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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

PIP

30 replies

sunshine4477 · 27/01/2026 18:49

I claimed pip for my son . On the claim I put learning disabilities and Autism.
The learning difficulties are diagnosed.
After a lot of digging I’ve found out the autism isn’t diagnosed. I found this out by mistake when a doctor mentioned it wasn’t on his records.so I started inquiring why.
I’d put it on the forms as the special school annual review document stated Autism as his main condition and i believed this to be true.
I also remember them saying his autistic.
at the time i had no idea how autism assessment work so did take there word for it.
Think the annual review is connected to the statement special needs which is now called ECHP. So not sure if it’s a legal document.
i would have sent this as evidence.
His needs are still the same,every thing I said regarding support and help he needs are accurate.
I know PIP isn’t based on diagnosis but Am I in trouble?

OP posts:
sunshine4477 · 02/02/2026 22:36

LadyBrendaLast · 02/02/2026 19:35

Ex PIP assessor here.

Don't worry, you are not going to get into trouble!

  • You genuinely believed it was a formal diagnosis
  • You have the school documents to support this
  • As you know, PIP is not awarded based on diagnosis.
  • As someone said, lack of formal diagnosis IS sometimes cited in the PA4 but this does tend to be when a number of details provided by the client are very inconsistent. I wouldn't include that if everything is adding up as it clearly is in your son's case.
  • I would not bother updating them until asked.

I hope that is reassuring!

Thanks. I never asked for the PA4 as he was awarded. Most of the evidence did mention learning difficulties. So I’m assuming he was awarded on that.Needs haven’t changed. Are waiting for autism assessment as no documents can be found but I heard they can be wiped after a certain amount of years, not sure if that’s true. As learning difficulties affect him the most I think I’ll stick to that on a review . Yes it’s reassuring. Thanks

OP posts:
LadyBrendaLast · 03/02/2026 09:11

I would recommend you include pending autism assessment though OP. It's all part of the picture and the assessor will find it valuable. Good luck!

LadyBrendaLast · 03/02/2026 09:12

Are you named as appointee?

PurpleDragons · 03/02/2026 12:52

You could contact your local authority to see if his name has been added to the autism and learning disability register? They should be able to tell you if his name is on it and confirm diagnosis as your name is only added to the register once a formal diagnosis is made.

sunshine4477 · 03/02/2026 15:30

PurpleDragons · 03/02/2026 12:52

You could contact your local authority to see if his name has been added to the autism and learning disability register? They should be able to tell you if his name is on it and confirm diagnosis as your name is only added to the register once a formal diagnosis is made.

He's on the learning disabilty register and has been fir a long time

OP posts:
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