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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

With all the awareness of mental health, why is psychotic illness never really mentioned?

86 replies

NightTerrier · 27/01/2026 14:08

Am I BU to think that mental health issues are more then just anxiety and depression. You rarely hear anyone talk about having a psychotic illness.

I have paranoid schizophrenia and it's rare that we see anyone talking about it, despite the fact that it affects approx 1 in 100 people. I feel it is is still very misunderstood and stigmatised.

Even Bipolar is more widely accepted and you have people like Stephen Fry who have raised awareness for this severe mental illness. I still can't help feeling that it's much more acceptable and less stigmatising to have bipolar than paranoid schizophrenia.

In case anyone is wondering, No, I don't work and I do claim PIP for this and also for autism and long covid. Even the side effects from the meds I have to take for my schizophrenia are pretty debilitating, then I get delusional about how they are a means of the government trying to silence people that are 'more aware', so end up coming off them. Then there are the cognitive symptoms to deal with. Also negative symptoms, which is loss of motivation, social withdrawal and the like. Hallucinations and delusions are positive symptoms. I ended up having to give up work about 10 years ago after being particularly ill and haven't ever fully recovered since.

I get really angry when I tread all the rhetoric about people claiming benefits for mental health reasons. People do realise that mental illness doesn't just encompass anxiety and depression?

For what it's worth, I've never been a threat to others, only myself. I'm currently having to have a monthly injection as I get so paranoid about having to take antipsychotics and my lovely nurse visiting me to give me my injection usually ensures that I have my meds. Even with that in place I still get paranoid about it and refuse it periodically.

OP posts:
AbbaDabbaDooh · 28/01/2026 22:08

Thank you for posting a thread on this and talking about paranoid schizophrenia.

My brother has paranoid schizophrenia. About ten years ago I did a collection for charity on Schizphrenia Awareness Day, it was interesting how many people stopped and gave, and stopped to have a chat - more people know someone affected by schizophrenia than talk about it.

Best wishes to you OP.

ChopstickNovice · 28/01/2026 22:31

CraftyNavySeal · 27/01/2026 15:22

People like mental health problems that can be “fixed” by therapy, “just go to therapy” seems to be the solution to everything.

My dad had psychotic episodes and was hospitalised several times, people were surprised that he didn’t get therapy. No it’s lifelong serious psychiatric medication!

My dad has had serious episodes too where he absconded from the home and believed he would be arrested if found. He too is on long-term meds (which have to be changed every few years as he gets resistant!!!). Psychosis is horrible and I'm sorry your family has been through this too.

plsdontlookatme · 28/01/2026 22:49

Completely agree, and in fact I've been saying the same thing myself. Tabloids capitalise on the fact that most people's conception of mental illness is a sort of exaggerated low mood. I've known people to have self harmed to an extent that they've severed the tendons in their own arms; people with single-digit BMIs; people on such high doses of antipsychotics that they can't stay conscious during the day. I can't help but think it must be a charmed life fot those so totally ignorant of these things that they genuinely don't understand why a mentally ill person can't just buck up their ideas and get to work scrubbing toilets because paying taxes aggrieves them.

Ladamesansmerci · 28/01/2026 23:01

I'm a MH nurse and absolutely agree.

Public understanding of SMI (particularly things like Schizophrenia) is very poor, and stigma remains high. People on the SMI register are significantly more likely to have poor health outcomes, poor work outcomes, be socially isolated, experience financial hardship, and so on. People absolutely do not understand that these are often relapsing illnesses which make people very poorly indeed. People do not understand that the drugs required to keep people stable are really quite horrible medications with high side effect burden for many people. Also what 'well' looks like is a huge spectrum for people with SMI. One person with Schizophrenia might be stable on meds for years and hold down a job, run a house, etc. Another may not have psychotic symptoms, but might experience a lot of the negative symptoms and therefore has a low level of functioning. Others may be quite impaired due to years of antipsychotic use and need supported living and carer support. Same with Bipolar- you get some people who get very cyclical depressive episodes, but very infrequent manic periods. You get people in and out of hospital due to have very stress sensitive manic episodes. I have a patient who roughly every 3 months is bed bound due to her depressive episodes. She has been that way for years, and unfortunately, despite treatment, that just appears to be how she will always be. I also think there are a lot of misconceptions around delusions etc- people only think of paranoid delusions about others (which is fuelled by the media imo). Other psychotic symptoms like hallucinations (auditory, tactile, olfactory, etc) and things like disorganised thoughts are poorly understood.

Unfortunately I also sadly think people still associate Schizophrenia with violence towards others, when in reality most people are more a risk to themselves (either due to suicidality or significant self neglect). I work with older adults, and in my experience, Schizophrenia also makes some adults far more vulnerable to harm from others in terms of exploitation, etc.

Also, employment is not always accessible. I get angry when people moan about people with mental illness getting PIP etc. In reality, who is going to employ someone who many need to attend Clozapine clinic once a month, who needs time off to see their mental health nurse, who needs later starts due to heavy sedative medications, who may have long periods off if their illness relapses, etc etc?

I think it's great there is acceptance of depression, anxiety, etc, now, however I still think acceptance only goes as far as 'it's okay to feel your feelings' and all the other diluted insta type fluffy stuff around self care. The reality of depression might be not brushing your teeth for days, lashing out at others, drink problems, chronic suicidal thoughts, and so on.

There really needs to be a good public health campaign around different types of SMI. I also think this would be very helpful for carers/loved ones. These illnesses are also hard on family a lot of the time.

Anyway. I could go on forever 😂 good on you OP for making a thread about paranoid Schizophrenia. I think that takes a lot of courage, and things like this encourage people to ask questions and breaks down stigma.

plsdontlookatme · 28/01/2026 23:09

I also find a lot of messaging about eating disorders quite trivialising. The people who make themselves the spokespeople of, say, anorexia recovery tend to generalise their experience of short-term, body-image-focused restrictive eating as though it has anything to do with the experiences of people with enduring eating disorders which tend to have very difficult comorbidities and/or be rooted in absolutely horrifying early life trauma.

Treebaubles · 28/01/2026 23:14

It’s because of the stigma of those kinds of mental health illnesses. The way the media portrays them, films, newspapers, tv series etc. People with those types of illnesses are seen as being dangerous, where, in fact, schizophrenia is the least seen in prisoners with mental health disorders.

plsdontlookatme · 28/01/2026 23:20

A lot of SMI people are especially invisible because they are effectively warehoused in psychiatric units, not really receiving any particularly thorough treatment but more just indefinitely imprisoned so that the community mental health team can offload its liability and so that the (usually privately-operated) units can keep hoovering money out of NHS trusts. Shoving people in an institution to keep them out of sight is really not a thing of the past at all.

GoldInYourSmile · 28/01/2026 23:51

I had a relationship with an AuDHD boyfriend who experiences episodes of psychosis. I don’t know if it’s down to hard drugs when younger, or his traumatic relationship with his mum - he was glad when she died. The two episodes during our relationship were with people watching and authorities involved. To say it opened my eyes such a lot is an understatement.

We’re long distance, 200 miles, and I never witnessed an episode first hand but I could hardly believe what he told me had happened. He’s been committed to institutions on a few occasions too, before I knew him. He was only hospitalised for 24 hours once when we were together. I know he’s not told me everything about his past, either.

We finished after he attempted suicide (for about the 10th time in his life) and as much as we still adore eachother, he said it wasn’t fair on me to keep us going. I was out of my depth with it so it was a relief, in a way. I can’t help or provide practical support from 200 miles or four hours drive away when it matters. We’re still good friends, we meet up for weekends and have fun - I’ll always be his biggest supporter and he knows that. But I find it easier to less emotionally involved and I hate that I do. I attended therapy to help myself deal with his attempt and if/when he tries again I hope I’ll be better prepared.

Luckily, now he’s in his 40’s he’s very self aware and does everything he can to regulate and help himself. Very strict with his antipsychotic meds and knows so much about therapy now he’s taking night classes to be a therapist himself! But for various reasons these episodes happen, and they will do again.

I’ve learned so much from him and because of him. I can’t believe how ignorant about serious mental health issues I was before. But if I bring him and it all up people just don’t want to know or clearly quietly judge him and me for “putting up” with him! Aside from my therapy sessions, which were a bit rubbish, I’ve never been able to talk about it all.

Thank you for creating this thread OP.

cheerypip · 29/01/2026 00:00

plsdontlookatme · 28/01/2026 23:20

A lot of SMI people are especially invisible because they are effectively warehoused in psychiatric units, not really receiving any particularly thorough treatment but more just indefinitely imprisoned so that the community mental health team can offload its liability and so that the (usually privately-operated) units can keep hoovering money out of NHS trusts. Shoving people in an institution to keep them out of sight is really not a thing of the past at all.

Edited

Agree strongly with this. Warehousing is a very apt term.

Summerflowers4 · 29/01/2026 00:03

Your entitled to the benefits and the support
That's what the benefits system is for , genuine cases who need the help .
Would you be willing to share how you were diagnosed

Yellowcakestand · 29/01/2026 00:14

I havent RTFT but if you dont already know him look up a singer called Ren. Such a talented artist who uses a lot of his own experience of Lyme Disease, Psychosis, depression and anxiety in his music. Quite inspiring

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