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A&E refusing to give more than paracetamol when I’m in horrific pain

262 replies

Wonderingmummy · Yesterday 16:15

I found out I’ve got gallstones, I need it out but I’ve been put on a waiting list. I’ve also just had a baby which can apparently trigger the attacks.

I had an attack 4 days ago, called 999. The worst pain I’ve ever been in, rolling around the floor at hospital. They refused to give me any more than paracetamol and I was just left to it. 6 hours later, it passed and I was told to go home.

I’m still thinking about it, and it’s annoyed me that more wasn’t done. Do you think I’m unreasonable to expect more? When the inevitable happens and I have another one, I already know my A&E will refuse to help and I want to advocate for myself better.

OP posts:
HappyMamma2023 · Yesterday 18:39

I haven't experienced gall stones, but when I broke my ankle in 3 places and displaced it I was given paracetamol. And then gas and air when they set it. So I don't think they prescribe morphine often

SecrecySanta · Yesterday 18:43

JLou08 · Yesterday 18:37

To be brutally honest, if I saw someone rolling around on the floor in the hospital I'd think they were putting it on or exaggerating for some reason, potentially to get their hands on drugs that will make them feel high, like strong pain killers. Maybe that's what the staff thought and they are trying to prevent addiction.

Are you a hcp?

iamlost2026 · Yesterday 18:46

I went to a&e on Saturday night with pain that was spreading to my back and shoulder, being sick, had a fever. Had no idea what was happening to me.
They think gallstones or an infection in my gallbladder. Told to take paracetamol and wait for a scan.
Almost a week I have been in pain, unable to work or look after my kids. The pain is unbearable

Millytante · Yesterday 18:50

ThreadGuardDog · Yesterday 18:35

OP, morphine can cause the sphincter controlling the flow of bile into the intestine to clamp shut or spasm. If this happens while the gallstone is already blocking the bile duct it can make the pain much worse and potentially worsen the pressure inside the biliary system. Morphine also carries a much higher risk of unwanted side effects like depression of the respiratory system, nausea and constipation so it’s not the first choice in this situation. Non-steroidal anti-inflammatory drugs such as naproxen or diclofenac will target the inflammation and pain without the side effects of narcotics.

That distinctive duct pain some people experience with opiates is instantly relieved with a good dose of magnesium. Like magic, it relaxes the spasming muscle. Thereafter, you take the two together.

jazzflute · Yesterday 18:52

I was diagnosed with gallstones 6 months after having my first baby. Not in this country but I was taken by ambulance to A&E - I thought I was dying. they gave me IV pain meds and then i was given Tramadol which worked really well for the two attacks I had in the 7 months i waited for surgery. I was breastfeeding. I ate a very low fat diet and it worked apart from the two occasions where I slipped up and had an attack (ice cream and pizza respectively). If you are old enough to remember Rosemary Conley's Hip and Thigh Diet - she came up with that because of having gallstones as far as I know. The operation to remove used to be pretty major before keyhole surgery. Thank goodness for modern medicine.

Millytante · Yesterday 18:53

Wonderingmummy · Yesterday 16:17

I have, they’ve given me codrydomol but the only thing that helps is morphine. But I’ve also been told be careful as codrydomol can make it worse.

I am just a bit traumatised by what happened, I think.

So where did you obtain morphine on previous occasions?

allthingsinmoderation · Yesterday 18:53

Did they say why they didnt want to prescribe anything stronger than paracetamol?

Samysungy · Yesterday 18:54

How do you know only morphine works?

Coeliacsmum · Yesterday 18:55

In any other civilised country you would have surgery booked for next week. In the UK that is even hard to do privately. I waited 1 month privately and only had 2 attacks in total thank goodness. You have my sympathy. The NHS is useless.

Dithercats · Yesterday 18:57

Gas & Air plus Iv morphine in hospital...oramorph & buscapan for attacks at home while waiting for surgery (1yr wait).
Eating anything was a trigger so I got very thin that year 🙄

Trumpisacunt · Yesterday 18:57

JLou08 · Yesterday 18:37

To be brutally honest, if I saw someone rolling around on the floor in the hospital I'd think they were putting it on or exaggerating for some reason, potentially to get their hands on drugs that will make them feel high, like strong pain killers. Maybe that's what the staff thought and they are trying to prevent addiction.

The Op has obviously had a proper diagnosis which should be on her hospital medical records so it should be pretty obviously she wasnt an addict but a patient diagnosed with a very painful medical condition

SquirrelGG · Yesterday 18:58

XenaSharples · Yesterday 18:03

999 is for emergencies. Severe pain is an emergency.

Not all gallbladder attacks are equally painful. I have gallstones and the pain isn't too bad. Other people have pain so severe they pass out.

Thank goodness, I was beginning to think I was abnormal having had gallstones for many years and while horrible I certainly wasn't rolling around the floor. A stone stuck in the bile duct is very painful, but still manageable.

My gallbladder is out now and with it went numerous stomach issues I hadn't realized were connected.

junebirthdaygirl · Yesterday 19:03

The one thing that set off my gall bladder pain was coffee. Try to keep a diary to protect yourself from eating things that set it off until your surgery comes.

AverageWhiteShark · Yesterday 19:09

Weeelokthen · Yesterday 16:44

Sorry to tell you op. There is a big problem with morphine seekers presenting at A&E. Anyone who comes in saying "only morphine" helps my pain, is a red flag to them.
Sorry you are suffering though, it is an awful pain.
You can get your gall bladder removed privately if you have a spare 9k though

I had to do that, it was £6500 at the time, I was lucky I could afford it (just!). The first time my gall bladder blew up I also got pancreatitis and sepsis. I was told by my local hospital that I wouldn't even be put on the waiting list until it had happened "2 or 3 more times". I was terrified, knowing that the fatality rate for sepsis is 10-20%.

JLou08 · Yesterday 19:13

Trumpisacunt · Yesterday 18:57

The Op has obviously had a proper diagnosis which should be on her hospital medical records so it should be pretty obviously she wasnt an addict but a patient diagnosed with a very painful medical condition

Addiction to pain killers usually starts when someone has a painful medical condition. OP isn't immune from addiction due to her diagnosis, she is more vulnerable to it.

Iloveeverycat · Yesterday 19:14

I was prescribed high strength cocodamol and that worked for me.

Horses7 · Yesterday 19:18

I would move heaven and earth to go private if you can - remortgage, max credit card etc I’d do anything not to be in absolute agony (as you say for years!!). Very sorry for you if you have to wait for NHS operation.

Crispynoodle · Yesterday 19:20

That’s pretty normal especially if it’s paracetamol via IV it really works well

BitOutOfPractice · Yesterday 19:26

oviraptor21 · Yesterday 17:27

Wow! There speaks someone who has never experienced this level of pain.
I called 111 and they called an ambulance out for me so yes, you do go to A&E for this level of pain.

You have absolutely no idea what level of pain anyone has experienced.

I’ve had gallstones. It’s really fucking painful. I was only prescribed cocodamol which gave me horrendous cobstipation. I waited over a year for surgery. I can’t imagine being given morphine every time I had an attack. I wouldn’t have wanted it.

Crudd99 · Yesterday 19:29

Blame the addicts who go into a&e to get morphine. I had a similar. They kept trying to send me home as i was on my period and the male triage nurses decided i was pretending and after morphine. I was in agony. They kept saying I'm only giving you paracetamol. They didnt even feel my stomach. I stayed because i was scared and the pain was horrendous. After 7 hours of rolling round which they said i was acting i finally got seen by a dr who felt my stomach and sent me for a scan.I had a twisted fallopian tube because my ovary was 28cm and growing. I was booked in for surgery the next day.If I'd of gone home the tube could of ruptured. It was dead as the twisting had cut off the blood supply. The ovary was solid not fluid filled. Women in pain aren't taken seriously.

CliptyClop · Yesterday 19:31

Dollysfriend · Yesterday 16:17

There are massive waiting lists due to WLI Gallbladder removal is up 27%.

I've had mine out and I waited a year.
Naproxen is stronger in painkiller.

This has blown my mind

Lsquiggles · Yesterday 19:32

I can sympathise OP gallstones are incredibly painful, I had my first attack before COVID and had to wait over 2 years for surgery in agonising pain at least once a week, if I could've got a loan to go private I would've!

Itsbeenalongtimeincoming · Yesterday 19:32

Wonderingmummy · Yesterday 16:23

They give you morphine too! Well they did for me

No they don’t unkess you really need it and most women don’t. Even after c section - paracetamol only (wow was I angry when I found out I could have had something stronger!).

Velumental · Yesterday 19:34

Wonderingmummy · Yesterday 16:17

I have, they’ve given me codrydomol but the only thing that helps is morphine. But I’ve also been told be careful as codrydomol can make it worse.

I am just a bit traumatised by what happened, I think.

The pain is awful, the problem is during an acute attack codeine can increase the risk for pancreatitis.

My worst flare up they gave me cocodamol and buscopan and omelrqzole which really helped and later they gave me prochlorperazine because I vomited constantly with attacks. I first suffered attacks in my 20s. Noone diagnosed me until I was 42 and I just had it removed 2 months ago. I'm so glad it's done, I can't describe the difference it makes not waking up vomitting regularly

Velumental · Yesterday 19:36

Itsbeenalongtimeincoming · Yesterday 19:32

No they don’t unkess you really need it and most women don’t. Even after c section - paracetamol only (wow was I angry when I found out I could have had something stronger!).

Same after my c section, after my gallbladder they were diligent with paint elief, cocodamol QND liquid morphine. If you're going to be in hospital you get better pain relief if it's for an organ men have too. Totally different lrotocols

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