I've been lurking and reading literally every thread that sounds even remotely related as a way to calm anxiety this week (can't say it's working terribly well, unsurprisingly).
But haven't been able to find any experiences of the specific markers we've been told we have.
After enlarged ventricles spotted at 20wk scan, we were referred to FMU for detailed scan the following week. Dr confirmed choroid plexus cysts both sides of baby's brain and also collapsed stomach. He recommended amnio straight away which we did feel was an ok option for us. We needed more info and, as his major concern was Edwards syndrome, we felt the risks were outweighed.
Initial amnio results were clear for Edwards (huge relief) but now waiting on the wider array results.
In some ways it's easier now we don't have something so specific to worry about (which was all consuming and terrifying) but just don't know what to do or think in the coming weeks while we wait.
I don't know if I even have a question really, but I've seen just what incredibly supportive groups these threads can be and am hopeful someone might have some words of wisdom to share.
We've struggled for a long time to even get this far and, after eventual IVF success, it seems a pretty dreadful prospect if the worst is confirmed. Whatever the worst may be.