anyone had a multiple triploidy pregnancy?

[sarahmia]

Ive just founf out that the baby i am carrying has triploidy. I lost a baby 6 months ago to triploidy. They said it was a freak and wouldnt happen again. They are totally baffled as to how it happened again. And are saying its just really bad luck.
SOmehow i just cant believe that.

Anyone else had something like this?

Sarahmia, I am so sorry to hear your news.

My sister had a triploidy (Edwards syndrome) but then went on to have 2 lovely DCs. Although she was older, she was told this was random and not related to her age.

I think you and DP should ask to speak to a genetic counsellor.

It may be that there is an issue, or it may be that it was incredibly bad luck. It is difficult when it has happened to you to imagine that this could be chance, but that is also because risk and probability is difficult to think about in relation to you.

As an example, although unlikely, it was statistically more likely than winning the lottery and yet I believe people do randomly win most months IFYSWIM.

Doesn't stop it being miserable and scary for you. I am terribly sorry for your loss.

Sarah, I'm really sorry to hear your news - I 'met' you on the other thread you were on. You must be just devastated.

I wonder if ARC would be able to give you support/further info; or whether Unique, a support group for rare chromosomal disorders, could point you to other parents? Are the hospital able to offer genetic tests at all? Would it be worth asking about Pre-implantation genetic diagnosis (something I've seen discussed on here before)?

Again, I'm so sorry to hear your news and pray that you and your DH are getting good support to get you through this terrible time. xx

Hello Sarah. I am so very sorry to hear your devastating news. It is an unbearable time for you right now and I just wanted to let you know that you are all very much in my thoughts.

Whilst no experience of triploidy, I have had pregnancies affected by recurrent trisomy 21 - three in all. There are a handful of us here who have experienced a repeat of the same chromosomal anomaly. Each of us were told it was extremely unlikely to happen again, yet we were 'the ones'. I found follow up extremely frustrating. No one could give us any real answers, just estimated risk factors for future pregnancies. We've debated at length the 'why?' issue here and usually agree that the 'random bad luck' line that gets trotted out is simply a way for the medics to get around saying that they simply don't know.

Anyway, I just wanted you to know that others here have experienced the pain of multiple loss and are always around to offer advice, support and a comforting shoulder. Numpty's suggestion of ARC is spot on. I've used them before and they really do help. Also, this forum was a lifeline for me not so long ago and I hope it is able to give you something too. Thinking of you.

Just wanted to send you my love and and say I'm thinking of you at this time. I've had two T21 pregnacies (2008 when I was 38 and 2009 at 39) - I was also very worried that there was something in my family that was increasing our risk factors as I have a first cousin whose son has DS. We had genetic councelling and testing and that indicated there was nothing in our genetics and it was just random bad luck - I thought I was the only one until I contacted ARC and met others on Mumsnet - whilst its not common there are a number of us about and we do understand the shock and pain - for us once was just bad luck we which we had started to deal with twice was crushing. We had councelling for nearly a year and it did help as well as the support provided by Mumsnet/ARC.

Thinking of you.

Oh Sarah - I'm so so sorry to hear your news. That must have been such a shock for you - I'm so sorry sweetie. I hope the next days pass quickly for you and that 'everything else' goes smoothly. There's no easy way to get through it, but at least know we're here thinking of you - here or on the two big support threads - wherever you feel most comfortable. There are a few other women around besides Shangrila who have sadly had multiple problems - although sometimes two seemingly independent chromosomal or developmental problems rather than a direct repeat. As Shangrila says, the 'really bad luck' line does seem to cover the fact that no-one really knows yet what causes these problems, so its hard to pinpoint. Its not fair Sarah and things shouldn't be this hard for you. I just wish there was something more helpful I could say. xxxx

Sarahmia, I just wanted to say how sorry I was to hear your news. I can empathise totally, as I had two Down Sydrome pregnancies in a row and was completely bewildered by the fact that lightning can sometimes strike twice in the same place, despite everyone telling me in those first 11 weeks that it was extremely unlikey. It's just not fair!

I wanted to wish you Shana Tova today and hope the new year brings you luck and joy x

Thank you all. I understand that really the DES just don't know why it happens, and in fact it probably happens more than they realise but because people miscarry and therefore never find out what what wrong they don't have any proper info. It all feels lie a dream at the moment. I'm so angry with everyone and everything.