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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask whether anyone has successfully overturned a DLA decision handed at appeal? I am expected to find a mistake in the law?

75 replies

Namechangesenmum · 01/06/2026 20:28

Would appreciate any advice here as I appealed and the original decision was not overturned

I underatsnd that I cant appeal based on disagreeing, but they've got it wrong 😢

OP posts:
Pickledonion1999 · 02/06/2026 20:57

ThornsInACheapBouquet · 02/06/2026 20:11

Yet you are told by professionals to use the worst day

Which professionals ? Benefit advisors would advise that it's fine to explain a worst day but absolutely in the context of how many days are worst days. A person could have a worst day once a year but these benefits are based on how someone is on the majority of days, well it is for PIP, not sure if it's the same for DLA.

MesonBoson · 02/06/2026 21:02

Pickledonion1999 · 02/06/2026 20:57

Which professionals ? Benefit advisors would advise that it's fine to explain a worst day but absolutely in the context of how many days are worst days. A person could have a worst day once a year but these benefits are based on how someone is on the majority of days, well it is for PIP, not sure if it's the same for DLA.

PIP has a very clear cut most days rule called reg 7

For DLA the rule is less explicit, but it's still an assessment of what difficulties you 'normally' have.

And normally = mostly.

PistolPacker · 02/06/2026 21:03

My son was awarded HRM under SMI, but the criteria is so tough.
You’re probably best reapplying rather than try to find an error.

MesonBoson · 02/06/2026 21:06

Namechangesenmum · 02/06/2026 20:54

I do know what the criteria is and wrote a fantastic appeal

But I let myself down on the day, getting nervous and rambling and describing ds as docile and sweet

Foolishly

Please stop, I am here for support in trying to take my appeal to the judge.

You don't have grounds for a further appeal.

Anyone who said you do would not be supporting you, they would be leading you on.

JaceLancs · 02/06/2026 21:25

@MesonBoson - I agree any benefits solicitor would be unlikely to offer help based on the OP posts
The interpretation of the law is very strict and specific - I do know but can’t say my position

ThornsInACheapBouquet · 02/06/2026 21:56

Namechangesenmum · 02/06/2026 20:54

I do know what the criteria is and wrote a fantastic appeal

But I let myself down on the day, getting nervous and rambling and describing ds as docile and sweet

Foolishly

Please stop, I am here for support in trying to take my appeal to the judge.

that may be your issue. Describing him as docile and sweet doesn’t portray severe behavioral issues. The thing that changed from my son getting LRM to HRM was that he needed restraining to keep himself and others safe due to behavioral issues. He can be violent, biting scratching kicking and lashing out. He was also destructive with property, throwing things etc tho not so much now.

MesonBoson · 02/06/2026 22:09

This reply has been deleted

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emuloc · 02/06/2026 22:12

This reply has been deleted

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That's enough now. Stop.

HaudYerWheeshtYaWeeBellend · 02/06/2026 22:17

I’ve reported, a mother is asking for help with an already vulnerable and challenging circumstance, then you get some numpty kicking her even further.

id ask for others not to engage.

MesonBoson · 03/06/2026 07:09

HaudYerWheeshtYaWeeBellend · 02/06/2026 22:17

I’ve reported, a mother is asking for help with an already vulnerable and challenging circumstance, then you get some numpty kicking her even further.

id ask for others not to engage.

Read back.

I have given her a complete explanation of (and links to) the rules along with links to government guidance.

I've made it clear why her child dosen't qualify.

That's help.

You might not like the tone, that's mutual.

MesonBoson · 03/06/2026 07:12

Actually, I haven't given a complete explanation.

The list above should also say:

6 - The behavioural problems are so severe that the child needs watching whenever they are awake

Support12 · 03/06/2026 07:32

Higher rate is about night time care generally - does he require frequent care during the night?
My nephew is autistic and requires constant supervision in the day, but because he often sleeps well once he actually goes to sleep (wakes around 5am) it doesnt meet criteria for higher rate care.

x2boys · 03/06/2026 07:39

ThornsInACheapBouquet · 02/06/2026 20:10

Then explain to me why the decision maker called me and changed his LRM due to SM I then? He has had MRIs that would have been sent to them as evidence from his pead. I never claimed he did. I just described how he was. Yet he got lifetime DLA on SMI and now gets 10 year and we will call just to catch up PIP award.
I have never used SMI on either of his applications.

Are you dure he got under SMI ?
Some children with extremely challenging behavior csn get under VUW
There can be an overap my quslifiedd under SMI but im pretty sure he would also qualify underVUW.

x2boys · 03/06/2026 07:46

ThornsInACheapBouquet · 02/06/2026 20:18

My son is autism presenting due to a genetic issue on the X chromosome but I’d technically not autistic. He has ADHD too. His MRI came back clear so I assumed his brain had development was normal. No one ever said his brain hadn’t developed normally.

It will be the chromsome disorder
My sin jas a chromosome deletion
Hes also severley autstic
When he was awarded HRM under SMI they used the chromosome disordsr for the arrested incomplete , development of the brain criteria.

ThornsInACheapBouquet · 03/06/2026 08:42

x2boys · 03/06/2026 07:39

Are you dure he got under SMI ?
Some children with extremely challenging behavior csn get under VUW
There can be an overap my quslifiedd under SMI but im pretty sure he would also qualify underVUW.

He was given his LRM award. I recieved it through the post. Thst night a descision maker phoned me and said he was looking at it again due to SMI. He asked me about him needing to be restrained and he changed the award to HRM due to it.

the chromosomal issue wasn’t found until 7 years later when we took part in the 1000 geonomes study

Trallala · 03/06/2026 09:03

The best thing that helped me was having professional evidence from social workers/ doctors/ specialist nurses (including health visitors) or school that specifically stated that the person was not capable of performing the task/ action described in that category.

In my experience the panel will take that much more seriously than any narrative - however well written - provided by the applicant.

It's not a particularly adequate system, because the professional may well have documented what you've told them, but it makes all the difference. The judge stated during the appeal "you have clear evidence that X meets the criteria for this category", even though I'd described that exact situation in both the application and appeal.

You may need to harass professionals to provide this evidence. I also did a subject access request for all medical/ professional records that clearly documented all observations/ appointments, and I would recommend that any DLA/ PIP applicant did the same for supporting evidence for applications. I have had had two initial refusals overturned at first stage appeal and then tribunal.

MUMofToox · 04/06/2026 16:16

Waiting for a hearing for DLA submitted appeal Nov 2025. I'm in South East. Anyone in same area and waiting or had one ? Of so how long did you wait for hearing.

Namechangesenmum · 04/06/2026 16:19

Hi all, please bear with me, i am trying to get my head sorted

I will try and appeal and expect it to be rejected. No idea how i'm gonna do it

And will also reapply through the dla

For clarity we have

Hr care
Lr mobility

Until 2030

So I will apply again and ask that they only look at the mobility element, and hope I dont lose my award?! At the same time as appealing to the judge

I will message the poster who kindly offered help, apologies for being so slow xx

OP posts:
MesonBoson · 04/06/2026 17:01

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

TheEighthDwarf · 04/06/2026 17:16

Namechangesenmum · 02/06/2026 20:54

I do know what the criteria is and wrote a fantastic appeal

But I let myself down on the day, getting nervous and rambling and describing ds as docile and sweet

Foolishly

Please stop, I am here for support in trying to take my appeal to the judge.

You have a major problem. 1st tier tribunal decisions can only be set aside if the tribunal made an error of law and if you described your child as sweet and docile, the tribunal was correct to conclude that they did not meet the SMI criteria.

scoopofmintchocchipicecream · 04/06/2026 19:21

Be aware if you request a change of circumstances, the whole award can be looked at.

If DS is docile, I don’t see how the criteria for HRM under the SMI criteria are met.

PistolPacker · 04/06/2026 20:40

They won’t just look at the mobility side, they will look at the whole award, and the HRC could be lowered.
The severe behaviour has to be severe and it has to be shown to be in different settings. My son receives HRM, and while there are times he will sit and be calm, a lot of the times he is violent and will headbutt, bite, scratch, slap… He is like this in school too and on his school bus (where he has to sit alone in case he hurts anyone else).

JaceLancs · 05/06/2026 14:09

40 week wait is about the average at present

Jhunte · 13/06/2026 12:53

Hi all I applied for tribunal in April 2025 and have my telephone appeal on Monday I'm in London. Applying for HRM under both SMI and VUW. I have letters from OT and other professionals stating my son is a danger to himself and others and requires restraint at nursery, he has autism GDD, PICA and severe sensory issues which are worse when outside any advice for Mondays appeal please?

SurreySenMum26 · 05/08/2026 11:35

How did you get on OP? I'm about to appeal for my ds. He has both higher rates since able to claim. Nothing has changed but he has gone to LRM. He has the mental age of 6 at 14 and a genetic condition. Meets all of the smi criteria but here we are.

It's made me reconsider supported living at 18 honestly as it feels like things are being cut and if I wait until he is more ready to move out the support will have gone. It's hard enough having a severely disabled child without reading that he is actually fine. He is 5 foot 9 toddler!

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