... to opt out of the NHS summary care record?

[WillbeanChariot]

I have been undecided and the time limit at my practice expires this week, so I'm going to opt out for me and DS.

I am concerned about privacy, the number of people who will have access and possible future use by the government. I can opt in later if I want but if a record is made now my understanding is it can't be deleted in full.

So, AIBU?

Indeed. Of course, if Scotsmen ever venture south of the border, they'll need to deal with their records being unavailable.

Is it just me, or is a system which purports to have its main benefits when you are away from home, and yet only works if you are in the region of the country you live in, a little odd?

Interesting. I will be opting out if it isn't too late (I intended to ages ago, but forgot).

I opted out. It's on the basis that they can't tell you now who and what information might be accessed in future, i.e. while it may be limited to summary notes and the medical profession only now, that may well not always be the case. That and the fact that the government in general has an appalling track record with personal/sensitive data and large-scale IT projects.

The "unconscious patient" scenario only works if you have a distinctive name, or carry your full name, DoB and postcade in your wallet. I don't, owing to the consequences of a pickpocket making off with all that info. So I doubt that any useful info could be got from initial and surname. Even my own GP practice failed to id me on just that.

We opted out. The multiplication of who can see your records, find your home address, potentially embarrassing conditions, etc (especially if you/your DC ever hold public positions) was unreasonable to us.

What Butterbur said.

Yanbu. I have opted all my family out. It is an erosion of our civil liberties and right to medical privacy. The scheme will be extended in the future, you just know it will. What you have given consent to now is, IMHO, likely to be stretched and widened.

YANBU just stupid.

errr,i had no idea about this (and im usually quite on top of things like this...anyone care to explain?!

also if my surgery have said nothing,does that mean they could have opted me in, on the basis i didnt opt out?

It's never too late to opt out - your records may not have even been uploaded yet. Even if they have, opting out prevents your record (record as in medical details - the whole of the health service and ss and everyone can still see where you live unless you have your PDS flagged as sensitive) being seen.

thankyou.

skyeplusbump some info here and here

And [[http://www.nhsdatabase.info/ here}}

Or here even!

The latest assessment by Trish Greenhalgh's team at UCL (we are not worthy) is here.

I have opted out

Having been on the end of the arrogance, lying and bullying treatment from health professionals when I found out that incorrect info was on my written medical notes - information that COULD have resulted in my newborn being taken from me by SS.

The only way I knew that this info was on my notes was becuase I STOLE them and read them, if these notes were only available on computer and I couldnt see them I would never have known.

Be aware that although they say you can see computer records held on you - you cant, the data controller has the right to withhold ANY information if they feel it would cause
you harm to know about or if the info involves a 3rd party, the incorrect info on me would have come under the former and I would NEVER have been given access to it

I don't feel that health professionals should have our automatic trust anymore than anybody else should. Just because staff should not look at your records because of a clause in their contracts - how many of us have heeded to our contracts of employment to the letter at all times?