My son had an appointment with a geneticist from Addenbrookes at an outreach clinic at Ipswich on the 4th May. I asked the doctor to write to me outlining what he had said(very complicated stuff) and he assured me he would!! I rang the appointments lady two weeks ago and she said she would pass the message on that i was still waiting for the letter. I ring again this morning and the same lady i spoke to two weeks ago says i need to speak to the doctors secretary!! Why didnt she tell me that and give me the number two weeks ago? I have just rung up and the secretary and she thinks my ds's notes are still in the doctors office. I have had to chase it all up as he has another appointment on Friday which his residential school are taking him too and they need some info from the genetics appointment to take with them!!! I am fed up having to chase everybody for everything all the time!!!