AIBU to be worried about my 2 year old.

[Anotherworriedmummy3]

I’ll try and keep this short.
My 2 and a half year old girl has always been quite small, nobody can ever believe her age. She has definitely grown but she is very baby faced with short ‘baby’ curls.
She is talking in sentences, active and happy.
She is diagnosed with 3 allergies and has an allergy action plan.
We saw her pead last week, he was happy with her but I realised she’s gone from above 25th to below 9th centile for height.
For reference she’s 84cm.
it just clicked tonight after a conversation with a friend… I’m wondering if she is celiac?
she’s never had a solid poo, often has full body rashes and sometimes complains of tummy ache.
Ive had a feeling for ages there was something else.
We were literally discharged last week from her consultant, i don’t want to look like a hysterical mum.
should I speak to the gp? I don’t want to waste anyone’s time.
thanks

How about just going gf for three months and see if it suits her?
No need to panic; just gradually switch up her foods until she’s gf. It won’t do her any harm and it might do her some good.

The unfortunate issue is, one of her allergens is rice. A lot of gluten free products are rice flour etc :(

Can you keep a food/poo/tummy diary (if you are not already) for 2 weeks then do the same but cut all gluten out?
If you see an improvement you can make a normal appointment and present your findings.
Good luck OP as a child (in the 90/00s) I drove my mum insane with random hives. It was a certain E numbers that triggered it.

If you are planning on trying to get her tested for celiac then don't go GF just yet.

Surely if she's been diagnosed with allergies she is under someone? Even if it's just the GP? I'd start with them.

(My DD was diagnosed with asthma but discharged from asthma clinic at the hospital. She's still under the GP for her repeat prescriptions / annual asthma review etc. They can't just diagnose kids with allergies, give them an allergy plan and not have someone oversee this so as I say I'd start with your GP)

We were given her allergy action plan last week and discharged, he said she can come back when she’s 5/6 if any issues later on. I just don’t want to seem like I’m making an issue immediately after being discharged. It just literally dawned on me tonight

Presumably if she’s been tested for allergies, she’s been seen by a specialist? Can you get in touch with that person?

We were discharged last week: however I am going to speak to the secretary tomorrow and just ask, what’s the worst that could happen?!

Do not go gf until a celiac test !
Rice allergy must be very unusual ?

Given the medical history and concerns about growth, it would really be a bad idea to make big diet changes without medical supervision.

Plus you need to be eating gluten to be tested.

Thanks, i definitely wouldn’t change anything without advice first. I really couldn’t cut anything else out of her diet. I’m actually mostly worried about what the heck she would eat if she was because her diet it already restricted!

https://www.yorktest.com

id order one of these test kits x

I was told that if severe CMPA (my baby had CMPA) doesn't resolve at all by age 4, and especially if there are other allergies, it's often actually coeliac, and the paedetrician said they would test for it around that age.

We live in the UK now but lived in the US until my DS was 12 months. This was said by the private paedetrician we saw there.

So I would definitely investigate it.

we saw a private pead before our NHS one. I think I may take her back to him

Just to repeat what others have said, if you suspect coeliac get an action plan from the dr asap. We went through the testing with our daughter around that age and were told to keep feeding gluten in the meantime. Presume it triggers whatever the test needs to pick up. Good luck and hope your daughter feels better soon.

Don’t go GF yet as others have said but just to reassure you - don’t worry too much about what she will eat if gluten free - it will be a bit more difficult with a rice allergy but I’m coeliac and there’s loads out there for GF people these days. Most things have a GF alternative and they use all sorts of flours not just rice. Loads of things are also naturally gluten free like meat, potatoes, vegetables, fruit and cheese!

Definitely worth testing for because it can get much worse if untreated and the solution, although annoying, makes a world of difference!

Apart from my allergy to gluten I’m allergic to nightshades, so no potatoes, tomatoes etc. most gf products have potato flour as a binder.
I don’t buy any gf products; I eat meat, vegetables, fish and fruit. Grains include millet, buckwheat (rhubarb family), teff and sorghum. I use cassava (tapioca) as a binder when baking.
Most gf products are highly processed and their nutrition value is probably minimal, there is no need for them. Batch cook and freeze in little pots so you have stuff to hand on busy days.

You can ask the GP to test for celiac. It’s a blood test.

Was coeliac not investigated as part of her allergy testing?

no, she never actually had formal allergy testing, just anaphylaxis episodes and they were diagnosed off that

Needs proper allergy testing then

This is frankly dangerous advice. These tests are totally inaccurate and not scientifically validated at all. Complete waste of money.

OP, if she has had anaphylaxis episodes then she absolutely needs to see an allergist for proper testing. We travelled to from NI to London to see Prof Adam Fox - he was fantastic with DD and worth every penny. Testing and diagnosis all on same day, plus he was very patient with my rather large list of questions and answered them all fully + honestly.