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CCAM - congenital cystic ademnomatoid malformation - anyone know anything about this??

3 replies

mrsbigz · 28/10/2011 14:11

having lost Eve at 17wks back in March I was dreading my anomoly scan today.......on the positive side, babybigz was measuring right on track, heart looks perfect, limbs all the right length, very active, brain all ok (no excess fluid). I thought we got away with it.........

then she said that she needed to get a second opinion. on his right lung she'd noticed an echogenic area, on the scan it was showing that lung was much brighter than the other aqnd she referred us back to prenatal diagnostics - they said the echogenic area could be symptomatic of CCAM (congenital cystic ademnomatoid malformation) which at it's worst can be fatal, but mild is completely liveable with (and she did stress that they don't even know at this point if it is that. she also said that everything else looked really good, there was no hydrops (another symptom), the heart hadn't been pushed aside (another symptom) but is sending us to the JR in Oxford next week for a detailed scan.

Anyone ever heard of this / had any experience. i'm in a right state, happy that everything else seems to be looking ok, but really really not what i need for my nerves........i don't think i'll ever be able to relax in this pregnancy now.

OP posts:
misty0 · 28/10/2011 18:27

Oh MrsB everything will be fine i'm sure. Relax as much as you can. I hope someone can reasure you soon here hun xxx

(i've emailed you btw )

Yaya70 · 28/10/2011 20:57

mrsbigz, I'm so sorry to hear you're going through this. Fingers crossed it turns out to be nothing to worry about.

The son of a friend of mine had CCAM diagnosed prenatally. I think his was quite a serious case involving a large part of one lung. He had surgery very soon after he was born to remove the affected bit. All went well and he's now a healthy, happy and very cheeky 3-year-old.

mrsbigz · 28/10/2011 23:28

thanks Yaya, its comforting to know that there is a good outcome, i'm just scared silly at the moment, fingers crossed all will be well when we have our scan on tuesday xxxxxxxxxx

Misty - thanks for the email xx

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