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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

For wanting an iron transfusion now

67 replies

rainraingoaways · 21/03/2026 13:07

Been with lowish iron levels most of my life due to heavy periods but through vitamins and lots of steak as ferrous sulphate makes me very sick. I’ve managed to keep them up just enough to be ok. After my pregnancy I was given ferrous sulphate as i lost loads of blood and although it made me so nauseous and constipated I carried on with the dosage I was given as I’d lost so much blood I needed it badly. I got so run down after my pregnancy and everyone kept telling me I was just exhausted from my baby. I knew something was up but was dismissed until I insisted on an iron blood test. I also suffered from pnd as I just felt so weak out of breath and exhausted constantly Turns out I was severely anemic and sent straight away for an iron transfusion. After this I never felt better felt so good and energised. Since then my periods are still extremely heavy even with transanamic acid. I’ve been so exhausted as of late I’m getting nine hours of sleep napping when baby is at nursery so out of breath having to sit down after a short walk. I requested another test and low and behold I’m low again not as low as last time but borderline. I’m really scared of getting worse again I burst in to tears on Tuesday as I just had to sit down from walking up the stairs and my baby was screaming at me over wanting to be carried back down stairs. I’ve got a call back regarding my results on Monday and I know they won’t offer me a transfusion until I’m under the limit. They will suggest I take some iron from the pharmacy but it makes me so nausea all day every day and the lower dosage that I’m on just isn’t enough. I’m trying for another baby so waiting for that to happen and then I will be stopping my periods. I have some small savings so have considered paying privately for one but it’s a huge cost.

OP posts:
Nat6999 · 22/03/2026 02:31

I was anaemic through pregnancy & until I had a hysterectomy & took Floradix liquid iron, it tastes disgusting but did the job.

MJEBinAthens · 22/03/2026 04:28

I think your medical professionals need to look deeper into why you are so anaemic. Since I was a teenager I was always anaemic, always being prescribed iron tablets etc.
I have 4 kids and was literally pregnant or breastfeeding for the best part of a decade, whilst working full time. Still anaemic, tired, stressed I was taking iron all the time.

A cousin phoned my mum and told her we should all get checked out with a colonoscopy/gastroscopy due to there being a hereditary type of cancer in the family. I ended up having to have a partial gastrectomy in my 40s to remove a lump in the bottom of my stomach that turned out to be an ectopic pancreas. It had been bleeding, albeit slowly, for God knows how long! I also had both a blood and an iron transfusion after the operation and thought the latter was horrible (despite feeling better afterwards).
Go and get checked out. Stop treating the symptoms and get them to find the actual cause. There’s a reason you are anaemic…
Since my operation, my blood test results are fine. No more anaemia. No more iron!

ThePerfectWeekender · 22/03/2026 04:47

rainraingoaways · 21/03/2026 14:14

Haemaglobin was 114 I have endometriosis numerous surgeries and medication hasn’t worked so trying for baby no2 then onto to something like the pill to pause my periods temporarily. Thank you for your advice.

I have open access to a small unit at my local hospital for iron infusions based on the results of twelve weekly blood tests. My haemaglobin has to drop to between 70 and 80 before I can book in. I cannot take oral iron and have multiple mineral and vitamin deficiencies because I have problems absorbing them.
I live with ferritin in single figures and often my iron stores are in single figures too. The only criteria they go by for an infusion or transfusion is Haemoglobin and 114 is barely below normal.
My lowest Hb was in the 30s and at that level it's emergency blood transfusions. To put your numbers in perspective I was released from hospital that time with a Hb in the 70s. I'd be surprised if you're offered an infusion.

embroideredstrawberry · 22/03/2026 07:27

My level was 10 and they gave me three months of supplements and told me my improved level - still under 25 - was now normal.

The GP I saw wouldn’t retest to see if my levels had gone back down half a year later, but I’ve recently seen a different one over a year later who is not only retesting but wanting to do further investigations into the cause.

Iheartmysmart · 22/03/2026 07:59

I had my iron infusion via my BUPA insurance @rainraingoaways It cost me £100 for my excess and was worth every penny. I went to the Oxford Iron Clinic and thoroughly recommended them.

Smallnate · 22/03/2026 11:10

@Q2C4 Very interesting! Thanks for sharing!

I'm an infusion refuser (the NHS want me to have them regularly but I don't want them) since it didn't do much for me or last very long. So it's good to read up on stuff like this ☺️

zurigo · 22/03/2026 14:08

She said even if I could tolerate tablets, which I can’t, I’d be looking at two years to reach optimal levels.

Yeah, that sounds about right. It's taken me two years to go from a ferritin level of 8 to one of 64 (most recent blood test last week). I've done that through taking iron tablets every day (currently on 6 x 28mg iron bisglycinate) and also sorting out my excessive menopausal bleeding.

It's taken real determination to get it up to 64 and according to most people that's not a particularly great level either, but I will continue with the iron tablets and see if I can keep shifting it higher. I've accepted that I'll probably need to take them for the rest of my life as I've always been borderline anaemic.

ShowOfHands · 22/03/2026 14:13

I have been bleeding, heavily and consistently for 12 months. I struggled like you but switched to high dose ferrous fumarate and have no nausea and no side effects. My iron levels are much better.

OrdinaryGirl · 22/03/2026 14:21

My ferretin was 12 a while back and I was exhausted. Floradix and Spatone made no difference - I would now say those are great for maintaining levels once they’re ok.

Got a Mirena coil fitted which completely stopped me bleeding (!) and I started taking gentle but high strength iron tablets. I couldn’t get on with the ones the GP prescribed as they were awful on the digestion, but these are fine.
https://amzn.eu/d/0boDj8bA

Within a couple of months I was feeling a lot better, but the key is to stick with it - iron levels for merely staying conscious in the daytime are a lot different to iron levels for thriving.

For example, for luxuriant hair growth you apparently need a ferritin level of >80!

Worth checking your thyroid and your Vit D too. And if you don’t feel any better when your iron levels come back up, explore pernicious anaemia / functional B12 deficiency.

Wishing you all the best OP 💐

OrdinaryGirl · 22/03/2026 14:27

ALSO, low iron can actually •cause• heavy periods, so you can get into a vicious circle with is. If any underlying causes beyond heavy periods have been ruled out, in your position I would get cracking with decent iron supplements and tackling the heavy periods to bash the source of the problem. You might be surprised at how quickly you start to feel better.

Circe7 · 22/03/2026 14:27

A ferritin level of 14 can make you feel awful. Optimum is 100. At 14 you may still be fatigued and cognitive function affected.

I don’t think the NHS takes anaemia anything like seriously enough until it gets really bad. So many women are trying to function with significant fatigue and other symptoms because of it.

I nearly died from anaemia caused by heavy periods. Haemoglobin level of 47 and ferritin of 5. My heart was failing and I lost consciousness and needed 3 blood transfusions and an iron infusion in A&E. One period before that I was fairly functional. I had adapted to being anaemic but then just crashed when it fell too low.

Iron bisglycinate is usually better tolerated and is meant to be better absorbed so you can take a lower dose. I took 75-100mg a day so 3-4 pills. I never managed to increase my iron above what the infusion left me with though, just maintain it. Spatone etc aren’t enough alone but are quite well absorbed so you could take a couple of sachets a day too.

A gynaecologist prescribed me a higher dose of Transexamic acid than my gp would and that worked quite well.

I had an endometrial ablation once I had finished having children. This reduces / prevents period bleeding.

Simplesbest · 22/03/2026 14:32

Have you tried spray iron vitamins? Absorbed through the mouth into blood stream so less side effects

Serencwtch · 22/03/2026 14:55

It's going to depend on what your Hb result is rather than your ferritin.

I am offered ferinject (IV iron) when my Hb goes below 8 to avoid needing a blood transfusion. I very much doubt you would be allowed IV iron for low ferritin alone as the risks outweigh the benefits

There are much better oral iron preparations available now. Someone's already mentioned ferucu but I have found sytron liquid (prescription only) didn't cause any digestive problems & as it's a liquid the dose can be easily split across the day to further reduce side effects.

If the biggest problem is nausea then anti-sickness medication such as ondansetron or cyclizine 30 mins before will completely avoid nausea

jacks11 · 22/03/2026 18:58

Jennyginger · 21/03/2026 17:35

I am apparently "a little anaemic" (I have chronic kidney disease and it showed up on my latest routine blood test). Apparently the iron level was OK but the haemoglobin was low. This has never been mentioned before but could explain why I’m getting so tired and easily breathless.

My consultant has ordered me an iron transfusion because he said they work better than taking tablets. So it can be done - it just needs a doctor with the will and authority to prescribe it. I hope you get sorted out soon.

Edited

Yes, but you have CKD- that changes the clinical picture from OP’s, I’m afraid. The reason you are anaemic is a different aetiology from OP’s, the treatment pathway is different too. It’s not just “the will”, it’s about what local guidelines allow us to do. Locally, a Hb of 114g/L with ferritin of 14, due to menorrhagia secondary to endometriosis, who had not tried 3 iron salts and modification (e.g. taking in an empty stomach) and ferrucu would not meet criteria for referral by a gp or referral for infusion by a consultant. Clinical infusions would decline that referral, or seek further clarification/evidence of eligibility. If the Hb was significantly lower, she would be eligible without need to demonstrate intolerance in order to avoid need for blood transfusion. Similarly, the same results but a lack of response to oral iron, when taken regularly, is able to be demonstrated would also be eligible.

A patient with a different condition- e.g. inflammatory bowel disease, some renal conditions- with those same Hb/ferritin results would be eligible because we know they are far less likely to respond to oral iron, so it’s pointless. Whereas most people with mild iron deficiency anaemia (IDA) will respond to oral iron replacement, albeit more slowly than after iv infusions- but it is much more expensive and we don’t have capacity to give parenteral iron infusions to every patient with mild IDA. There are also risks with it, whereas there are very few with oral iron (intolerance causes unpleasant symptoms, it can be slow to be effective).

I’m not trying to not-pick. It’s just sometimes patients think if only we would just do the referral it would go through, or it’s because we don’t want to help/lack the will to push it through. Mostly, it isn’t.

jacks11 · 22/03/2026 19:14

GardeningMummy · 22/03/2026 02:24

You may as well have this too. I haven’t a bloody clue and my GP just said all fine! 🤷🏼‍♀️

@GardeningMummy

Your haemoglobin (Hb) is 130g/L- not anaemic (threshold for anaemia I’d below 120g/L), but ferritin is low. So iron deficiency, but not (yet) causing anaemia. It can cause symptoms such as hair loss and fatigue, though everyone has different response.

Your HbA1c is 38mmol/mol- indicating non-diabetic glucose levels (or diabetes in remission if previously diagnosed with diabetes). Hope that’s helpful/

GardeningMummy · 24/03/2026 10:05

jacks11 · 22/03/2026 19:14

@GardeningMummy

Your haemoglobin (Hb) is 130g/L- not anaemic (threshold for anaemia I’d below 120g/L), but ferritin is low. So iron deficiency, but not (yet) causing anaemia. It can cause symptoms such as hair loss and fatigue, though everyone has different response.

Your HbA1c is 38mmol/mol- indicating non-diabetic glucose levels (or diabetes in remission if previously diagnosed with diabetes). Hope that’s helpful/

Thank you! 🙏

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