To ask… Type One Diabetes

[ChristmasTimeChristmasJoy]

To ask you to help sign this petition with matter of urgency?

Lyla Story was just 2 years old when she tragically passed away from undiagnosed Type One Diabetes — less than SIXTEEN hours after seeing her GP.
Her symptoms were clear. Her death was preventable.

Now, her family are fighting for Lyla’s law — calling for routine diabetes screenings in babies, toddlers & children.

A simple urine or blood test could of saved her life. It can save others.

This is where you come in: https://petition.parliament.uk/petitions/728677?fbclid=IwdGRjcAOTyZRleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEev7jYOZSB7benrYA06UsvHn0dwA9yaycr92TjpNYscJpZh_zDVSo3iqnCrpc_aem_g5PnKSV9EL4RDzvnD5BTZQ

We need 38,244 more signatures to get Lylas Law debated in parliament. Please sign & share. You could save a life.

My own son slipped into DKA as he was misdiagnosed by the hospital and sent home. Two days later, I could barely wake him up his GP came and did a simple urine dip and blue lighted him to hospital which saved his life and he was diagnosed with type one diabetes.

Undiagonsed type one diabetes is fatal.

And please don’t think as theres no family history it won’t happen to your family members. Type One diabetes does not discriminate. My family have never had it in the family and my son has it.
This petition is vital to save lifes.

I’ve followed her Dad on TikTok a while and have signed already and shared x

He was denied to go This Morning & talk about Lylas Law, bloody awful. We as a community need to rally around them & do whatever we can to help with this last leg.

As a mum of a Type 1 I’ve already signed.

I don’t think people realise Type 1 is an auto immune condition where your body literally starts attacking the cells in your pancreas that produce insulin. It can happen to anyone. Any age at any time.

Solidarity to the families living it and our wonderful children who we try and keep alive every minute of every day.

I’m the mum of two children with t1 diabetes, and this story breaks my heart. I signed the petition many weeks ago, but just commenting to bump this post up and get more signatures.

Signed - will also share on facebook

thank you x

Another mum of a T1 diabetic here, signed. Thank you for raising awareness!

As a parent of a T1 diabetic child I'm not sure that this would solve the issue. The problem is a lack of understanding of the 4 T's by medical staff in general where it is so difficult to get an appointment to see a doctor in the first place and that's what needs addressing.

In our experience my DC was diagnosed at age 7 but it took 6 weeks to even get an appointment with a GP plus the 2 weeks DC was ill before that. My DC had the 4T's plus was eating twice their normal amount because they felt hungry all the time but losing weight. After watching and waiting for 2 weeks because I wasn't sure if it was just post viral/illness issues, I phoned the surgery to book a GP appointment. I explained what was wrong and was told that it wasn't anything to be concerned about but I insisted on an appointment so was given one for 6 weeks later on the understanding that I cancelled it when DC got better. Sensing something wrong, I asked school to monitor how often DC was refilling their 1l water bottle, how often they were going to the toilet and how often they were nodding off in the classroom etc. Grumpily they agreed and kept a written record which confirmed that something was off. One evening I was bathing DC and I realised that I could see their ribs very clearly and they were so thin that they looked like they hadn't eaten in weeks so I called the surgery again and was told that I had an appointment already booked so we'd have to wait. So we did because we were told that it was nothing to worry about.

Two weeks later we saw a GP - by that time DC could hardly manage to get through the school day and I was carrying them home. I took a urine sample and as soon as the GP tested it, he did a finger prick and then called the hospital to advise them that he was sending DC in immediately - the blood sugar reading was nearly 40mols (in old style readings) and DC was in DKA. What followed was horrific. A dash to hospital and bang...our lives were never the same. We had to watch our DC nearly die - all because medical staff didn't pick up on the 4T's in a phone call 6 weeks before. Mandatory blood testing laws would not have made any difference to our situation because we couldn't see the GP to have one and he did do one immediately and I'm so thankful that he did as I know that some medical staff still won't take action. Better education of our practice staff would have made all the difference in our case and it saddens me that ignorance of the 4 T's is still occurring even now 20 years later with better computer aided tools in the hands of medical professionals.

I will sign this petition but to be honest by the time a T1 child gets to see a GP, it's already too late to avoid DKA. This really needs picking up at the first contact from a child's parent via phone or Econsult etc and this where training needs to be - in awareness.
There were 3233 new T1D children in 2024 and 313 cases of meningitis in children for 2024/5 but surgeries are still on the look out for meningitis/other illnesses more than T1D which still seems to be an after thought or not thought about at all.

sSigned. I have type 1 diabetes developed at 40 during my first pregnancy. I took an insulin management course and a fellow participant had been diagnosed at 18 months aided by his mother who recognised the symptoms. I had no symptoms myself - it was only my baby measuring big that I got tested.

@Nocookiesforme did you complain to your GPs practice manager, as that is awful!

@Pranksters
Yes, I did but no one would listen and to be honest, I was busy trying to keep my DC alive and putting weight back on. The GP to be fair was horrified that we'd not be flagged up but the surgery staff then did stuff like not do prescriptions from the hospital urgently. A week after discharge we were running out of insulin and testing strips but the surgery insisted that we had to wait with everyone else to have prescriptions printed in order of request. The juvenile diabetes nurse came round to do a check up and was apoplectic with rage at them and they've never done it again. Sadly we have no choice as it's just one surgery for our area so no choice available. The same surgery had a senior partner who didn't believe in ADHD/autism/MH issues so he would destroy requests for referrals. Both DC are ADHD/autistic and both had their requests 'lost' despite other documents being handed in at the same time being processed. Thankfully he has retired now so we got requests through unimpeded but it's such a battle to get proper basic care for T1D DC still - not unusual though is it.

I tried to sign 4 times but it ring let me get past the email signature part.

Could try another browser or tomorrow? Thank you for trying, every signature counts. 💙

signed -as a T1 diabetic I know how important this is. If you suspect T1 because of 4Ts and can’t get an appointment like the heartbreaking story from a PP, you can buy a test kit from Boots or your pharmacist may be able to do a test. Then call 999 if the results show high blood sugars or high ketones.

by the way, T1 has very small likelihood of being inherited, so family history is pretty meaningless. T2 has a strong genetic component and having 1 parent with T2 massively increases your chances of getting it, if both have T2 even more so

My son age 12 was diagnosed T1 by a nurse in a GP surgery in a village where we were on holiday. She spoke to the GP who didn't come in to see us and the message was relayed that he had diabetes and we were to make an appointment with our own GP (3 hours drive away) with no indication this was urgent or any warnings about DKA etc. Was given a post it note saying blood sugar 24 and ketones +++

Phoned my own GP to get an appointment, told the story to the receptionist, gave her the details on the post it note. GP called me back about 20 minutes later and told me to go straight to the nearest hospital.

Signed. I think I may have pressed YABU by accident, sorry.

Have shared on FB as well. I have a nephew with T1, so know how important early detection is.

Signed. Solidarity with other type 1 diabetics out there!

Massive thank you to everyone who has signed & shared. You’re awesome! 💙

Signed.
so upsetting.

I was also misdiagnosed and ended up with DKA a few days later.

I'm unsure what this petition is proposing and how it would have helped me or Lyla? The problem was our GPs not recognising obvious diabetes symptoms, which routine testing wouldn't solve unless you had them unfeasibly often.

Signed a few weeks ago and shared on Facebook. Just devastating. I diagnosed my son myself, I recognised the symptoms but had no idea how serious it was. Luckily the doctors took me serious.

Bump