Backstory-
my son has a very rare laryngeal cleft so has been under ENT from birth, he has a severe speech disorder and suffered with repeated tonsillitis for years to the point his consultant was going to take his tonsils out, then it suddenly stopped so we decided on a watch and wait approach.
Fast forward to now, apart from his speech the cleft hasn’t caused any issues and we were discharged from ENT, his consultant was absolutely amazing.
due to his repeated tonsils his tonsils are huge and full of crypts, they get full of tonsil stones and his breath absolutely stinks 😭 so on top of his speech disorder when he does actually talk the smell is unbelievable, he can smell it too and it’s breaking my heart.
Last week I was at an appointment for myself at a private hospital and out walked his consultant, she immediately came over asking how my son was and I told her, she said I should ask my gp to refer him back to her or I can see her privately to discuss options. Thing is my gp can’t refer me back to her because she’s at a main children’s hospital and they can only refer local. Due to his cleft I would only want her because she’s an expert in the particular location of his cleft. I would absolutely take him privately for this.
am I mad for even considering the tonsillectomy? His confidence is already in the ground anyway with his speech and now the breath issue on top is too much for him. It’s not his teeth etc it’s absolutely the tonsil stones…
not sure what to do! Help