Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Severe hives - too afraid to touch anything. Sat on office chair naked and crying

190 replies

Dancerk · 01/09/2025 03:43

So for the past three days I’ve had some sort of reaction. I’ve got hives/welts all over (scalp, bum legs, hands) plus blotchy skin. Hands and feet swollen slightly. Mostly it’s a mild nuisance. But a few times a day it just fucking gets so intense that I have my dogs comb brush I am just basically sanding my skin off to keep the itchiness at bay. Talking 30/40 min flare up where my body explodes. My body is so raw from scratching using all sorts. Even used a butter knife and blunt scissors to get a bit of relief

I haven’t eaten anything new and I have no food allergies that I am aware of. I do randomly get hives maybe once a year but normally it goes after half a day.

Just had a flare up which left me crying as it was so uncomfortable. Felt like my whole body was erupting.

I’ve convinced myself it’s either my detergent or dust mites. Im so scared to touch anything so im
sat on my plastic office chair butt naked. Crying. My feet are very itchy. Tbf everywhere is but my feet are so bad that everything pales in comparison

ive taken piriton but nothing helped.

i did have a stubborn cold I’m getting over (chat gpt said it may be linked)

im just hoping for advice. Im so paranoid. Literally shivering from the cold but worried it’s my detergent I have issues with. It’s been 7 days of shitness (period, cold, hives). My joints have also started to hurt,

I’ve got to leave the house in 3 hours. Not slept 😢

x

OP posts:
IzzyHandsIsMySpiritAnimal · 06/09/2025 10:26

How are you feeling now @Dancerk ?

Dancerk · 07/09/2025 16:14

IzzyHandsIsMySpiritAnimal · 06/09/2025 10:26

How are you feeling now @Dancerk ?

Much much better, thank you! The Allevia really was a lifesaver. It really calmed down my very very angry flare ups. I still have a few hives on my thighs but they are very mild and not debilitating.

Cant recommend Allevia more, wish I had taken it sooner and sacked off portion which did bugger all

OP posts:
Sassylovesbooks · 07/09/2025 19:32

If you've had a cold, it's likely something that's been triggered by a virus. It's possible it's Vasculitis. Google and see if the rash looks similar, as it's triggered by a virus. If you can get any hydrocortisone cream, it's a mild steroid cream, and try it. Call your GP in the morning and get an urgent appointment. My son is prone to Vasculitis, and it's horrible.

AdoraBell · 07/09/2025 21:52

I’m glad the Alevia has worked, despite the GP cutting you off. I know they are probably busy but that seems really rude.

WilfredsPies · 07/09/2025 22:05

I’m glad you’re feeling better. I’ve had urticaria previously and even had hives on the inside of my mouth at one point. Not fun. And Piriton made me faint. Hopefully this medication will keep it at bay, but tepid baths, ice packs, rolling cold drinks cans over my arms and legs and calamine lotion all helped me with the itching.

NCTDN · 10/10/2025 22:32

cakedup · 01/09/2025 08:20

There is solution...omalizumbab, a course of injections that has successfully cured many. You will probably need do fulfil certain criteria, eg take fexofenadine for a certain amount of time.

Has this worked for you ?

toonananana · 11/10/2025 07:23

Fexofenidine is the only antihistamine that works for me. Also, when an attack happens, I find hitting that part of the skin stops the need to itch. I’m sorry you’re going through this- hives/urticaria is a bitch.

NCTDN · 12/10/2025 10:35

TinderFan · 01/09/2025 11:34

Hello OP, I totally feel your pain with this - two years ago I suddenly developed large, itchy hives spreading all over my body at an alarming rate,
seemingly out of the blue. Cue me having a million different GP and nurse practitioner appointments (I even got so desperate I went to a private GP) who all give me different diagnoses and were largely dismissive (the private GP was great and it turned out her diagnosis was correct, which the NHS GPs dismissed). The issue with skin conditions is there are so, so many so I went though the gamut of diagnoses (at one point even ringworm was touted - that was a horrendous two weeks!!). The only thing that alleviated them was oral steroids; antihistamines (even double doses of fexafenadine) did nothing). After this dragging on for three months, I finally met with a lovely sympathetic NHS GP who referred me to dermatology after she saw the hives ravaging my body and, after attending dermatology 5 months later (waiting list) I got a diagnosis of urticarial vasculitis (the non-hypocomplementemic type which affects my skin only). No known cause, just one of those weird autoimmune things that can come on in your mid-forties. I was put on the correct meds and have been fine ever since. I would insist on a face-to-face appointment with the GP if things don’t clear up for you, so they can see how bad it is and how debilitating it is for your life. It was only me standing crying at the GP’s reception and down the phone that got any results.

Edited

This sounds so familiar. Which meds have worked for you ?

NCTDN · 12/10/2025 10:37

I also think it’s interesting how many have said the link with low vitamin d and iron. Both of mine are low too.

TinderFan · 12/10/2025 10:40

NCTDN · 12/10/2025 10:35

This sounds so familiar. Which meds have worked for you ?

Hydroxychloroquine! It’s been a godsend. The dermatologist prescribed it after a biopsy on two fresh hives confirmed the urticarial vasculitis diagnosis. Was initially on 400mg daily but now on 200mg and not had an actual flare up for 18 months 🤞🏼 (bar a few hives after I stupidly spent too long in a hot tub last year 🙄).

cakedup · 13/10/2025 22:48

NCTDN · 10/10/2025 22:32

Has this worked for you ?

No I don't suffer from hives but both ds and my step ds do. DS finds fexofenidine works for him. Omalizumbab improved step ds symptoms about 90% and by all accounts this was unusual...in that for majority it sees a complete cure.

aloris · 14/10/2025 05:01

I get hives when my Hashimoto's flares. I see an allergist for it. I'm on a daily antihistamine regimen with stronger antihistamines subbed in when I have a flare. Some people have to take stronger medicine. I have a relative (by marriage) who has mast cell activation syndrome and had to deal with a lot of hives (and other worrying symptoms) until they sorted it all out. Hives are not necessarily just because you are allergic to a food or detergent. There are other causes.

Calmomiletea · 14/10/2025 05:28

Try lorotadine, or a different antihistamine. Also, nettle tea acts as a natural antihistamine.

You have my sympathies - I have developed a pregnancy related rash that has spread almost over my whole torso.

JMSA · 14/10/2025 07:59

I honestly thought you’d got naked in your workplace! 😳
You poor thing, that sounds unbearable. I definitely echo what the others are saying about going to the doctor, and I hope it eases soon x

buffybots · 14/10/2025 08:10

AussieManque · 01/09/2025 11:31

Thanks, you mean like xolair? I know it's very expensive so no wonder they aren't handing it out.

I don't like the look of the potential side effects - including cancer which you don't usually see as a listed side effect for medication! Also hair loss which is something I've suffered in the past and have no desire to repeat.

I'm on a couple of chronic hives fb groups and it seems like results are hit and miss for those who do use xolair. Glad it works for you though.

I’m on Xolair
the increased cancer risk is tiny, it’s something like it says it doubles but in reality it means 2 in 1000 instead of 1. No hair loss for me and I’ve suffered from it before
its been life changing

New posts on this thread. Refresh page
Swipe left for the next trending thread