I have ME/CFS; I am bone crushingly exhausted all of the time. Permanently.
I’m not depressed. I still look forward to things and I do have good days now and then, but I’m so exhausted I just don’t see the point anymore (I’m not suicidal).
Life is passing me by. I’m bored out of my mind 15 years in to this. I have DC with disabilities and I’m having to fight to get them support with the little energy I have.
The thought of living like this for another 15 years makes me sick. It crosses my mind on a daily basis that I’m just waiting for my time so I can sleep undisturbed forever!
Imagine waking up every morning feeling like you’ve never been to sleep, but you also have the flu, every minute of every day. I usually just get on with things but I’m feeling it today after a friend told me about her promotion. I’m really pleased for her, but I’m also envious; whilst I just lie here looking out of the same window I’ve spent the last 15 years looking out of.
No hobbies as my energy is spent on basic functioning and supporting children between long lengths of time in bed. I feel like a lazy useless lump.
AIBU to think that sometimes we have to accept the uncomfortable truth that existence is pointless? ME/CFS is a living hell.