The last three years have been pretty brutal, separating from husband, crack addicts next door, job changes. I’m really good at rolling with the punches, I an almost qualified yoga teacher, feel like I can self support to a good degree.
But… yesterday my child was diagnosed with an ultra rare disorder where there is no positive outcome. And in the same consultation I was told I have a very rare but awful disorder that explains my hearing loss and heart issues. It was a multidisciplinary group of consultants including a geneticist and a neurologist who broke the news as I share one of the conditions with my child it seems. There are lots of future appointments across the country for both of us.
What can I do? How do I create meaning for any of this? There is no treatment per se for my child, some for me perhaps. I cannot control that.
I can control our environment and what we do day to day. Like creating an artwork together a day, or in fact I do not know. I want to spend my time more meaningfully, and make my child’s time as lovely as possible.