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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that if something says Gluten Free -

6 replies

flossie64 · 06/02/2010 17:55

It should not contain wheat.
Or am I being unduly thick?

OP posts:
FaintlyMacabre · 06/02/2010 18:03

No, wheat can be denatured in some way so the gluten is removed but other wheat proteins remain. Someone with coeliac disease could eat it, but not someone with a wheat allergy.

You need to look for a wheat free label, not necessarily gluten free. Rye and barley also contain gluten but are suitable for wheat allergy sufferers.

flossie64 · 06/02/2010 18:13

Thanks for that, I have emailed them to clarify, as my friend ,who is coeliac was quite unwell after having it. I have checked their allergy data, the only thing I can see which may have caused the reaction was it may be cross contaminated with mustard seed.

OP posts:
heQet · 06/02/2010 19:00

According to my gluten free directory from the coeliac society there is something called 'codex wheat starch'.

"codex wheat starch is a special wheat starch that has had the gluten removed to a level which is within the Codex standard. Codex wheat starch is mainly used by some manufacturers who produce gluten free food for prescription sales as it improves the taste and texture of the food, making it more like the gluten containing varieties. The majority of people with coeliac disease can tolerate codex wheat starch"

So it seems like some people with coeliac may not be able to tolerate it, just 'most'. And something could be labelled gluten free and contain it.

flamingtoaster · 06/02/2010 19:04

As heQet has pointed out Codex Wheat has most of the gluten (but not all) removed - current legislation says it has to be below 200 ppm but this is due to go down to below 20 ppm. Some coeliacs can tolerate Codex Wheat without problems - but some can't either because they react to the low level of gluten it still contains or because they react to the wheat itself. For your friend you need to look for glutenfree and wheatfree.

onepieceoflollipop · 06/02/2010 19:11

Was it mustard seed or mustard flour? If I understand correctly then most mustard flour does contain actual flour (and therefore gluten) and is not wheat free.

Also don't forget that just because your friend was unwell, it could have been unrelated to what he/she ate.

My dh is a coeliac and rarely slips up with his diet. However on a separate issue he is more prone to general tummy bugs/upset stomach etc. We think it is do do with damage that was done to his insides as a small child (i.e. before he knew he was a coeliac)

flossie64 · 07/02/2010 12:29

Hi -thanks for the replys everyone.
My friend is usually able to pin point fairly well what she thinks has upset her, as it manifests itself within the hour, IYGWIM.
onepiece- it just said risk of cross contamination from mustard seed, not rally that clear ,also data said nothing about ppm of gluten, so pretty useless really.
So if you're either not a coeliac/ new to it , you would be not better informed as far as I can see.
Why do they have to make things so difficult for people?

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