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Antenatal tests

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Original poster

Grrrrr at the waiting game!

34 replies

HelloBear · 04/05/2012 09:51

Hi ladies, I'm sad to be joining you all. Got our combined test results - 1:5 chance of chromosome abnormalities. We decided to go for further testing but can't do the animo till next week. So all we can do is sit tight and try to focus on the 4:5 chance that everything will be fine (so hard to do, especially at 3am when my brain goes into overdrive!).

Not really asking for advice or anything as the hospital has been amazingly informative. I guess just hoping for some 'good luck' from those who've been in the same position.

We never even imagined being in this position just happily assumed it all would be fine. Oh if only!

Now where's that cake????

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Original poster
HelloBear · 04/05/2012 09:52

And I can't even drown my sorrows in Wine

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havingabath · 04/05/2012 11:50

It's horrid waiting...here too 1:13 just on the quad bloods. Can't get scanned for another month here as past the nuchal scan time so going to for private scan then maybe will have amnio depending on what they see.

A drink would be good. Wishing us both some luck.

Winnie81 · 04/05/2012 15:19

Hi hellobear and having a bath,

I have recently had an amnio done due to myself and dh carrying a rare genetic syndrome. We have a 1:4 chance each pregnancy.

I'm currently 19 weeks and got our results back on Wednesday, fortunately they were all clear although this baby will also be a carrier.

I have to say that we knew we would have to have the tests. We went for a cvs at 12 weeks but my bowel was in the way. We had to wait a few weeks for an amnio.

The test itself was ok, bit uncomfortable but bearable. It's the waiting for the results that seems to take forever. We waited 3 weeks for the results but sometimes they come back after 2.

I wish you all the best for tests and do keep updated I'd like to hear how u get on x

Original poster
HelloBear · 04/05/2012 21:10

havingabath - and I thought two weeks was a long wait! If you are having a private scan will they measure the NT? Keep us updated won't you.

Winnie I went to get a cvs but baby is lying on the placenta so couldn't do it, so it's animo next week as I'm too early this week. Oddly I'm not worried about the actual procedure.

Thanks for replies, will keep all informed.

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havingabath · 05/05/2012 00:16

Yeah they will hellobear, bafflingly nhs only measure translucency not fold? Well here at any rate, private and you get fold, nasal bone etc

Will prob end up with amino anyway... it is all hard to decide.

Winnie81 · 05/05/2012 07:47

Hellobear I wasn't scared of the procedure either, it does feel very odd but i just concentrated on watching the bean on the screen!! It was over quick enough xx

Good luck to you both and fingers crossed for some good news soon x

havingabath · 05/05/2012 08:45

cheers Winne, sorry meant to say thanks for the good wishes. great that your results were good must have been the longest 3 weeks ever.

Winnie81 · 05/05/2012 20:20

Yes it was pretty hellish even more so when they told me the results wouldn't be ready for another week (4weeks) however they came back in 3! The first week was the better out the 3.

Funnily enough on the day that I least expected the results came back! And I had a lucky bird poo on my shoulder that morning!

havingabath · 05/05/2012 22:51

Sounds fraught:( good to know that bird poo thing works though:)

Original poster
HelloBear · 06/05/2012 12:56

Frantically walking under the path of flying birds now.

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havingabath · 08/05/2012 17:04

How you doing HelloBear? We are all a bit up and down...time is dragging.

Original poster
HelloBear · 08/05/2012 21:43

Hi having - not doing so well tonight, I've the animo tomorrow, so we are all a bag of nerves tonight. I know the procedure won't hurt but it is just getting closer to finding out the results. I have completely convinced myself it is going to be bad news, started imagining that the consultant knows something bad (started replaying his tone of voice when he said stuff to us in my head if that makes sense) and also feeling like being a rubbish mum to my DD as not focused on her at all. Also my totally unflappable DH is clearly upset tonight and this is just not like him.

I can't believe that this has been going on for over a week and yet we are still no nearer to getting answers and we still have to wait 'till next week (and more) to get the yes or no. Though compared to you it seems pretty quick! It is a really long wait for you and no wonder time is dragging.

Oh also I did not know anything about measuring the fold and nasal bone until you replied. So feel a bit peeved about it not being offered by the hospital (or even told that it was an option privately) and I have frantically been looking at the scan pictures to examine the nasal bone, when I know that this is only going to lead to me stressing even more (google is dangerous at times). But I guess with my combined test it is unlikely that any further tests would lessen the odds to the extent that it would be a low risk.

But on the plus side a good friend brought a big box of chocolates round the other day so working my way through it now.

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Original poster
HelloBear · 08/05/2012 21:43

Sorry that went on a bit!

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havingabath · 08/05/2012 22:27

Hiya yeah we are having scan then maybe amnio tomorrow too. It is hard to be prepared without panicking, have been full of adrenaline today and done lots of the houseworky jobs I have known needed doing for months:) Housework is not my forte.

I couldn't do the NHS wait...too long, so we are on the same hellish timetable. If mine is longer it will be self inflicted as am not sure about the amnio. Hopefully the right answer will appear tomorrow. Partner would like one but I just am not sure.

We all go over stuff, actually having had no scan and no chat with anyone other than the midwife who called (and got stuff wrong) I don't have much material and am still lurching from tragedy to trauma via farce and denial. Sorry the nasal bone stuff caused you more angst...I only know it because I missed out on the combined test which would have been more effective. I am grrr that they booked me when they knew I wouldn't be eligible for the NS, I just took them at their word and made sure all dates were clear. Stooooopid it appears. I really wish I had that info.

Have you spoke to ARC? They were excellent I would speak to them again if I had any questions or wanted to go through stuff. Well I wish you much luck and us both some resolution.

Original poster
HelloBear · 08/05/2012 23:03

Good luck for tomorrow having xxx

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mummytoh1 · 09/05/2012 09:10

hellobear and havingabath, just wanted to wish you both the very best of luck for today.

I had a 1:15 in October 2010 with my DS2, went on to have a CVS and got the all clear. He's just turned 1. :-) Really hoping for the same for you both.

x

Original poster
HelloBear · 09/05/2012 11:37

Animo done, now resting on sofa, watching old films and eating crap.

The consultant did another really good scan of baby and he seemed pleased with everything he saw (though constantly reminds us that it is too early to tell). If all the tests come back OK we have another scan at 18 weeks to check for other possible defects.

They are testing the whole range, so the full tests wont come back for 2 or 3 weeks. But we'll know for T 13, 18 & 21 next week. Tick tock, tick tock.

having hope today has been OK?

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Original poster
HelloBear · 09/05/2012 11:38

Thank you mummy it is reassuring to read others positive experiences.

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Winnie81 · 09/05/2012 17:31

Hello our consultant said that "brown food" and "pollen" can help recovery aka chocolates and flowers! He also said that I shouldn't do any washing up or hoovering for 2 months!! Of course he was only joking but it lightened the stress of it all.

Try and keep your chin up and I'll hope for only a 2 week wait at the most with a touch of bird poo on the shoulder for some good luck xxx

shoeprincess2 · 09/05/2012 18:30

Hi ladies, particularly hellobear and havingabath- hope you are ok after your amnios. I was in your position in March. Had a 1 in 5 risk and then an agonising 3 week wait until my amnio. I couldn't relax, I was a bag of nerves and then the wait for the results was agonising. But, I got through it and all was fine. I know what you are going through so lots of virtual hugs coming your way. Take care both of you. S xx

havingabath · 10/05/2012 10:08

Glad you are back home Hello Bear and that your scan was good. My scan went well too, no promises but looking fine. The risk didn't change much as my bloods were too significant and I was still wibbling re amnio then our consultant was happy to offer me a cvs as I was just within the time and his loss risk is 1 in 400 so we had the cvs. All looked fine after and I feel reassured by that.

Was hoping that your experience was good too, it's so challenging one way or another. Am utterly drained today. Our Down's results will be here by Fri evening and the others will come later. They are confident already that it is not Edwards or similar, I was really worried about that though it is less likely.

Hoping our results are here soon.

Thank you for sharing Winnie, Shoeprincess 2 and mummytoh1 it is good to hear your stories and good wishes. There was a mum there yesterday who obviously didn't get good news and I felt for her so very much. It feels almost indulgent to worry so much when there is a good expectation of no problems but it's so hard not to. My partner is in an even worse state not sure if he will survive work until he knows more. Have my fingers crossed that some of the idiots he works with don't rile him too much this week!

Original poster
HelloBear · 10/05/2012 14:44

having - It sounds like your consultant was great offering you the CVS and his loss risk sounds v. good. Our consultant said that the 1% chance of MC is a national average and his loss/their department was way better than that, so really an unhelpful stat in my eyes. Good to read that they do not think it is Edwards or similar, as what I have read it is just heartbreaking (that naughty google again).

For me and my DH the risk is so high that not having a test was not an option, though I totally understand and respect that others do not feel this way. It is so personal. Oddly having the test has helped me a little, I felt so useless just doing NOTHING and waiting, it was driving me crazy. Now I know that either some of this hell is coming to an end or it is just going to get worse. Either way I will know.

But I am going to end on a positive note - I am sure we will both get our results in a speedy manor and have happy, healthy pregnancies.

Rest today!

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havingabath · 11/05/2012 19:25

Hello Bear, hope you are still feeling positive and that your results are with you soon.

Ours are in and we are clear for T13,18 and 21.

What a week... you will stay in my thoughts and I hope for good news for you too.

Take care

Original poster
HelloBear · 11/05/2012 22:22

Yay havingabath so pleased for you, that's great. I bet it was lovely to hear.

No news here today so it'll be Monday. I've gone away for the weekend to try to relax, DH is out getting p*ed. :)

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Winnie81 · 12/05/2012 09:32

That's great news having, it's a relief when they come in especially when it's good news x now you can relax and enjoy being pregnant.

Hello I hope yours come back Monday xx