I have cerebral palsy and got 0 points on my pip assesssmtb

[TheOpalFox]

I applied for pip and got 0!!! I have cerebral palsy . It’s a form of brain damage
feeling very upset and frustrated :( gonna go cab I think for some help :(

That's rubbish! Yes going to CAB is a good Idea. Wishing you the best of luck getting it sorted quickly 💐💐

PIP is based on what you can or can't do - not the illness/disability. Did you come across as being able to do what they were looking for?

Everyone needs to seek help on filling in those forms...
All the best OP

Sorry op. This sounds tough. Sharing a link..might be useful
https://www.fightback4justice.co.uk/

Approaching CAB is good but it is also worth remembering that pip is based on your functional capacity, not your diagnosis. If you can read, write, travel independently, make beans on toast and wash yourself without support, you won't get any points unfortunately.
But I am also aware of cases where people couldn't do any of it but were declined PIP on the basis of having a pet (rationale being that if they can look after a cat, they can look after themselves) and being able to drive. It's bonkers sometimes and if you think you genuinely qualify, then always appeal.

So sorry OP. I have severe dyspraxia and am in the middle of applying. Sometimes it's the words that you use, like if you say "yes, but i need help" they can read the yes part and conveniently ignore the rest. If you say "no, not without help" it means the same thing but they couldn't give you zero points for that.

Just a heads up.

This OP very rarely returns to any of the threads they start.

How does it affect you ?
im.not being dismissive but cerebal palsy much like other disabilities is on a spectrum
A friend of mine has cerebal palsy and is very mildly affected and another friends daughter, is unable to do anything for herself with cerebral palsy
Do you need help with self care ,making a meal for yourself?
Can you travel independently?

I've got dyspraxia (and ADHD) and have never thought about applying for PIP. I thought it was for people that struggled to live independently?

EDIT: I didn't mean to come across as if I'm questioning your eligibility BTW. I've just never met anybody getting benefits for being dyspraxic.

It matters not what you actually have wrong with you. It's about if you can do basic tasks/care for yourself safely

I don't feel my dyspraxia is much of an intellectual disability. More just that I'm a bit clumsy. But because I'm aware of that I actually knock things over far less than most people as I ensure not to put a cup of tea in a place where I might knock it over, for example.

I'm defo pretty forgetful but it's hard to say if that's the dyspraxia or ADHD. I have to set reminders etc but overall I get on OK as I always think about tasks before tackling them, whilst a lot of people I know will just crack on without much pause for thought.

As mentioned upthread, it's not based on the diagnosis. My friend has cerebral palsy, but cannot walk without sticks and has severe involuntary movements and muscle stiffness. It has a huge impact on the way she lives her life and she does need help for many tasks like washing and cooking. She receives PIP for that reason.
Does your CP affect you in this way? Definitely seek some advice if you feel you need to appeal the decision.

My son has CP and had the same because he was managing....according to them. Appealed and it took a while but it did get awarded (he was in his late twenties at that point).

Go to The Brain Charity and Scope for help, they are really good.

ETA my son has only one working arm and leg, has very restricted mobility as a result and needs help with self care. Still got nothing to start with.

The OP has only said that they have Cerebral Palsy. They haven't stated the degree of it or how it affects them. If they have a very mild version and can perform everyday tasks like most people, then why should they be eligible for PIP?

Why should they be directed to websites that tell them how to word their claim (exaggerate) in order to get PIP? Should everyone just lie?

Come on people, let's develop some critical thinking and not automatically think that saying "I have a disability" means that you are definitely entitled to all the state benefits going.

Lots of people need help with the forms. Talking to a professional about the condition and how it affects them can be really helpful for the individual. The suggestions for websites on here are good suggestions. It can be extremely daunting for people . It is not about wangling the system or anything like that. It is about getting advice and support.

Read my post above. My son has more than "mild" CP.....and he got told "no, not disabled enough" and on tribunal it was awarded at middle rate for both elements.

People are turned down in the hope that they simply wont bother with appealing, and usually they dont. There have been many investigations in the media about this.

Yes go to CAB as you'll need help appealing. There's specific things you need to highlight for them to award the points
Don't let it go. They try to fob a lot of people off who dint understand what the PIP form is looking for.. they expect people won't try and appeal.
My mum is disabled and had to appeal. She went from being given nothing to being on the highest rate. You just need some input on what they award points on and what you need to write

Its not 'lying'! You can't just make stuff up. However they are looking for certain phrases etc so if you do not get input on how to fill in the forms you can often be awarded nothing when in fact you are eligible for more.

There are ways of wording your answers which are calculated to get you points. I believe there are U tube and Tiktok videos which will tell you how to phrase your answers.

I wont go into detail but a relative of mine had a stroke and I filled in the PIP forms for him. He got the high rate. When you have had something like a stroke you have more or less a clear field to claim anything. The stroke is a matter of medical record. However no one can diagnose to what extent you will recover, or how it will affect you.

So if you are unable to work out instructions for how to plan a simple meal.
Or your hands are so unco-ordinated that you cannot safely cut food with a knife.
Or you cannot work out when it is safe to cross the road without a companion.

So long as you dont post stupid things on social media who is to prove you wrong?

You would still need proof ,like physio / OT reports.

TBH it's a bit of a long shot but I thought I would give it a try. I can't drive but with help I can do most other things, it takes me a lot longer than most people though. DH has autism so mostly the things I can't do, he is really good at and I am good at the things he can't do. Forms we both struggle with but the ones related to the children the school have been really good at helping with. I buy vegetables pre chopped as I struggle with that and have google maps on my phone so I don't get lost. There is a whole load of other things that I have managed to work around and both DH and I need to get outside help when the other one of us isn't here.

Thats just wrong. You can appeal the decision. This is an excellent website which offers guides to follow when claiming PIP and benefits
https://www.benefitsandwork.co.uk Good luck x

Dyspraxia can affect people in many different ways, again it's a spectrum.

My daughters CP was diagnosed as dyspraxia at first. They actually have to rule out CP to confirm dyspraxia. The ABC movement test doesn’t not distinguish between the 2.

It's always best to ask for help from someone who is used to the way they work when filling in DWP forms. As PP says, it depends very much on using the right wording. Also always worth appealing a refusal.