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Not to tell DH about this pregnancy?

63 replies

DayToNightBarbie · 04/11/2011 12:10

Will try to keep this as short as I can. DH and I are both carriers of the gene for cystic fibrosis. This means that any child we conceive without PGD IVF will have a one in four chance of having the condition.

We have a one year old son who's, thankfully, unaffected (we didn't know DH was a carrier before I got pregnant). We would both LOVE to have another child but can't afford PGD. We've discussed possibly trying for another baby naturally and then having the CVS test and terminating if the baby is found to have CF. I'm really sorry if this sounds horribly insensitive to anyone reading this who's affected by CF, by the way :(

When I was pregnant with DS, we didn't find out about DH being a carrier until I was way past the CVS window and in any case, I was absolutely adamant that I wouldn't even consider terminating for that reason. Since then, we've both changed our minds about whether we feel we could knowingly bring a child into the world who was suffering from CF.

My cousin has CF and she was horrified that I didn't have an amniocentesis - she thought I should have done and should have terminated if my DS was found to have CF, even though it would have been done at around 20 weeks into my pregnancy. That's how strongly she feels that CF is not a condition she'd wish on another living soul. This has made me and DH think about things a lot (part of the reason I didn't feel I could terminate for CF, even at a much earlier stage, was the thought that my cousin may never have been born if these tests were an option back in the day).

Anyway, as I said, we decided to talk about maybe trying for another baby in about a year's time. IF, and only if, we both felt sure we could cope with the possibility of terminating at around 12-13 weeks. DH has said that although he'd definitely not want to continue with a CF pregnancy, he isn't at all sure he'd be able to deal with a termination.

Well, I've just found out that I'm pregnant again. I can't help feeling thrilled about it, even though I shouldn't be. I can't help feeling excited and optimistic and hopeful but I'm pretty sure that DH won't feel the same way. For this reason, I'm seriously considering not telling him until the CVS confirms that the baby doesn't have CF. And not telling him at all if it does. I don't want to ruin the next two months for him and I don't want him to have the heartache of knowing about the termination if he doesn't have to.

Also, and this is me being selfish, I don't know if I can cope with his reaction as well as coping with the uncertainty of all of this myself :(

Am I being totally unreasonable?

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DayToNightBarbie · 04/11/2011 16:14

Reindeer, that's fair enough. I did ask for people's opinions. My mum and sister have just told me off big time for being so irresponsible. They've also said that I have to tell DH now that I've told them, as it's not fair for him not to know when they do.

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DayToNightBarbie · 04/11/2011 16:18

I've heard that second time round you are more tired and could start to show earlier. What if you suffer from morning sickness?

Actually I've been feeling as sick as a dog since Tuesday. Weird, as my period wasn't even due til tomorrow and with DS, the nausea didn't start til 6 weeks in.

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AKMD · 04/11/2011 19:56

Just coming back to say I hope you're alright. If you've told your mum and sister then he has to know ASAP. A secret told is no longer a secret.

saintlyjimjams · 04/11/2011 20:04

I think you should tell him BUT I also think your cousin's experience is just that - her experience, and any child you had with CF could have a totally different experience. DS1 has severe learning disabilities and severe autism and while I know it's not the case for everyone he has a fantastic life. He is avery affected by his disability but still has a life that is very much worth living. Others with his level of need have their own lives which might be very different. If you spoke to 100 people with CF you would get 100 different opinions and experiences.

Also a mid term termination would have a huge effect on you and you should have a choice over whether you would choose to go through with that.

xx

AKMD · 04/11/2011 20:19

Also agree that your cousin should keep her beak out. "Had very strong views on my pregnancy" indeed!

DayToNightBarbie · 04/11/2011 22:05

He now knows. He's reacted more positively than I could ever have imagined. I'm amazed at how well he's taken it. He's actually pleased, while trying not to get too excited, which is exactly how I feel too.

Really glad I've told him. Thanks so, so much to everybody who's posted on this thread. I honestly am so grateful to you for taking the time and for making me do the right thing Thanks

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DayToNightBarbie · 04/11/2011 22:09

Oh, just noticed that my thread's been moved - bit surprised as my OP was about whether to keep the pregnancy secret, not about the actual CVS test Hmm

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AKMD · 04/11/2011 22:13

That's brilliant, well done.

It was probably moved because it was a very sensitive thing to post on AIBU and MNHQ are cracking down a bit since a few regulars kicked off about threads being in the right place.

ChippingInAutumnLover · 04/11/2011 22:26

It would have been moved to spare you from the nasty comments you were bound to get on AIBU It doesn't really matter what your question is, people will go off on a tangent. Also, the things they say would hurt a lot of other posters too - so better to be a little safer I guess.

I don't think it has anything to do with the moaning that's going on about the threads being in the right place - you asked a reasonable AIBU.

I'm really really pleased you have told him and he feels the same as you. You have a lot to talk about and I guess it's going to be a pretty big roller coaster and you wont always be in the same place at the same time... but you've made a good start.

Congratulations !!!! :) Thanks

ReindeerBollocks · 04/11/2011 22:27

Hi OP

Glad you've told him and it's a great sign he's being more positive.

I also wanted to apologise for being overly harsh in my original post, it's been a tough week for DS (more infections) and I completely projected this in my post to you.

The CF Trust is a really helpful forum for anyone wanting advice/experiences (which are a lot more positive than mine) and they can be a really supportive bunch.

I'm also happy to give you more info if you need it, just PM me. I can understand why your cousin and I reacted in a similar way, having witnessed what people with CF go through, but as saintlyjimjams so beautifully put it, I'd rather DS be here than not.

I wish you and your family all the best.

MyMelody · 05/11/2011 11:55

Well done, it must have taken a lot of courage to tell him, but must be some weight off your shoulders now, best of luck to you both :-)

Thread might have been moved to make it easier to search for in future for others in similar situations, nothing to worry about

SweetGrapes · 07/11/2011 12:24

Well done! Fingers crossed for everything to come...

DayToNightBarbie · 07/11/2011 21:24

Hi, just want to thank you AKMD, ChippingInAutumnLover, ReindeerBollocks, MyMelody and SweetGrapes for your kind posts and apologise for not acknowledging them sooner - it's been a really busy couple of days :)

Reindeer, no need to apologise at all. I'm so sorry to hear your DS's been poorly, it must have been a really difficult week for you. Hope he's recovering well and is feeling better. I'm sorry for being insensitive with my OP - I was so wrapped up in my dilemma that I didn't stop to think about how it would come across to parents of children who actually have CF Blush

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