pregnant. Midwife couldnt tell me what titre it is (very strange) she went we dont know. How come they dont know if they have results. Does it mean its very high already thats why they spotted it in such an early pregnancy? I am going to see someone tomorrow. I will let you know how it went

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Daisychain191 · 16/04/2020 18:02

That's exactly what happened to me. They told me they don't know the titre because the lab doesn't note it down. They only note it down when it's getting to the stage where its getting a bit too high. So yours is most likely low if they don't know.

Milita123 · 16/04/2020 18:09

Fir Gods sake why it has to be sooo stresfull. I am already suffering from depression and i though im not going to have anymore chikdren, this baby wasnt planned but o thought i deserve a second change to do everything different to have new baby bond straight maybe even breastfeed oh dear..... Like my anxiety wasnt enough....

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fee1234 · 16/04/2020 19:11

I think you should leave the Facebook group if it's causing stress, I had a quick look through it and it made me really panic because a lot of people are posting the worst case scenario. Also remember they are from US etc so very different systems and measurement systems to NHS. I'm in Scotland receiving NHS care and it's been fine, still on 4 weekly bloods. They will probably measure your titre at your next appointment, it's a blood test and they take two of the small tubes of blood to get a measurement. Your previous blood test probably just picked up traces of the antibody but not enough to actually measure how much.

Try not to worry at this stage, you'll be closely monitored.

Daisychain191 · 16/04/2020 19:17

I understand how you feel. I too suffer with anxiety and at the time I really felt like my pregnancy was robbed from me and the stress was awful. Please look after yourself. I wish I could give you a hug!

Milita123 · 16/04/2020 19:48

Thank you very much girls, i always look farward to see your messages :) yeah the Facebook group made me panic to be honest, because you guys camled me down then i phoned my midwife and she told me ifs anti K i posted in the group and lady who runs the group said to me that i need to be monitored every week that anti K is very dangerous and i atarted shaking and panicking i phoned midwife again crying she got very concerned and asked doctor from Ninewells to call to calm me down. She said they will do earlier app because im so stressed. I know lady from group knows a lot but ots very different and makes ne very very scared. My husband got realy crossed woth me for reading stuff he was like we didnt have test yet and you already gone crazy, he said he cant recignize me anymore. I have constant headache and worry too much. Today is my daughters borthday and i didnt manage to do amything at all. My family started suffering because of y anxiety. My head is going to explode.

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Fabuleuse · 16/04/2020 20:39

I'm sorry I pointed you in the direction of the group. Maybe you're best leaving it if it's making you more anxious? Remember you will be monitored every four weeks and later on every two weeks by blood test and this will let them know if you need any extra monitoring by scans or anything else. Like I said, it turned out my levels were so low as to be barely detectable, so I didn't need anything.

Milita123 · 16/04/2020 20:59

Fabuleuse dont be silly, its not your fault, i found this group before you recomended it to me. And i answered their questions to join. Its not your fault.and they are lively there and lady knows a lot and it is helpfull, it just that its not the same in US so they cant say you need to do this or that that makes me feel like i have togive them orders what to do and i have no knowledge how can i comand doctor :) they are ok its just me wirh my anxiety i overthink that's why my hubby said stop reading it :)

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Milita123 · 17/04/2020 13:47

Just came back from hospital. Doctor was very very nice. I feel a bit better now. He said theres not much we can do now untill my husbands bloods will be done. They took a sample and it should be ready next week. He seems like he knows what hes doing.

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Luce123456 · 17/04/2020 13:55

I had antibodies in my blood at 8nweeks and was told I'd need another blood test to be sent to a specialist lab. Had the blood test done 3 days later. I asked last week at my scan which was 13 weeks and they tell me the results still aren't back it's been 5weeks now....

Milita123 · 17/04/2020 14:07

Wow, did you actually see a doctor or midwife? I was extreamly upset so ive got an app with one of the doctors in hospital so my husbands bloods were taken. What is the reason why it takes so long? Try to call them again...

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Luce123456 · 17/04/2020 14:59

I saw the midwife. They said it is normal for it to take a long time as it has to be sent to liverpool🤷‍♀️ at the moment I'm just treating it as no news is good news. I know I'm o+ blood type. I've had no transfusions, or miscarriages I'm aware of. This is my 1st time being pregnant. I have an obstetrician appointment at the end of the month so was hoping to find out more then

Milita123 · 17/04/2020 15:22

Good thinking :) did they check your partner?

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Luce123456 · 17/04/2020 15:57

They didn't no. That wasn't mentioned either. The only thing they said was oh it's quite common dont worry it normally just means we do more blood tests on you and the baby might be at higher risk of jaundice which is very easily treated and something of nothing. I'm very clueless really. Goodling it just seemed to point me in the direction of rhesus negative and was no help

Milita123 · 17/04/2020 16:10

Yeah... Did they say what kind of antibodies? If i would be you i would call again :) googling isnt a good thing.

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ClaraMumsnet · 17/04/2020 18:12

Hi there. We've had a few reports from Mumsnetters concerned about this thread. While we're daily amazed by some of the excellent advice and support offered on Mumsnet, there's really no substitute for proper medical attention - we'd never want to discourage anyone from seeking an opinion in real life. We also can't vouch for anyone here and we'd strongly encourage users not to share personal details, including medical details.

Milita123 · 17/04/2020 19:06

I dont understand, what personal details? Address? Full name? Noone posted any personal data in here. Noone knows who we are :)

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Luce123456 · 17/04/2020 20:01

I dont know why it would be reported 🤷‍♀️ they didnt mention what antibodies they had found. I did ask but they just said that the notes said antibodies present further investigation required.

Milita123 · 17/04/2020 20:06

Very interesting, but i think theres some antibodies which arent very aggressive :)

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