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We went ahead with the "late" amnio

11 replies

Sparklies · 14/03/2011 16:07

Today was my "late" amnio appointment at Kings College hospital - probably one of the best places in the world to have it done. I am 31w6d today.

To recap, at 12 weeks we found out that due to my bad bloodwork, the baby has a 1 in 34 chance of having Down syndrome. We would not terminate for a non-lethal problem and I was not happy with the risks of an invasive procedure before viability.

The doctor confirmed the risks - the same as for earlier amnio, except the risk becomes preterm labour. So a 1% chance of preterm labour. I suspect it is probably not as high as this; I think they're only allowed to quote national levels. I can live with 1% anyway as I am surprised I even reached 32 weeks due to my other high risk issues related to my cervix!!

There is also a quoted 1 in 1,000 risk of infection. Again, I am fine with this. She said if there was an infection it would likely show up in the next day or so.

I wasn't sure if I was going to go ahead until the appointment but I had done my research and judging from various research papers on late amnios, none of which showed maternal or fetal loss, just "complications" (e.g. pPROM and earlier than expected delivery) so I was happy with the risks.

Firstly the doctor-sonographer did a really detailed scan and everything looked fine, including the heart - they even got in a specialist consultant to check that over. And another internal cervical length check!

Then it was time for the amnio. The needle wasn't quite the two foot sword I'd been hearing about in horror stories! It was more like six inches long and quite thin. They identified a big pocket of fluid beforehand to use, then scanned throughout the procedure. It didn't really hurt (no anaesthetics used) aside from a weird pinching sensation as it went in, and lasted about a minute. At no point did the needle touch the baby.

Afterwards I had to rest for 10-15 minutes just in case I fainted or anything! Then we went home.

I've had a few more contractions than usual which are now dying down, and I feel a bit crampier than usual but that's to be expected really. Baby is kicking as normal!

And now we have to wait. We're getting the PCR results (a better version than FISH) which means we should hear in 3-5 working days although the technology works faster than FISH. It's probably hospital bureaucracy causing the delay! 2-3 weeks for the full karyotype.

So Thursday at the earliest, possibly as late as Monday.

I feel sick just thinking about the phonecall. I know we've waited 20 weeks already but..

All the same, I guess I am just glad we will find out now and not have this wait before the birth and have it overshadow everything, which it was going to. And I can finally STOP obsessing over ultrasounds looking for markers and signs and maybe use the energy more productively. And if we do get bad results, I can use that energy to learn and prepare for a baby with Down syndrome instead of pointlessly going over numbers over and over with no answers.

I will update when I hear the results of course :)

OP posts:
ghansell · 14/03/2011 16:27

Glad it went well. Hopefully the waithing won't be too long for you I will come back in a couple of days to check for your results. Make sure you rest and no heavy lifting.

I had my anomoly scan today and we now have the all clear.Although baby wasn't in a great position to see the heart chambers properly she wasn't concerned as it was down to position and the crappy machine they use. But will be having another heart scan in london on the 31st march.

Take it easy and fingers crossed for good news for you too. How you have done 20 weeks patiently waiting i'll never know.

Sparklies · 14/03/2011 16:58

That's wonderful your scan went so well today! Shame about the heart (this one was having trouble showing his today too - must be the day for it although they got a "reasonable" view in the end!) but glad you're getting another scan.

Sitting firmly on my backside - I'm afraid to even go to the toilet and I've almost sneezed a few times today! Probably being waaay too cautious - in fact the doctor said they've seen no difference in outcome between people who rest and those who don't which is interesting.

I wouldn't say patiently waiting Grin !! I still can't believe the wait is nearly over. It's going to seem weird "knowing"!

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MadameCastafiore · 14/03/2011 17:00

Glad it went well - I had CVS with both of my pregnancys and both kids were fine.

The hospital were very good and rang me at 9pm at night when they got the results baack just so I didn't have to wait any longer. I do hope that you get your results quickly.

summerpixie · 14/03/2011 17:22

Fingers crossed for results to arrive on Thursday. I'm sure I'll be as anxious as you! I too have bed lazed and had a nap since coming home I need a wee but DH has gone out to collect DS so I'm waiting til he comes back to help me or in case I see blood. I'm so paranoid at the moment.
DH said the CVS needle was long and fine. I didn't look at it as all I could think about was it hurting my baby :(
So, now we wait.

WipsGlitter · 14/03/2011 20:26

Sparklies I have been following your story here, I am glad you went ahead with the procedure. As you say either way you will be in a better position, either able to relax or able to prepare for a baby with Downs. I'll be lurking for the results.

Bubandbump · 14/03/2011 20:30

Fingers crossed while you're waiting - Sparklies I still don't know how you've managed it so long. Don't forget to bug them at kings (a little) for the results.I know they had my results before I rang them... I used the excuse that I had a missed call on my mobile and was just checking whether it was the results - anything to stop the waiting!

Sparklies · 14/03/2011 22:36

Baby is kicking up a storm as usual and no sign of any leakage (touch wood!) so far, so that's good.

MadameCastafiore - wow, that is good service! I'm not sure if I could expect that from Kings College, but I guess I'll see!! I'm going to be afraid to even take a shower in case the phone rings ;-)

summerpixie - thank you! I hear you on the paranoia. Everything seems fine at the moment and the biggest risk is during the procedure (especially with CVS), but still! Every time I feel the baby kick near where the hole is I wince just in case.. heh. I hope you hear back really soon too.

WipsGlitter - thank you! I am actually finding myself not scrutinising the u/s results like I used to because I know I will have an answer soon. The results don't actually change the facts - he's still the same baby regardless - but I can't help but feel everything will change after that phone call whatever the results are!

Bubandbump - nor do I!! I think not being sure if I was going to do the amnio today or not helped - for all I knew I may have still had another six weeks (birth) to wait. So it made the countdown to today a little more bearable. Great tip on calling them and faking a missed call; I think I might try that on Wednesday afternoon! Technically it takes them 48 hours or less, it's just the rest of it..

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mrsbigz · 15/03/2011 16:56

Sparklies - so glad to here the procedure went as well as expected yesterday and now you're (back) in the waiting game again - hopefully Thursday will come really quickly, though after waiting for 20wks i'm sure a couple of days will pass quite quickly. hope you're getting lots of rest and i'm glad to hear that baby is kicking around as usual :)
will you be finding out the sex too from your amnio? or don't you want to know that part!?
thank you for describing the amnio anyway, apart from the fact that there is a risk to baby, and of course the reasons behind why i'm having it - the thing that scares me most is the actual procedure....and because we have to take our ds2 to the hospital with us on monday, dh won't be able to be in the room with my when i'm having it done. not sure who's hand i'll squeeze (break :o)
anyway - please update when you get your results back, will be looking out for your post
lots of love xxxxx

Millymolliemandy · 15/03/2011 20:05

Hi Sparklies, just wanted to add that I will be thinking of you, the wait is horrible, but at least it is nearly over and you will have a definitive answer.

Sparklies · 15/03/2011 21:07

Thank you very much, both of you! The results are back - will update in another post :)

mrsbigz - I didn't hold DH's hand, but then I've had so many procedures without him (my last pregnancy was not exactly.. peaceful, thanks to my incompetent cervix!) it didn't even occur to me to! There may not even be room as there were about two people on one side and one on the other - no idea what they were all doing but they seemed to have a purpose each! It really is not that bad at all - of course because it is a risky thing you make it out to be this massive thing in your head but the reality really is an anticlimax as these things go.

I hope things go well!!

OP posts:
NatzCNL · 16/04/2011 10:26

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