Child's baby teeth keep coming out with root

[Needmotivationnnnn]

Picture pending

DS9 has had multiple baby teeth come out with large roots. I've never seen it before in my life and Google is very unhelpful 😅

Dentist isn't concerned at all and I don't know why? Surely this isn't normal? Some of his adult teeth have needed composite bonding on them as they've come through yellow, despite his teeth being very healthy. Dentist still doesn't seem concerned?

He's recently been diagnosed with dyspraxia and hypermobile, I've got a GP appointment booked for him too as I think he has elhos danlos as he has many of the symptons ( as do I tbh )

AIBU to think that his teeth are somehow linked to everything he has going on?

Not necessarily as EDS is a connective tissue issue and because DS's teeth are strong and healthy, on the surface it doesn't look like there's a problem in general ( despite some coming through yellow and slightly soft 🤦‍♀️ )

He's never had an xray or any extractions so no one actually knows what's going on under the surface

I have read that antibiotics during pregnancy could cause it but I don't recall being on any antibiotics when pregnant with him. I did have a very stressful pregnancy with him though and had to be induced at 37 weeks due to IUGR, he weighed 4lb 9oz when he was born

It's some of DS's adult teeth that came through yellow and slightly soft 😭 ( their the teeth he has composite bonding on )

I am hoping the GP can help with a referal as DS's dentist hasn't really been helpful tbh

The ligaments part would make sense, DS gets frequent leg and joint pain,

Funnily enough me and DD are AUHD and I believe DS is too ( he's far more hyper than me and DD 😅 )

So, I did at one point think this was it as DS had to have repeat blood tests for a few months as he had high calcium levels for a while, but then the calcium levels just went down and the GP was happy with that 🤦‍♀️

I'm on a group on Facebook for HPP and a lot of children's teeth on their have decayed and needed removing which makes me unsure if that's what it is with DS

I just feel so sad for him, i feel very strongly that there's an underlying issue of somthing

He's 9 - how many baby teeth has he lost? Which of the adult teeth are coming through? Losing a primary molar like that aged 9 is on the young side. Has he had a growth spurt recently?

The enamel issue is separate - what I would be investigating firstly is premature exfoliation of primary teeth - which is what your describing - although it can turn out to just be normal development for some children. This is usually related to periodontal conditions, or disorders that affect collagen (such as EDS).

I would ask the dentist to take an OPT radiograph of his teeth (the x-ray that goes all the way round the mouth) - the dentist really should already be taking radiographs of his teeth from aged 5 anyway (although most regular dentists don't!) so I would push for that - and to check that his 'dental age' fits his actual age, and his teeth are erupting in the correct order.

Happy for you to DM me a picture of his teeth (no identifying features please!) if needed x

Yes, HPP can cause similar but is is really really rare. Usually has strong correlation with children with frequent bone fractures, bowed legs, short stature etc.

My dc's second teeth came through a bit yellow. I think it's genetic. My first teeth were also rubbish but the second teeth were fine. DH's weren't great and he had cosmetic work in his mid/late 20s.

Your ds's teeth may fall short of the NHS bar which is why the dentist is reluctant to refer.

Yes, there are multiple types of EDS, all but one of them are considered rare and can be tested for genetically. The one type that hasn't yet got a genetic test is Hypermobile EDS, and it is also the most common (but still vastly under diagnosed). It can be quite difficult to get properly assessed for EDS as knowledge is still poor

I recommend becoming a member of the UK EDS charity (it's free), and once you're a member they can send you a link to your local EDS support group on Facebook. These groups are great for information as well as support, and it may be that someone will be able to recommend a knowledgeable dentist or doctor in your area

The charity also has a GP Toolkit on their website, which can be useful for your GP as EDS is now meant to be diagnosed by them rather than Rheumatologists. You could also ask them for a Genetics referral to test for the Periodontal type just in case

Lastly, the criteria for a Hypermobile EDS diagnosis was tightened in 2017 in order to narrow down the genes responsible for it. It was then realised that it was tightened too far, and new guidelines are being released at the end of this year. So if your DS doesn't fit the criteria for diagnosis now, he still may have EDS and get a diagnosis next year, once new guidelines have been put in to practice

https://www.ehlers-danlos.org/

I couldn't find an option to send an image in a private dm, so I'll attach it to this message. He's had composite bonding on his top Central incisors ( near the gum line ) and composite bonding on the whole tooth of the Lateral incisor ( this was the most yellow/ softest )

He's got 8 adult teeth, currently missing 4 teeth and 1 is slowly erupting

I don't know teeth names so I had to Google 😅 ( when I say missing I just mean has lot his baby tooth )

Upper Jaw
Central incisor - Adult L/R
Lateral incisor - Adult L/R ( right tooth most yellow and softest )
Canine - missing right
1st premolar - missing L/R

Lower
Central incisor Adult L/R
Lateral incisor Adult L/R
Canine - R missing L emerging
1st premolar - R missing

No he's not had a growth spurt recently and it has been a while tbh, he's average height for his age though.

It does sound like the soft yellow on his teeth is linked to EDS, I've got a GP appointment for him this week so I'm hoping they can help / do referrals ( I could well be wrong but I'm hoping once he gets diagnosed he could potentially be reffered to a different dentist )

Thank you I will ask the dentist to do a radiograph, I probably will have to push for it too as I had to push for him to put composite filling on the softest tooth

That's interesting about tooth order, I didn't know about that

Oops forgot to include the picture 😅 it should load on this shortly

Stop it I have bowed legs and I'm 5'1 😅 my teeth have always been fine though

Thank you that's all really really helpful,

From what I've read, DS fits the criteria the GP would go by as he can do everything on the Beighton test but with him having teeth issues too I think i do now wonder if it's the periodontal. I will ask the GP to do a genetics referal ( thanks for saying that as I was struggling on how to phrase what I want from the GP 😅 )

Interesting about them changing the guidelines as I can't do everything on the test but I have hypermobile fingers / toes, ridiculously stretchy skin and I scar very easily too. I fell on a piece of gravel in January and it left a purple scar on my knee, I banged it on a table the other day and the scar reopened and started to bleed........ it's only once reading a little about EDS I have realised that my skin isn't normal 😅

@Needmotivationnnnn It's really common for older family members to get diagnosis after a younger family member does, same with Autism and ADHD. Suddenly a lot of things start to make sense!

are you vegetarian? If so this could be a sign of collagen deficiency — increase his type 1 & type 2 intake and see if it improves.

Thanks for reply and images.

Firstly:

• This is important - from your description of the teeth, you suggest he doesn't have his first permanent molars? These are behind the premolars (of which there should be two L/R upper/lower) but they come through around the same time as the permanent anterior teeth. Premolars not until aged 10+.

His upper lateral incisors look microdont (smaller than normal) to me - and I think this has been partially masked by the composite bonding. This is related to HPP and other collagen disorders, as is an increase in enamel defects such as 'soft enamel' that you describe.

Hopefully, its nothing to worry about and it's just his variation on normal development, but he really needs a radiograph in the first instance - and ask the dentist to check his gums in particular.

x

Hi, no he doesn't have any adult molars yet,

So I've checked and he had the composite bonding put on in March 2025, so the upper Lateral incisor has barely grown since then and thinking about it, it always takes his teeth ages to come through.

He's due a check up at the dentist so I'll be able to speak to the dentist soon about it.

Thank you so much you've been really helpful