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Harmony result high risk Edwards

50 replies

user1493037965 · 24/04/2017 15:50

I've just got my results back after a harmony test, had this due to nt and bloods giving me high risk for downs. It's come back low for downs but high for Edwards. I'm having cvs later this wk. Just wondered if anyone has had high risk for Edwards in harmony test but cvs came back fine? Obv clinging onto hope here but not really feeling it! Thanks

OP posts:
KTD27 · 25/08/2017 17:43

Not stupid! New egg new sperm new baby. That's how I'm looking at it anyway. We will start trying again at the end of the year once we are past her due date. No reason really just feels like that's the right time.
Hope all goes ok for you x

SleepFreeZone · 26/08/2017 10:49

Thanks KTD

I just need this bump gone ASAP. I feel fine until I try and put my clothes on and nothing fits right or look down and see my rounded belly. It's really heart breaking. I need my old body back as soon as possible.

SleepFreeZone · 29/08/2017 08:41

Just to say the CVS results confirmed the Harmony this morning xx

KTD27 · 30/08/2017 08:07

Oh love I'm so so sorry. Truly. It's the most awful thing. You are in my thoughts xxx

SleepFreeZone · 30/08/2017 08:22

I know it's shit. Just trying to organise the termination now! Hoping BPAS ring me today so we can get something booked in.

I did have a great conversation with one of the senior ladies at the hospital yesterday whose job it is to deal with this side of things. I told her I wanted to try again but wanted to do things differently. She suggested I get things done as early as possible so to make a GP appnt around 9 weeks, get in for an early scan around 10 weeks and then straight to the Harmony and get the test done asap. If the baby has an issue it means I can opt for medical management before 12 weeks which will be a lot easier for me.

I know it still sounds utterly shit but assuming the Harmony result was actually good it means I could go through booking in with s feeling the pregnancy might actually work.

ibentmywookie · 30/08/2017 11:54

Yep, I'm going to do the same, if we conceive again. The last time I held off of spending £400 on the Harmony early because I'd had an mmc a few months earlier and I didn't want to tempt fate, but realistically it would have been far better to know before my dating scan.

I hope it all goes as smoothly as possible for you. x

KTD27 · 30/08/2017 13:29

I'm with you 100%. I don't want to book in with the hospital without having a harmony first. I'm not going through the scan and the 12 week 'yey we are having a baby' news without it.

SleepFreeZone · 30/08/2017 14:48

I was thinking of starting a TTC after TFMR thread (bit wordy lol!!). Would you both post on it if I started it?

It would be great to get some positivity going dispite the crapness and somehow the TTC after 40 thread doesn't feel right as I feel like I've depressed everyone on there with my recent bad news and the TTC after MC thread (my old home years ago) somehow seems a bit too positive as I know many people go on there after one MC and get instantly reduffed (brilliant!!). I need a thread on here that's a little bit more realistic but with a smudge of hope.

KTD27 · 30/08/2017 17:53

Yep definitely x

ibentmywookie · 31/08/2017 10:07

I would as well (even though I feel like a bit of a fraud as our baby ended up dying in utero before we had to have the tfmr). x

KTD27 · 31/08/2017 16:58

Wookiee don't feel that way. It's trauma no matter what the specifics and when we ttc again I can't imagine any of us will have that innocence we once did.

ibentmywookie · 01/09/2017 11:27

That's very true. Feeling delicate today as another of my nct group announced this morning she was expecting #2. We're only a group of five, and she's the third. I was pregnant at the same time as both of the others so although her news has made me howl anew with the sheer unfairness of it all, I'm hoping it's also a good omen. Third time lucky. If it goes wrong next time then I'm going to 🔥 all my opks.

This evening we are seeing them all (plus babies) Going to have to stick my game face firmly on. 😬

SleepFreeZone · 01/09/2017 11:54

wookie I think my baby died about 4/5 days ago as I was feeling it everyday and now nothing. Even worse for me right now is that I'm in total limbo waiting for BPAS to find an appnt for me. I tried to chase them up yesterday and they said I just have to wait.

So I'm walking around with a probable dead baby, a prominent bump and a body full of hormones. It's a nightmare that's being dragged out and dragged out and dragged out

KTD27 · 02/09/2017 12:39

Oh sleep I'm so sorry. It's just the shittest of the shit. Did they give you any idea as to how long it might take?
Wookie I feel your pain with the pregnancy thing. Two of my best friends are pregnant and due the same week I was. They're sharing 3D pics and clothes and nursery shots and I just want to scream. Eugh.

SleepFreeZone · 02/09/2017 12:46

Nope. I'm just waiting. If I don't hear by Tuesday I'm going to contact the hospital about medical management.

SleepFreeZone · 02/09/2017 12:48

wookie I think you're so brave to go out socially when you know it's going to be painful. I have to admit when I was struggling with my losses pre DS2 I just shut myself away from everyone. It's a terrible thing 💐

ibentmywookie · 02/09/2017 18:56

Oh I'm so sorry Sleep, the waiting is utterly hideous, and the hormones make it so much harder. I was in a situation where although fetal medicine at UCH had seen several serious anomalies in my scan, and my bloods were terrible (basically 1:2 for T13/18) my hospital wouldn't consent to a tfmr without cvs or amnio results. First attempt at cvs failed, and it was when we went back for a second go that we discovered our boy had died. In the interim I'd been on the phone to the hospital almost daily begging them to let me end it, it felt like a bad joke really.

ibentmywookie · 02/09/2017 19:02

Last night was actually ok. I was a wreck beforehand, but I am so so fortunate, as a latecomer to motherhood, to have my dd which does make things a little easier.

I did shut myself away for most of May & June, but because I'd been pretty much continuously pregnant since November I really felt that I've been enough of a hermit this year.

My near neighbour/friend is due the week I would have been in Oct. Mildly dreading that. She has a ds the same age as my dd, and also had a mc the same time as I did in Dec, then also conceived again straight away (slightly freaked out by how in sync our conceptions have been now I think about it!)

SleepFreeZone · 02/09/2017 19:22

Oh wookie I can relate so much to what you've said. Thankfully the clinic rang me today and the op is on Wednesday. I have to make it to bloody Richmond which is hours away for 8.30am. The only way I can do it is stay up there for two nights so DP is going to have to take two days off work. Somehow I feel horribly guilty as I couldn't be satisfied with the children I have and desperately wanted a third. I feel like I've brought the whole thing in myself.

KTD27 · 06/09/2017 08:37

Just wanted to send love today sleep x

ibentmywookie · 06/09/2017 15:15

Hope it all went ok Sleep. Take it easy, and be kind to yourself. X

SleepFreeZone · 06/09/2017 16:07

I'm in recovery now. It's been a long day of mostly waiting but everything went according to plan and I'm very very glad I chose this route. It's felt very dignified a everyone has been kind.

LynsC1980 · 06/09/2017 18:43

Hey all, we're just waiting for CVS tests to confirm everything before we arrange our termination. Our consultant basically said there was no hope but wouldn't let us go ahead without having 100% info. Which actually we want to do as I want a no what ifs. But it's another two weeks of heartache before we can even grieve properly and carrying around this little bundle we're in love with which is still bouncing around inside me. I'm a mess. Reading some positivity here is really helpful. Much love to you all and all you are going or have been through xx

ibentmywookie · 07/09/2017 09:28

Glad it went ok Sleep.

I'm sorry that you are also in this position Lyns, the waiting is so hard. Keeping you in my thoughts.

KTD27 · 07/09/2017 18:46

Oh lyns it's horrid I'm sorry you're going through this too. I sincerely hope for good news for you but know that if it isn't, you will come through the other side and we are here to hold your hand x

Sleep I'm glad it went as well as it could for you Flowers rest now when you can and take it easy.

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