Hi all,
This is going to be a long post... but just wondering if anyone else has been through this?
As of today, DH and I have learnt that our baby’s brain is severely undeveloped. This was initially flagged as a small head at the anomaly scan which prompted an MRI scan. He’s 23 weeks tomorrow, the MRI was done during his 21 weeks. We can’t actually remember the medical term our consultant gave us as we were still in shock. From what we can remember, his front brain is undeveloped and missing pons. We were more or less told the baby won’t live long after birth or will have a bunch of other health issues after birth, so have been advised to explore our options.
However, after meeting with the geneticist, another doctor has insisted we get another MRI at 30 weeks... do you know if this has even happened before? Does this imply things may change by then? This extra scan was mentioned at the last minute so it didn’t occur to us to ask there and then... I just don’t know why we’d be told to get another MRI if there’s no hope of improvement but also don’t want to get our hopes up as the news is heartbreaking enough...
Sorry for the long message and it’s ok if no-one has an answer. We just feel a bit at loss because we don’t know what to do until our next appointment with the dr (at 32 weeks, this doesn’t include the additional MRI at 30 weeks). I also have things in between like glucose test and whooping cough etc in a few weeks, should I still go? I guess we can always wait for the letter from the hospital for “next steps” but just wanted to if we can reach out to someone in the meantime...
Thank you so much for your time