I am 23 weeks pregnant and sadly it was confirmed yesterday that our baby has Edwards' syndrome (trisomy 18). We had already known that he or she had a very complex cardiac defect, a small brain anomaly and a possible diaphragmatic hernia so we had partly anticipated this.
We both are committed to continuing the pregnancy, termination just doesn't feel like the right option for us, though I can completely understand how it does for many people. I wondered if there were others out there who had or are continuing a pregnancy with a lethal diagnosis and how they are handling people's questions and ideas about birth plans when you are not sure if the baby will be born alive or not and how long it may live.
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Continuing a Pregnancy with a lethal diagnosis
260 replies
TheDisillusionedAnarchist · 11/06/2015 20:02
OP posts:
RedKites ·
05/01/2016 17:42
So sorry to hear your news. Thinking of you and your beautiful baby Rumer. 
JoMalones ·
23/01/2016 00:18
I'm so glad you got to spend time with your beautiful daughter. Your strength in all your posts is inspiring. I hope you and your family have support at this time. Thinking of you 
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