Need help

[Hoping1971]

Hi all, I’m new to this, and also a future dad, hope this is ok it’s just that I didn’t know where to go and I desperately need some advice.
My wife and I went for the first scan last Wednesday after arriving back that morning from our honeymoon, to cut a long story short the nt was 4.8mm and the bloods came back high, the hospital fitted us in for a cvs on Thursday and we are currently waiting for the result which should be Tuesday.
I don’t understand the way I am feeling? I have cried so much currently I’m hiding under the duvet and it’s midday!! I feel like which ever decision we make we are dammed, we are both against termination but also at this point am not sure if we can cope with a ds child, I am gonna ring the ds association tomorrow as there not about weekends, I feel like a total wreck at the moment is this normal?
Thanks for listening in advance.

Hi, congratulations to you and your wife! I’m so sorry you’re feeling like this. I’ve not been through this but I do have a little one with Down syndrome (we had a postnatal diagnosis). Our little one has no medical conditions and is doing really well! What don’t you feel you can cope with? x

Hi, I'm not really sure tbh, I'm 48 and that worries me, and I keep hearing that Down syndrome children have lots of medical conditions, glad to hear your little one is doing well, just don't know a lot about it, only found out three days ago, so trying to get my head around it, do you need help or is it just like having a baby without ds?and I suppose I'm worried if our baby has bad heart etc, x

My baby has no medical conditions or complications, just that one extra chromosome! Some babies with DS do have medical conditions but a baby without DS could have too!
Our little one is our first so we don’t know any different! We don’t need any help and are doing the same things as everyone else with babies of a similar age (some milestones are being hit slightly later but others are no different!). There is a lot of information and support out there just remember that google will probably lead you to worst case scenarios! Please feel free to send me a message if you or your wife have any questions and I’d be happy to answer anything I’m able to. x

Thanks very much, I try to stay away from google as I agree with you, your story already makes me feel better, I'm sure my wife will have a thousand questions!! Thanks again will speak soon.

You’re welcome, I hope the wait for your cvs results isn’t too stressful for you both. x

I found the charity ARC really helpful to talk to earlier in the year for advice when our baby had a similar NT reading and we decided to have further tests. Their number is 02077137486 www.arc-uk.org, hope all goes well for you x