To think that if a non English speaking child can have an interpreter funded and a SEN child can have TA support a child who has a life threatening medical conditiong should get support.

[islandofsodor]

Someone I know had a phone call a couple of days before their ds was due to start a state nursery school to say the council wouldnt fund any 1-2-1 carer time so he couldn't start nursery. They say they only provide funding support for educational, not medical needs.

He has a medical condition which means he has just 3 minutes to live if his line which keeps him alive becomes accidentally unattached. GOSH say that all the other children in the country with this condition get this support. The school say he needs around 23 hours of funded time. The council won't pay for it.

Also if he has a toileting accident the school will not change him but wait til his mum arrives. I know this is illegal but they are arguinng that they won't.

Might be worth flagging this up to SparklyGothKat and ask her what happened with her ds1 - his needs are purely medical afaik (though he is now older, 10 I think).

I'm having arguments with my school nursery atm regarding my non-potty-trained ds who they won't change, but that's nothing compared to this!!

Try the link of my website (above) Miaou, Because its written by Sure Start it sometimes works.

Can't answer all those questions as obviously I'm not family. i do know the school was chosen on both religeous grounds, they are Catholic and it was the one that all the rest of the family went to. Also it is quite close to where several close family members work as opposed to where they live.

From asking around the only schools I know with a school nursery on site are big secondaries and my dc's school (indy attached to a secondary) .

I know that the way my dc's nursery approached toileting etc with my two is totally at odds with the state school policies. You shouldn't have to pay for common sense should you.

Jimjams' link is also on the official DFES Early Years Foundation Stage website so should hopefully carry some weight.

Thank you jimjams, am going to read that in more detail later (however I'm in Scotland so I don't know what wriggle room that gives them )

if they will give a child with epilepsy the meds during a fit, how is this different?

unfortunely although my Ds1 has medical problems (cerebral palsy) he has never needed support, and he went to a SN nursery, so i can't help here. But a child who needs a line to keep him alive should get support. I suppose its more to do with the fact that they will have to train 2-3 people how to deal with this, rather than the nursery can't take him IYKWIM

yanbu. at all.

there's a girl with cancer in ds3's class. ds3 needs his 1-1 but I feel terrible that she hasn't got one, despite being obv. very ill, often upset etc

it's shit

we had the toileting thing- does his disorer come under the disability discrimnation act? surely it does

Agree with JimJam- they'll have to put it as a legal obligation. Many LEAs will not statement children with medical needs, which means it can be much harder to get support for these children. Have had a lot of trouble with this one ('but your dd doesn't have learning difficulties'- 'no, but she's not learning because she can't get to the bloody classroom' ['angry']