Page 2 | To be so embarrassed?

Carlie97 · 2026-02-08T13:11:56+00:00

I have endometriosis and bleeding is out of control. Very heavy that I can have a whoosh moment and flood a super incontinence pad. I've ruined so many bed clothes, clothes and my sofa cushion covers see more of the inside of the washing machine than they're on the actual sofa! I was eating out today. A real treat and I very much enjoyed the meal. As I stood up, I felt moist but thought perhaps it was a leak of wee or because I had been swimming. As I turned round to close the door on my way out, I noticed at the place where I'd been sitting, a pool of blood on the floor about the size of a round drinks coaster. I went off to the shop across from the place to get some floor wipes and spray but honestly when I got back I couldn't bear going in and cleaning the mess up. There were lots of people sat there. I've only just stopped bleeding from a two month mega bleed, or so I thought. The woman in the cafe was so lovely too. The bus journey back was horrific as I didn't have a spare pair of bottoms on me.

Original poster

Carlie97 · 08/02/2026 17:52

I'm so sorry to read others' experiences too. It's so unacceptable we're going through this shite.

I'm off to shop for some period pants. Thank you 😊

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mummytrex · 08/02/2026 21:13

Make a formal complaint to the hospital op. It is so important that you have your biopsy.

the admin team in my gynae department accidentally discharged me despite me pointing out very clearly they were making a mistake.

At that point I’d had 2 biopsies. 1st endo hyperplasia without atypia, 2nd negative. In my hosp they’re meant to discharge after 2 negative biopsies. After a year of chasing I finally made a complaint and was then swiftly given an appointment. That biopsy confirmed hyperplasia with atypia at which point I was told I needed a hysterectomy urgently (previously when I’d asked I’d been told no). Had the op 3 months later and the tests on what was removed confirmed cancer!

Original poster

Carlie97 · 08/02/2026 22:12

mummytrex · 08/02/2026 21:13

Make a formal complaint to the hospital op. It is so important that you have your biopsy.

the admin team in my gynae department accidentally discharged me despite me pointing out very clearly they were making a mistake.

At that point I’d had 2 biopsies. 1st endo hyperplasia without atypia, 2nd negative. In my hosp they’re meant to discharge after 2 negative biopsies. After a year of chasing I finally made a complaint and was then swiftly given an appointment. That biopsy confirmed hyperplasia with atypia at which point I was told I needed a hysterectomy urgently (previously when I’d asked I’d been told no). Had the op 3 months later and the tests on what was removed confirmed cancer!

Oh gosh, I am so sorry to hear your hyperplasia was cancer. Are you cancer free now?

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Madformaltesers · 08/02/2026 23:05

I feel
for you, I had exactly the same, years of flooding, and trying tranexamic acid that gave me migraines and constant iron tablets or infusions. Finally had an ablation which worked for about 2 years until I started getting horrendous pain which turned out to be bleeding but due to the ablation had no escape and therefore was congealing inside me. I became so unwell i had a hysterectomy, and have never looked back, but I'm still angry i suffered for so long. To make matters worse my gynaecologist was female and im sure thought I was exaggerating, she would raise her eyebrows when i told her the extent of the bleeding , i only had the hysterectomy agreed when I swapped to a male gynaecologist after I made a complaint about her.

Plasticdreams · 08/02/2026 23:09

If I was a customer there, I would have just felt sorry for you and offered to help you. Please don’t be embarrassed.

Original poster

Carlie97 · 08/02/2026 23:22

Madformaltesers · 08/02/2026 23:05

I feel
for you, I had exactly the same, years of flooding, and trying tranexamic acid that gave me migraines and constant iron tablets or infusions. Finally had an ablation which worked for about 2 years until I started getting horrendous pain which turned out to be bleeding but due to the ablation had no escape and therefore was congealing inside me. I became so unwell i had a hysterectomy, and have never looked back, but I'm still angry i suffered for so long. To make matters worse my gynaecologist was female and im sure thought I was exaggerating, she would raise her eyebrows when i told her the extent of the bleeding , i only had the hysterectomy agreed when I swapped to a male gynaecologist after I made a complaint about her.

Oh wow, that sounds absolutely horrific. Hope all is OK with you now.

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Original poster

Carlie97 · 08/02/2026 23:24

Plasticdreams · 08/02/2026 23:09

If I was a customer there, I would have just felt sorry for you and offered to help you. Please don’t be embarrassed.

Thank you for being so kind.

When I got in, I could see I had bled over the back of my dress. People in the street would have potentially seen (busy town centre) and on the bus too, although the bus wasn't overly busy, about twelve people on.

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SallyDraperGetInHere · 08/02/2026 23:41

I hear you 💖 it’s absolutely debilitating when this happens. I’d a period once that lasted 11 weeks, and I spent the whole summer in black trousers, didn’t swim once, destroyed clothes, and had to get a new swivel chair ordered at work 😭 The mirena was a godsend for me - completely cured the symptoms, and I had my second mirena removed a few months ago at the age of 54. (Ablation was not an option due to funny shaped uterus.)