To be totally fed up with the sorry excuse that is the NHS?

[Carlie97]

I have gynaecology issues and I'm constantly bleeding heavy and leaky without a break as well as pain all the time.

I was told I had endometrial hyperplasia (abnormal cells - pre cancerous) last year and was due to have my six month check up last July to see if it's progressed. I heard nothing until I chased this and have an appointment for a hysteroscopy and biopsy in a few weeks time. They've outsourced this to a private company due to demand on the NHS but I've received my letter today and it says to take pain killers before the appointment as its going to be done without anaesthesia. This is an absolute nightmare as I've had it done without anaesthesia before and they had to stop because it was so painful. If they offer general, I think that's via a spinal which I can't have anyway. These are on my notes.

The coordination of my care has been an absolute shambles and my gynaes secretary is so unorganised, tells me thinks that aren't accurate which sends me round in a wild goose chase. She doesn't have a clue what she's doing. She also recently made it out like I wasn't going to attend my appointment as it's 50 miles away (where i used to live) and spoke to me like a child. As I'm bleeding non stop, suicidal (won't act on it) and severely anaemic, of course I'm going to attend! The gynae also tried to persuade me on the phone to have a mirena and take provera tablets. He obviously didn't see my notes that I've expelled two coils with flooding so much and I've told him numerous times that the tablets make me bleed even more.

They also scheduled me for iron infusion, months and months of me asking for this. I phoned the team who deal with this to query an appointment and they said I should never have been booked in with them as I'm out of area. They're still seeing me but what a fucking palaver!

I'm absolutely going to move my care to my new area when this is all done but in the meantime aibu to think this is unacceptable?

I'm sat here my heart beating so much every day because of the anaemia, I cry everyday, my mental health is on the floor and I'm honestly wishing each day that I go to bed and not wake up. I'm exhausted. I can't even go to A&E with the bleeding as friends have been and were sat in the waiting room for 27 hours waiting for a bed.

As someone who works for a private company paid to provide an NHS service, I promise you the private sector in the UK is much much worse than the NHS run equivalent. Frankly, be careful what you wish for.

I think anyone with experience of the NHS and a European model will tell you that the NHS is a complete mess. I worked in the NHS for years, and now live in a European country. There is no comparison in the care, that's why European outcome measures -particularly for cancer - are so much better.

So sorry to hear this OP, haven’t RTFT but have you thought of getting PALS involved (patient liaison service)

I’m going through similar at the moment. Bleeding since August 2024. 3 hysteroscopies and biopsies, polyps removed under GA, mirena coil put in which got stuck in my cervix for months then came out in a huge clot. I’m finally having a total hysterectomy but been waiting 7 months already.

Insist on entonox (gas and air) for the biopsy and Hysteroscopy. They can get it and should have it anyway. It does make it bearable. And as other posters have said, if it was men going through this it would be very different!

I have endometriosis and the NHS have been bloody brilliant with me. Getting the diagnosis was difficult because the male doctors were useless but since I've been diagnosed they're really looking after me with 6 monthly scans, blood tests (iron and cA125) and appointments with the gynaecologist. I had a minor op earlier this year and I was so well cared for. Couldn't fault them.

Sorry you're having a tough time OP. I'm posting for balance 💐

Ask the doctor for tranaxamic acid its a life saver. I also have endo problems and have iron infusions due to heavy bleeding. These should have been offered to you. I think you can buy them too without perscription

Just an update. I was due to go for an hysteroscopy/biopsy today to check on the progress of the endometrial hyperplasia, but ended up cancelling as I'm bleeding so much and very poorly. Tablets aren't working (trans acid) and I'm a mess. I was due to attend this in my old area as GP recommended I get the procedures all done in my old trust area and transfer my care to new hospital when it's all done.

I emailed my gynae today begging for a hysterectomy as I'm bleeding so much. I feel like I'm dying and he basically told me to go for the hysteroscopy/biopsy scheduled later despite the mega heavy bleeding and he also told me I've been discharged from his care now. So I'm currently without any gynae care, he won't have anything to do with me, despite me still having an appointment due under the trust where i used to live and where he operates. I think I'm just going to transfer to my new area and get everything done there and hope for better care than I've had with my previous gynaecologist.

I'm sorry you're struggling but it sounds like the quickest way to get help is to go to the appointment later today if that is still an option. You could be waiting months or years in your new area

@Carlie97 your situation sounds very similar to mine. Have you been offered Zoladex injections? It’s an absolute game changer and saved my life. I was so anaemic I needed a blood transfusion. I couldn’t wait for the NHS to follow up with an iron infusion so I paid privately again, brilliant. Happy to give more information by p.m. or on here if you need it. Good luck.