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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

What would you do if you got a copy of someone else’s confidential GP records

230 replies

Twinkletoesandspaghettios · 09/05/2026 23:09

No poll just wondering exactly what you would do?

The summary care report was in with mine and had name, address, DOB, full medical history including details on social services and CAMHS involvement

OP posts:
Snorerephron · 10/05/2026 08:31

weirdshape · 10/05/2026 08:22

I also worked in NHS at one point and yes whilst this is true, the fact is, ICO dont do anything, are hugely understaffed and overburdened and thats the point.

We all get told how wonderful and great it is that finally, the ICO is going to uphold everyone's privacy and confidentiality and that they WILL come down hard on people for data breaches but that fact is, they dont and they cant. Its all utter bullshit.

I posted up thread- my father's medical notes for 6 entire months up to date he died were apparently "lost" in continuing health care's "archive room". They admitted they could be anywhere and anyone could have seen them. This was also highly suspicious because I was taking legal action about his access to continuing healthcare funding and mysteriously his notes just disappeared.

The last 6 months of his life were appalling - his medical notes had distressing and embarrassing details of how his dementia and Parkinson's was affecting him.

I reported all of this to the ICO- of course they told me they'd take it incredibly seriously and I was so right to report it to them. Do you know what they did?- they gave me a reference number and I never heard from them ever again. Even when I rung up for updates they kept saying they were dealing with it. Nothing happened and I know that because I submitted a SAR request to the trust where it happened.

Of course we've all been warned that there will be serious consequences about data breaches, but in reality?- the ICO is about as useful and effective as a chocolate teapot.

Exactly
Even the one genuinely awful breach I reported, where someone's life was actually profoundly harmed, the ICO didn't do anything (they did praise how swiftly and robustly I took action on learning of the breach )

I think people have a lot of misconceptions about what the ICO can and will do

The best thing op can do is leave the paperwork unread and return it.

We all have a duty to take data protection seriously and it's op turn to show that now

PeopleWatching17 · 10/05/2026 08:33

Twinkletoesandspaghettios · 09/05/2026 23:15

If something of this level of confidential information was given out from your team, would you report it to the Information Commissioner's office?

Yes, and the newspapers, the PM, the pope and the local flaming torch and pitchfork brigade.
It’s a mistake, a serious mistake. It is not the end of the world, though, and does not need to be blown out of proportion.

Tryagain26 · 10/05/2026 08:33

Twinkletoesandspaghettios · 09/05/2026 23:09

No poll just wondering exactly what you would do?

The summary care report was in with mine and had name, address, DOB, full medical history including details on social services and CAMHS involvement

I'd take it back to the surgery.and forget about it. Accidents happen

Alwayswonderedwhy · 10/05/2026 08:34

I got a hospital letter containing a letter for another patient, it contained a lot of confidential information. I contracted her GP practice so they could let her know.

Su1rlie · 10/05/2026 08:34

Snorerephron · 10/05/2026 08:31

Exactly
Even the one genuinely awful breach I reported, where someone's life was actually profoundly harmed, the ICO didn't do anything (they did praise how swiftly and robustly I took action on learning of the breach )

I think people have a lot of misconceptions about what the ICO can and will do

The best thing op can do is leave the paperwork unread and return it.

We all have a duty to take data protection seriously and it's op turn to show that now

That isn’t treating it seriously. They need to create a picture and can’t if incidents aren’t reported.

Su1rlie · 10/05/2026 08:35

PeopleWatching17 · 10/05/2026 08:33

Yes, and the newspapers, the PM, the pope and the local flaming torch and pitchfork brigade.
It’s a mistake, a serious mistake. It is not the end of the world, though, and does not need to be blown out of proportion.

It could be the end of the world for some hence it being classed as a serious breach.

weirdshape · 10/05/2026 08:37

Snorerephron · 10/05/2026 08:31

Exactly
Even the one genuinely awful breach I reported, where someone's life was actually profoundly harmed, the ICO didn't do anything (they did praise how swiftly and robustly I took action on learning of the breach )

I think people have a lot of misconceptions about what the ICO can and will do

The best thing op can do is leave the paperwork unread and return it.

We all have a duty to take data protection seriously and it's op turn to show that now

Yes, and sadly the ICO have created this misconception themselves. I remember when they launched the GDPR rules in 2018 it was very much posed as You MUST obey or there will be serious consequences etc The ICO also came out swinging with promises and threats of action they'd take.

They set up this misconception that they'd be fighting for everyone's data rights and rather like the wizard of Oz, there's actually nothing behind the curtain apart from someone at a desk with a biro. Thats it.

LIZS · 10/05/2026 08:37

Twinkletoesandspaghettios · 09/05/2026 23:15

If something of this level of confidential information was given out from your team, would you report it to the Information Commissioner's office?

Contact the Data Officer at the organisation(hospital?) it came from. There will be a process for dealing with such incidents including notifying the other person and self reporting to ICO. NHS contract out their correspondence in many cases and it won’t be the first or last time.

Su1rlie · 10/05/2026 08:38

Snorerephron · 10/05/2026 08:28

It would be exactly the same if a school made a breach of this nature. If all the paperwork was returned then the ICO are going to do precisely nothing

Talking about MN er response. There would be pitch forks waving and zero understanding if a school did similar . The NHS seem to be allowed to do what they like by some. It’s not ok.

At the end of the day it’s not a choice if a school
or GP practice do it, it has to be reported.

Su1rlie · 10/05/2026 08:39

weirdshape · 10/05/2026 08:37

Yes, and sadly the ICO have created this misconception themselves. I remember when they launched the GDPR rules in 2018 it was very much posed as You MUST obey or there will be serious consequences etc The ICO also came out swinging with promises and threats of action they'd take.

They set up this misconception that they'd be fighting for everyone's data rights and rather like the wizard of Oz, there's actually nothing behind the curtain apart from someone at a desk with a biro. Thats it.

But those in the NHS have to report data breaches regardless and have signed to say they have undertaken training to do just that.

weirdshape · 10/05/2026 08:39

Su1rlie · 10/05/2026 08:35

It could be the end of the world for some hence it being classed as a serious breach.

It was the end of the world for me and my father's breach and ICO still did nothing at all. They never even got back to me.

weirdshape · 10/05/2026 08:40

Su1rlie · 10/05/2026 08:39

But those in the NHS have to report data breaches regardless and have signed to say they have undertaken training to do just that.

I am not saying dont report, I am saying dont expect that anything will be done.

I can promise you it wont. Report all you want but absolutely nothing will happen as a result. Its like reporting into a void

ClockClocCloClC · 10/05/2026 08:40

Stop reading.

Contact whoever sent me them to ask what they wanted me to do.

Presumably either return them to sender / or shred them, depending on their instructions.

If they didn’t give me instructions, and assuming they were copy documents and not important originals, I’d shred them.

Tryagain26 · 10/05/2026 08:41

WoollyandSarah · 09/05/2026 23:45

You need to ask yourself, what would I want done if it was my data? It's gone to someone in the same community, which adds a layer of risk. I'd want it reported to the ICO, if it was my data.

I don't think I'd want a stressed receptionist to lose their job over it. Or a GPs practice to be fined when they are already under a lot of pressure.

Cooshawn · 10/05/2026 08:42

I had someone else's results letter attached to my file once, which I could see in my account online.

I rang the GP surgery to let them know straight away. Firstly, because I shouldn't have been able to see someone else's private information. Secondly, because my results letter wasn't on my file so presumably someone else was looking at it in their account.

I also told the individual whose letter I'd seen so they could raise with the surgery.

This was a fair few years ago, and it was the GP surgery uploading letters to the online thing. I know it's done directly by hospitals etc now so less straightforward.

Totaldramallama · 10/05/2026 08:43

happybug1234 · 10/05/2026 07:55

Honestly… Have a good read/nose and then throw in the bin.

Yes same, wouldn't do anything else

ToffeePennie · 10/05/2026 08:43

I informed them that I had someone else’s notes, they asked if I had read them - well duh! How else do u know they’re not mine? I returned them the next day, but kept proof of my email and phone call to them about it. Sure enough, I was being sued a few days later for a data breach. Sent my evidence to them and had no more about it.
Considered counter sueing but figured it was just someone who made a mistake.
Spent the next 6 years (and beyond) untangling it - this other woman has a similar NHS number to my own so 1/2 of “my records” are actually hers. It’s a clerical error and everytime I have to go the gp I have to start with “this is not x nhs number, so please ignore any references to y you see in the notes as they are not mine” still trying to untangle them now…

ScaredButUnavoidable · 10/05/2026 08:45

I once received an outpatient clinic list of about 20 patients under my local hospitals neurologist department, all their personal details (address, contact numbers, DOB), the dates and times of their appointment, their diagnosis, their previous treatments, upcoming procedures and their medications.

I called the Neurology team and explained what had happened and they were mortified.

I sent it all back via recorded delivery.

I know the team well as I’ve been under them for over 15 years myself, and I also work for the same NHS Trust so I know how much of a huge deal it is, and I trusted they would handle the error appropriately regarding breach of confidentiality procedures etc.

I didn’t make a huge drama of it myself though. I knew the person who had made the error would be in enough trouble and be feeling absolutely terrible about what had happened without me adding to it.

Cooshawn · 10/05/2026 08:46

I just wanted to add that I didn't report the data breach to anybody else, just the GP surgery. Nor did the chap whose letter I had. The surgery manager was mortified and very apologetic. We didn't want people to get in trouble, just to highlight the issue, have it rectified and them sort their procedures to prevent a reoccurrence.

Neither of our results letters were for anything deeply serious or embarrassing. If the circumstances were different then we may have addressed it differently.

aelfgifu2 · 10/05/2026 08:46

Twinkletoesandspaghettios · 09/05/2026 23:15

If something of this level of confidential information was given out from your team, would you report it to the Information Commissioner's office?

Yes!

Su1rlie · 10/05/2026 08:47

Tryagain26 · 10/05/2026 08:41

I don't think I'd want a stressed receptionist to lose their job over it. Or a GPs practice to be fined when they are already under a lot of pressure.

I’d want it treated seriously and for it to be reported. You don’t do training just to ignore it. Not all GP records are the same. Some people would be devastated hence it being classed as a serious breach.

weirdshape · 10/05/2026 08:48

Su1rlie · 10/05/2026 08:47

I’d want it treated seriously and for it to be reported. You don’t do training just to ignore it. Not all GP records are the same. Some people would be devastated hence it being classed as a serious breach.

Did you see my posts above about how the ICO ignored my father's devastating serious breach?

Cooshawn · 10/05/2026 08:49

I also frequently found patient lists which detailed patients names, NHS numbers, date of birth and a quite detailed overview of their medical issues, DOLS etc in my dads things when he was in hospital for a while because staff would just leave them laying about and he'd pick them up. He has dementia so had no idea what they actually were. I raised it multiple times but nothing ever changed. Literally the day he was discharged there was a bundle of them on his table with his newspapers.

Su1rlie · 10/05/2026 08:49

weirdshape · 10/05/2026 08:48

Did you see my posts above about how the ICO ignored my father's devastating serious breach?

Just because they’d didn’t get back to you doesn’t mean it wasn’t dealt with. Even if just a note is kept to see if there is a pattern it needs to be reported. It’s not a choice anyway.

herebehippos · 10/05/2026 08:50

This happened to me 16 years ago. I was reviewing my paper records before sharing them with my life insurance.
Turned up at Dr's and started reading a random page which was from when I was a teen. It was discussing an abortion and sexual assault that never happened to me.
I told the dr this wasn't my records and he insisted it was- the paper had my initial and surname and address at the time of the record. I realised it must be my sister who shared the same details and eventually found a reference to the patients dob which was hers. The Dr was very nonchalant about the whole thing and said they would check the records and sort it out.
I let my sister know, but not what I had discovered about her, just that our records from the time had been mixed together.
I still worry there is some kind of mistake or that this is why her life altering diagnosis was missed for so long.