Any radiologists or neuros? Extremely worried

[SallyJupiter]

Hi everyone,

Posting in AIBU for traffic.

Are there any radiologists or neuro folks here who would be happy to answer some questions and clarify some points for me on a recent MRI my husband had please? I'm absolutely spiralling as they found something in his brain. I have his permission to post about this btw.

Many thanks in advance.

I'm not sure whether to be reassured or more concerned by that.

For what it's worth, we've used this scan company for a different issue a few years ago and found them to be really good. I do hope they are wrong about it being a glioma though. I am a bit peeved that they only did t2 weighted imagery, and only from the coronal aspect. I feel like we'd have a bit more info maybe if they'd done a more in depth scan.

I know all of my research and reassurance seeking is futile. It makes me feel like I'm not completely useless though.

My mother's is a meningioma, in a place where it is inoperable. But has never grown further and our belief is she will die with it, not of it.

sending you good wishes and hoping you get good answers soon xxx

Where is your mothers? My husbands looks to be in the suprachiasmatic space and is putting a bit of pressure on the right optic nerve, but he has zero symptoms. He had his eyes tested not long before they found it too so no deficits. It's really odd.

Edited to add that he's only 44.

So sorry you are going through this, I don't have any helpful advice but I am thinking of you. Xxx

Thank you so much❤️

How are you doing @SallyJupiter?

Up and down tbh. I have days where I feel really positive and hopeful and days where I really question what this life is all about. My husband has finally been given a consultation appointment for tomorrow and we are both in bits but trying to keep things light for our children. My husband is the most depressed I have ever seen him and it's breaking my heart.

Thank you so much for checking in on me.

Good luck for tomorrow - it must be hell waiting 😣

How did it go @SallyJupiter?

As well as it could have really. The consultant said they aren't sure what it is but agrees that it looks benign. He wants to do another scan in 4 weeks time to see if it's grown at all and then if it has, they'd do a biopsy to see what it is. If it's the same size then it will just be monitored at regular intervals. It's in a very tricky place in the brain. The consultant said tumours in this area are rare. That on top of the fact that brain tumours in general already being very rare is just shit really.

My husband still has no symptoms so that's good, although I cannot stop the fear of that changing. I had a nightmare about it actually a few nights ago.

I felt really angry about it today. I can't believe this is happening. I'm outwardly being strong but I actually just want to scream and hit things.

What a difficult time for you. Sending love ❤️

My mum had a giant meningioma diagonosed by MRI. The GP told her she was depressed for two years. Don’t get me started. I do have a whole thread on it on here….

she finally went for the MRI and was met by in all neuro surgeon 45 mins later. She had it removed 5 days later it was in her left frontal lobe and the side of my fist. She has a made a full recovery.

sending you lots of love

So they knew it was a meningioma just from the MRI? They're not sure what my husband's is but don't want to do a biopsy unless it grows, so he'll be having a rescan in 4-6 weeks time. I have been having nightmares about the results in advance.

His tumour is in the suprachiasmatic space, above where the optic nerves cross and near the hypothalamus and 3rd ventricle. A tricky spot and a very rare place to get a tumour. We're both only young (I'm 36 and he's 44) and we feel a bit robbed. It's kind of dumb though because he has zero symptoms so you'd think we'd be reassured by that but I'm constantly looking over my shoulder expecting it to change. The lack of symptoms points to it being benign too but I think it's the fact that it's there at all that sucks.

Does your mother have any deficits at all after having her tumour removed? I'm so happy and grateful to hear a positive story so thank you for commenting.