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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Just been diagnosed with celiac disease today, mid forties in shock- AIBU

78 replies

boredwfh · 09/02/2026 22:54

I went to the doctors as felt I was menopausal, nearly 44, fatigue, insomnia, anxiety I didn’t have before, bit of brain fog, crawling sensation up my thigh.
Had a full panel of bloods work, tested for everything it seemed. Anyway today I got a call to tell me my bloods were all came fine, except for Celiac disease, my markers were so high there no doubt I have it but a formal diagnosis is done via a biopsy. Until the biopsy I must eat gluten otherwise I could get a false negative. I’m looking up what I need to do to go GF when I get the biopsy results back & it’s a massive lifestyle change. 44yrs of eating whatever I wanted, now I’m facing a future of complete GF diet. no breads, pasta, cakes, pizza. Even my porridge oats might not be gluten free.
I know there alternatives but the thought of this is depressing me!
AIBU to feel this way?

How did other celiacs feel after finding out and how did you implement the changes required? I cook from scratch but we are a family of 5, how do I teach them about cross contamination?! I’m the cook in the family so have control over our evening meals going forward but just tonight we had pasta, the sauce was thicken up with flour. (Gousto box just delivered this morning) I use flour in a lot of dishes. I have eggs on toast every morning, I’m reading I may need my own toaster & airfyer to avoid cross contamination

please give me good tips and alternatives of how I navigate gluten free life?
for anyone not in the know, it’s not just a gluten intolerance, it’s a life long chronic autoimmune disease which can only be treated with a complete GF free diet which if not followed gives increased risks of cancer, other autoimmune diseases developing, osteoporosis and neurological problems etc!

OP posts:
Needlenardlenoo · 11/02/2026 19:10

Pizza Express can do everything with a gluten free base, yes, but personally I find them revolting. So I'd only go there if I was prepared to eat a salad.

I am quite partial to Schar GF frozen pizza though.

Crikeyalmighty · 11/02/2026 19:16

Needlenardlenoo · 11/02/2026 19:10

Pizza Express can do everything with a gluten free base, yes, but personally I find them revolting. So I'd only go there if I was prepared to eat a salad.

I am quite partial to Schar GF frozen pizza though.

Ha, I think the same too to be honest - I don’t personally like pizza much anyway

Bunnycat101 · 11/02/2026 19:36

My mum was diagnosed in her late 70s which as you can imagine was a massive culture shock. It had likely been missed for years and years. My parents found the course at the hospital really helpful as well as the coeliac uk app. They managed pretty well at home and found substitutes to be pretty good. The biggest risk has been other people.

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