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Thread 14: To feel disappointed after reading this in The Observer about the author and her husband from The Salt Path book and film?

1000 replies

DisappointedReader · 09/08/2025 23:11

The Observer's original exposé: The real Salt Path: how a blockbuster book and film were ...

The 13 Observer items currently available on their online 'The real Salt Path' page: The real Salt Path | The Observer

3 more from The Observer:

‘Hope is extinguished’: CBD patients respond to Salt Path...

The real Salt Path | The Observer (The Slow Newscast)

‘We thought: it can’t be the Salt Path couple – they’d ha...

Raynor Winn/Sally Walker's statement: Raynor Winn

Thread One ^www.mumsnet.com/talk/amibeingunreasonable/5368194-to-feel-disappointed-after-reading-this-in-the-observer-about-the-author-and-her-husband-from-the-salt-path-book-and-film?^

Threads 2-11: Links all in the OP of Thread 12

Thread 12: https://www.mumsnet.com/talk/am_i_being_unreasonable/5384574-thread-12-to-feel-disappointed-after-reading-this-in-the-observer-about-the-author-and-her-husband-from-the-salt-path-book-and-film?

Thread 13: https://www.mumsnet.com/talk/am_i_being_unreasonable/5386458-thread-13-to-feel-disappointed-after-reading-this-in-the-observer-about-the-author-and-her-husband-from-the-salt-path-book-and-film?

New posters joining us in the genuine spirit of our civil discourse welcome. It would be helpful to read at least some of the Observer items above before posting. There are currently 16 interesting items on The Observer website and linked to above.

To all - Please be extremely cautious when it comes to naming or implicating people and addresses not in the public eye or with no direct connection to the story, and around the understandable health speculations, especially where details are unclear or still emerging. Please do not engage with visitors who seem to have their own agenda and seek to derail. Avoid @'ing and quoting them as - from experience - this will only encourage them back to the threads. We have done amazingly well together for thirteen very interesting, very serious and very silly threads so far. I can't be here as much as I'd like so all help with keeping our discussion walking along in our usual reasonable and respectful fashion is very welcome.

Are we all becoming Hyperglycaemic from all the fudge?
Have shares in Cadbury's gone up?
Can we remain cheerful in the face of such shameless glumwashing?
Will I need to fill up with much petrol this thread for the drive-by scoldings?
Will our Chloe H get exclusive interviews with the disgruntled peregrine, tortoise and Hollywood rabbits?
What has our Simon A got to say about this, preferably in verse?

Keep to the path. No saltiness. May the fudge be with you.

The real Salt Path: how a blockbuster book and film were ...

The real Salt Path: how a blockbuster book and film were ...

Penniless and homeless, the Winns found fame and fortune with the story of their 630-mile walk to salvation. We can reveal that the truth behind it is ve...

https://observer.co.uk/news/national/article/the-real-salt-path-how-the-couple-behind-a-bestseller-left-a-trail-of-debt-and-deceit

OP posts:
Thread gallery
65
candycane222 · 11/08/2025 15:49

PullTheBricksDown · 11/08/2025 13:55

@TurraeaFloribunda
there was speculation on the last thread about Moth having a brain tumour because SW writes that the consultant talks about an MRI and “brain mass”. The consultant will have been referring to an MRI to see if there is any loss of brain mass due to CBD. It is sometimes possible to see shrinkage in parts of the brain in the brains of people with CBD.

This is the very last chapter of Landlines, and my memory of it is that the consultant at that appointment talks not in terms of shrinkage, but of a mass showing in a previous scan that's now not there on this scan. However, I'm out today and don't have my copy with me (!) and I would want to be sure of that. I'll check when I get home later and post then.

I've commented before, though, about how that whole passage presents the consultant in question in way that's totally out of line with anything I've ever experienced in a hospital consultation (and I've had a fair few). Saying 'what do you think you'll see? What would you like to see?' is game show host behaviour, not what consultants do in a serious appointment. For that reason alone I personally think a lot of this is fabricated for narrative purposes. Any actual consultant would be calling their colleagues in to look at this unheard of clinical finding and thinking about how soon they can get it published in a medical journal.

I'd also add, for now, that the 2019 letter that RW shared mentions doubts about the diagnosis - that his stability means 'it may be an even more unusual disorder'. In other words, the clinician is speculating that it's so 'atypical' as a form of CBD that it may be something else altogether. I think that alone makes space for discussion.

If i was in moths shoes I'd be pursuing that line if enquiry (even using my own funds if that sped things up), in case the alternative even more unusual diagnosis pointed to something with treatment and longer life expectancy.

But maybe they are completely confident that whatever moth has , they know how to manage it effectively and don't feel medical help would offer any benefit?

But it's moth in moths shoes and not me.

Catwith69lives · 11/08/2025 15:51

Interesting comment on FB about Lee Abbey near Lynton which featured in TSP as an expensive and unwelcoming Christian refuge;

Lee Abbey near Lynton also slated as expensive Christian retreat centre. When I stayed there I and asked about what had been written. The manager told me that Lee has a bursary and if they had called in and there was space they would have been offered a room, and food. If no room be offered facilities to shower and a meal.
The email.sent to Rae explaining this was not responded to.

crossedlines · 11/08/2025 15:51

TurraeaFloribunda · 11/08/2025 15:43

@Hyenana an MRI to see if there is any loss of brain mass is standard for CBD. I think we can be sure in the context that that is what the consultant was referring too. Plus I’m sure SW would have got a whole new story out of a previously undiagnosed brain tumour 😂 He is talking about brain mass not a mass in the brain.

@DisappointedReader I think the book would have caused just as much damage by giving false hope to CBD sufferers even if SW had said he had a slow moving form of CBD so it is irrelevant in that sense. It is the claim that walking has reversed Moth’s symptoms that has caused the damage. PRH needs to take some responsibility for not checking whether her claims about neuroplasticity and the normal DaTscan are scientifically valid.

CH asked 10 neurologists whether it is possible for someone with CBD to survive 18 years. They all said no. Note none of them suggested “indolent CBD”. I suspect because it’s not a diagnosis anyone has been given before…

I would be surprised if there was not a diagnosis of some kind before 2015. Moth had been having in depth neurological tests since 2011. It appears that Parkinson’s had been ruled out by 2015. CBD is an atypical Parkinsonism. I think it is likely the neurologist will have tried Levodopa to rule out Parkinson’s before arriving at a diagnosis of CBD (Parkinson’s responds to the drug, CBD doesn’t). If there were a diagnosis before 2015, as I have said before, I doubt it was of indolent CBD because it would have been too soon to know that the disease was slow moving and I’m pretty sure no one was ever diagnosed with that prior to Moth!

TBF, there is a potential medical explanation for Moth being told incorrectly that he had only months to live (based on something he said in an interview), which would also explain why the allegedly normal DaTScan was ordered, but I don’t want to share it and give SW ideas! 😂

Moth appears (from the letters) to have been seen by the same consultant at a specialist hospital over many years who is still standing by his diagnosis of CBS in the 2025 letter. The normal DaTscan is very strange but the consultant hasn’t changed his diagnosis 🤷‍♀️ I think it’s likely his interpretation of the conversation about the normal scan might be very different from SW’s account…

TBF, he does consider it could be something different but there really isn’t a good option it could be. As I understand the letter, he is considering whether Moth has a previously unseen genetic cause for CBS/CBD. There is a genetic link to CBD.

I think everyone is pouring over whether MothRay have lied about Moth’s ill health but I think it more likely that the exaggerations and (potentially) lies have been about his recovery.

TBF, there is a potential medical explanation for Moth being told incorrectly that he had only months to live (based on something he said in an interview), which would also explain why the allegedly normal DaTScan was ordered, but I don’t want to share it and give SW ideas! 😂

Cue Sally scouring more medical research papers, and scrutinising past interviews 😂

Hyenana · 11/08/2025 15:52

AldoGordo · 11/08/2025 15:41

Well, we know Tim was perfectly able to do film PR and go to screenings this year so it would be hard to spin that yarn of a new terrible disease requiring urgent treatment. Though I suspect the heart condition would be introduced.

But the events of OWH are supposed to have happened before that, weren't they?
When did Sally do her CtC walk, was it last winter?

Tealeaf3 · 11/08/2025 15:54

Frenchsocks · 11/08/2025 10:12

I don't know how to quote anybody, I'm sorry, I have been thinking about what some people were speculating about yesterday evening. It was noted that a nephew had posted some negative comments about the Winn's which have since been removed.
People were wondering why no other relatives or friends have come forward with stories to tell,
I wonder if they are being given hush money, perhaps a payment and they sign a non disclosure clause.
Also, has anybody contacted trading standards? I had a little look at online information, it seemed to say that publishers can be held accountable for false advertising, I might have got this wrong, maybe someone here has knowledge of this.

I doubt they’ve been paid hush money - more likely that they just want to keep a low profile and don’t fancy being doorstepped by journalists. Someone in my family has done some awful things, and I might speak about it to friends but if it came out in the National press I think I’d rather say nothing- there’s the chance that whatever you say to a journalist will be sensationalised/ taken out of context (have experienced this unfortunately) I imagine their wider family has discussed this and made a collective decision to keep quiet.- still family despite anything Raymoth have done.

Hyenana · 11/08/2025 16:02

TurraeaFloribunda · 11/08/2025 15:43

@Hyenana an MRI to see if there is any loss of brain mass is standard for CBD. I think we can be sure in the context that that is what the consultant was referring too. Plus I’m sure SW would have got a whole new story out of a previously undiagnosed brain tumour 😂 He is talking about brain mass not a mass in the brain.

@DisappointedReader I think the book would have caused just as much damage by giving false hope to CBD sufferers even if SW had said he had a slow moving form of CBD so it is irrelevant in that sense. It is the claim that walking has reversed Moth’s symptoms that has caused the damage. PRH needs to take some responsibility for not checking whether her claims about neuroplasticity and the normal DaTscan are scientifically valid.

CH asked 10 neurologists whether it is possible for someone with CBD to survive 18 years. They all said no. Note none of them suggested “indolent CBD”. I suspect because it’s not a diagnosis anyone has been given before…

I would be surprised if there was not a diagnosis of some kind before 2015. Moth had been having in depth neurological tests since 2011. It appears that Parkinson’s had been ruled out by 2015. CBD is an atypical Parkinsonism. I think it is likely the neurologist will have tried Levodopa to rule out Parkinson’s before arriving at a diagnosis of CBD (Parkinson’s responds to the drug, CBD doesn’t). If there were a diagnosis before 2015, as I have said before, I doubt it was of indolent CBD because it would have been too soon to know that the disease was slow moving and I’m pretty sure no one was ever diagnosed with that prior to Moth!

TBF, there is a potential medical explanation for Moth being told incorrectly that he had only months to live (based on something he said in an interview), which would also explain why the allegedly normal DaTScan was ordered, but I don’t want to share it and give SW ideas! 😂

Moth appears (from the letters) to have been seen by the same consultant at a specialist hospital over many years who is still standing by his diagnosis of CBS in the 2025 letter. The normal DaTscan is very strange but the consultant hasn’t changed his diagnosis 🤷‍♀️ I think it’s likely his interpretation of the conversation about the normal scan might be very different from SW’s account…

TBF, he does consider it could be something different but there really isn’t a good option it could be. As I understand the letter, he is considering whether Moth has a previously unseen genetic cause for CBS/CBD. There is a genetic link to CBD.

I think everyone is pouring over whether MothRay have lied about Moth’s ill health but I think it more likely that the exaggerations and (potentially) lies have been about his recovery.

I think we can be sure in the context that that is what the consultant was referring too.

The fictional consultant that talks like a game show host you mean? 🙄
He says what the author wants him to say - we are NOT talking about a real doctor's letter here...

AldoGordo · 11/08/2025 16:05

Regarding the "walking in nature as cure for Moth" claims in the books, if this really were genuine, it strikes me as unusual that they've not actually done a huge amount of walking in the space of 12 years.

Between 2013-2015 they have walked the SWCP which, according to RW, took them just under 100 days in two legs.

2017 IG photos suggest they spent a couple of weeks in Snowdonia and Pennines but whether that was walking daily is unknown.

In 2019 (but likely 2017) they walked for about a week to 10 days in Iceland, and questionable how much of that involved off road vehicle.

In 2021 they spend 4 months walking, cycling and taxi-ing from Shiegra (nr Cape Wrath) to the South Coast.

So in 12 years they've walked (and cycled) no more than 8 months, unless they've been going off on other long distance walks that they haven't mentioned in interviews or written about, which seems unlikely. And if they have, when would they fit them in between writing books, doing PR, studying a degree and rewilding a farm?

The questions then are: why so little long distance walking if this supposedly helps allegviate Tim's symptoms? Why not live that lifestyle permanently after getting the resources from TSP success?

Stoufer · 11/08/2025 16:12

Hyenana · 11/08/2025 14:24

There are two things going on in that passage:

  1. the recent Datscan showing a normal reading, when the previous one was abnormal
  2. "the sizeable brain mass shown on your recent MRI scan" - which sounds like a thing that has been newly found, not one that has disappeared. The doctor then describes this as "a very different result" and shortly after that the description of the actual scene stops and a lot of reminiscing starts.

That led me to the conclusion that this is a sort of disguised hint within a cliffhanger that although all seems well, it might not actually be so - and we do know that Moth is still presented as very ill in the following book, so this can't be the miracle cure scene that ends the whole story.

And to be absolutely clear, I am talking about events in a largely fictional narrative here, not someone's true health situation, because that is not what these books are about.

I’m a bit behind on the thread, sorry!

Might the phrase ‘sizeable brain mass’ have been a bit confusingly applied in the passage shown in the photo? I think one understanding of ‘sizeable brain mass’ might be a large tumour - but I wonder if what SW was meaning to say was that the consultant was saying there was a good level of brain mass (set in context where in (some?) neurodegenerative disorders there may be shrinkage of overall brain mass, shrinkage obviously being a negative thing), where the good (sizeable) level of brain mass (ie no shrinkage) is actually a positive, and confirms the more recent dat scan implication as ‘normal’. And both MRI and more recent day scan would then be in contrast with earlier dat scan that looked abnormal.

So - could be misuse / ambiguous use of medical terminology - either by the consultant (as reported by SW), or by SW, when she is trying to explain it. It may have been innocently done?

ps - just a lay-person, not a medic :)

Catwith69lives · 11/08/2025 16:16

AldoGordo · 11/08/2025 16:05

Regarding the "walking in nature as cure for Moth" claims in the books, if this really were genuine, it strikes me as unusual that they've not actually done a huge amount of walking in the space of 12 years.

Between 2013-2015 they have walked the SWCP which, according to RW, took them just under 100 days in two legs.

2017 IG photos suggest they spent a couple of weeks in Snowdonia and Pennines but whether that was walking daily is unknown.

In 2019 (but likely 2017) they walked for about a week to 10 days in Iceland, and questionable how much of that involved off road vehicle.

In 2021 they spend 4 months walking, cycling and taxi-ing from Shiegra (nr Cape Wrath) to the South Coast.

So in 12 years they've walked (and cycled) no more than 8 months, unless they've been going off on other long distance walks that they haven't mentioned in interviews or written about, which seems unlikely. And if they have, when would they fit them in between writing books, doing PR, studying a degree and rewilding a farm?

The questions then are: why so little long distance walking if this supposedly helps allegviate Tim's symptoms? Why not live that lifestyle permanently after getting the resources from TSP success?

Could it be that since the publication of TSP in 2018 (and part from during lockdown), SW has spent a lot more time
a) doing interviews with journalists about the books she has written
b) attending literary festivals
c) going on tour with Gigspanner and their merry band
than walking.

Why? Perhaps because the monetary rewards of writing bestsellers outweigh the alleged health benefits of walking!

Tealeaf3 · 11/08/2025 16:20

Tealeaf3 · 11/08/2025 15:54

I doubt they’ve been paid hush money - more likely that they just want to keep a low profile and don’t fancy being doorstepped by journalists. Someone in my family has done some awful things, and I might speak about it to friends but if it came out in the National press I think I’d rather say nothing- there’s the chance that whatever you say to a journalist will be sensationalised/ taken out of context (have experienced this unfortunately) I imagine their wider family has discussed this and made a collective decision to keep quiet.- still family despite anything Raymoth have done.

To add to previous post- if they are a half decent family they will be concerned about the effect this is having on Raymoths children and won’t want to add fuel to the fire- I suspect the nephew impulsively made that post, then thought better of it when he considered the consequences. Unless you want to completely cut someone out of your life forever, you’re not going to go to the press with negative stories about them. The question I would be asking though is why no friends or family have come out to SUPPORT them in the media ( as far as I know).

PrettyDamnCosmic · 11/08/2025 16:26

Stoufer · 11/08/2025 16:12

I’m a bit behind on the thread, sorry!

Might the phrase ‘sizeable brain mass’ have been a bit confusingly applied in the passage shown in the photo? I think one understanding of ‘sizeable brain mass’ might be a large tumour - but I wonder if what SW was meaning to say was that the consultant was saying there was a good level of brain mass (set in context where in (some?) neurodegenerative disorders there may be shrinkage of overall brain mass, shrinkage obviously being a negative thing), where the good (sizeable) level of brain mass (ie no shrinkage) is actually a positive, and confirms the more recent dat scan implication as ‘normal’. And both MRI and more recent day scan would then be in contrast with earlier dat scan that looked abnormal.

So - could be misuse / ambiguous use of medical terminology - either by the consultant (as reported by SW), or by SW, when she is trying to explain it. It may have been innocently done?

ps - just a lay-person, not a medic :)

Patients notoriously mishear & misunderstand what they are told by HCPs all the time. That's why it is so good nowadays that when someone is seen by a specialist that they are afterwards sent a copy of the letter to the GP so don't have to rely on memory.

AldoGordo · 11/08/2025 16:30

Hyenana · 11/08/2025 15:52

But the events of OWH are supposed to have happened before that, weren't they?
When did Sally do her CtC walk, was it last winter?

Nope, this January. Unless she did another last year. She posted about it in March.

AldoGordo · 11/08/2025 16:33

Catwith69lives · 11/08/2025 16:16

Could it be that since the publication of TSP in 2018 (and part from during lockdown), SW has spent a lot more time
a) doing interviews with journalists about the books she has written
b) attending literary festivals
c) going on tour with Gigspanner and their merry band
than walking.

Why? Perhaps because the monetary rewards of writing bestsellers outweigh the alleged health benefits of walking!

Edited

Indeed. And perhaps there was no miracle cure.

indignantfrother · 11/08/2025 16:36

PrettyDamnCosmic · 11/08/2025 16:26

Patients notoriously mishear & misunderstand what they are told by HCPs all the time. That's why it is so good nowadays that when someone is seen by a specialist that they are afterwards sent a copy of the letter to the GP so don't have to rely on memory.

But only as long as the letter is written in good clear language that a non-medic can understand!

Lostinnewyork · 11/08/2025 16:41

Surely you would make sure you understood before you made claims in a non fiction book

Hyenana · 11/08/2025 16:41

Stoufer · 11/08/2025 16:12

I’m a bit behind on the thread, sorry!

Might the phrase ‘sizeable brain mass’ have been a bit confusingly applied in the passage shown in the photo? I think one understanding of ‘sizeable brain mass’ might be a large tumour - but I wonder if what SW was meaning to say was that the consultant was saying there was a good level of brain mass (set in context where in (some?) neurodegenerative disorders there may be shrinkage of overall brain mass, shrinkage obviously being a negative thing), where the good (sizeable) level of brain mass (ie no shrinkage) is actually a positive, and confirms the more recent dat scan implication as ‘normal’. And both MRI and more recent day scan would then be in contrast with earlier dat scan that looked abnormal.

So - could be misuse / ambiguous use of medical terminology - either by the consultant (as reported by SW), or by SW, when she is trying to explain it. It may have been innocently done?

ps - just a lay-person, not a medic :)

I think it could possibly 'mean' either a tumor or a re-growing of the brain - although that second option would be an even bigger miracle than the reversal of the Datscan results (which might not be so miraculous at all), and I think the phrase "the sizeable brain mass" points more to the first option.

Also, it might be unintentionally or intentionally ambiguous - Sally Walker is an unreliable narrator in many ways.

GogleddCymru · 11/08/2025 16:44

Hyenana · 11/08/2025 15:17

Thanks, I had already found it and posted a rather snarky review about it yesterday at 21:33 - you even gave a ❤ to that post 😉

But seriously, their take on the story was so ignorant and arrogant it makes me despair...

I posted this in answer to your original query, then went back to resume catching up and saw your (and others') responses, including yours ... I did wholeheartedly agree with your 'snarky review', the whole segment just totally missed the point!

AzureStaffy · 11/08/2025 16:48

Apropos of all the issues. The public went into WH Smith and paid their £10.99 in good faith that they were getting a true story. The WalkerWinns have put themselves out there all over the place for the past 7 years and presumably enjoyed the attention when it was agreeing with them. As illness is a big part of the story, they will have to put up with it being questioned; questioning which has been very fair so far. Those who bought the books and bought a ticket to the film can justifiably think they've been conned.

Hyenana · 11/08/2025 17:07

AldoGordo · 11/08/2025 16:30

Nope, this January. Unless she did another last year. She posted about it in March.

That's what I meant with 'last winter' because that's how she referred to it in the Muddy Stilettos interview, I just wasn't sure if it was the 2024 or 2025 part of it.

Anyway, an OWS synopsis describes that "Setbacks in his health have led him to believe his decline is now inevitable" and "Moth needing space to come to terms with what's happening to him", so it's not me who is claiming that he is seriously ill at that particular time, and certainly not able to attend film events - I just speculated on the details.
But then there is no hint of treatment in that synopsis, so I really might have gone off on a tangent here, although something must have happened that turned the 'inevitable decline' around for the umpteenth time.

But I still think my version of why she sets off on her own works better for retaining the TSP version of a loving caring wife who can't bear to be separated from her ill husband for even one minute 😇

On Winter Hill

Buy On Winter Hill (9780241484586): NHBS - Raynor Winn, Michael Joseph

https://www.nhbs.com/on-winter-hill-book

AldoGordo · 11/08/2025 17:18

Hyenana · 11/08/2025 17:07

That's what I meant with 'last winter' because that's how she referred to it in the Muddy Stilettos interview, I just wasn't sure if it was the 2024 or 2025 part of it.

Anyway, an OWS synopsis describes that "Setbacks in his health have led him to believe his decline is now inevitable" and "Moth needing space to come to terms with what's happening to him", so it's not me who is claiming that he is seriously ill at that particular time, and certainly not able to attend film events - I just speculated on the details.
But then there is no hint of treatment in that synopsis, so I really might have gone off on a tangent here, although something must have happened that turned the 'inevitable decline' around for the umpteenth time.

But I still think my version of why she sets off on her own works better for retaining the TSP version of a loving caring wife who can't bear to be separated from her ill husband for even one minute 😇

It could be bringing in the cardiac problem that is mentioned in the Feb 2025 medical letter

onlyinitforthefudge · 11/08/2025 17:33

I am wondering how somebody that says himself he cannot go to the loo unaided, managed when Sal went up North for her big walk up the hill, he must have been bursting. I know I am going to have to be a traitor and read the new book hopefully I can order from the Library and maybe I can offset it by donating to the PSP Charity as well.

indignantfrother · 11/08/2025 17:35

I have tried hard to avoid speculating about what TWs diagnosis might actually be, whilst all the time stressing that a consultant neurologist will know a lot more about neurology than I, a non-neurologist, does!

However I think all gloves are off when it comes to talking about TWs health -- the Walkers have made millions out of doing so, so they have no grounds for complaint if other people do too.

And like other PPs above, the claims that walking offers a cure are what really troubles me and lands us firmly in snake-oil-salesman territory.

I've hesitated before telling the following, but here goes:

12 years ago I was diagnosed with a type of cancer that, whilst not rare, is often diagnosed late as symptoms are vague. Less than half the people diagnosed with this are still alive 5 years later, and another half of those survivors die before the 10 year mark. (Yes, I was shit scared!)

But my case is atypical. I had symptoms early - atypical - and they were acted on very quickly, meaning that the cancer was not advanced when found - atypical. And so I'm still alive, and even reasonably healthy!, which puts me in an overall minority for this cancer after all this time - so once again, atypical.

I am eternally grateful to the NHS and my consultant for saving my life.

But I could write a book about things I've done since my diagnosis. Learning to play an instrument cured me! Or maybe the cure was all the holidays, or losing some weight, or taking early retirement!

Of course the "cure" was none of those things. My case was atypical and I've just been very, very lucky. I'd never suggest otherwise. I don't even try to offer hope to other people with the same diagnosis as I had as my case is ATYPICAL (as I may have mentioned!) and it would be cruel to give false hope. Yes, I had cancer, and I have copies of the histology reports to prove it - but that's the way the story went for me, it's not going to extrapolate to other people unless they are also very, very lucky.

The Walkers, with TWs ATYPICAL presentation and putative diagnosis have done the opposite and I find that really immoral, if not downright cruel.

AldoGordo · 11/08/2025 17:44

indignantfrother · 11/08/2025 17:35

I have tried hard to avoid speculating about what TWs diagnosis might actually be, whilst all the time stressing that a consultant neurologist will know a lot more about neurology than I, a non-neurologist, does!

However I think all gloves are off when it comes to talking about TWs health -- the Walkers have made millions out of doing so, so they have no grounds for complaint if other people do too.

And like other PPs above, the claims that walking offers a cure are what really troubles me and lands us firmly in snake-oil-salesman territory.

I've hesitated before telling the following, but here goes:

12 years ago I was diagnosed with a type of cancer that, whilst not rare, is often diagnosed late as symptoms are vague. Less than half the people diagnosed with this are still alive 5 years later, and another half of those survivors die before the 10 year mark. (Yes, I was shit scared!)

But my case is atypical. I had symptoms early - atypical - and they were acted on very quickly, meaning that the cancer was not advanced when found - atypical. And so I'm still alive, and even reasonably healthy!, which puts me in an overall minority for this cancer after all this time - so once again, atypical.

I am eternally grateful to the NHS and my consultant for saving my life.

But I could write a book about things I've done since my diagnosis. Learning to play an instrument cured me! Or maybe the cure was all the holidays, or losing some weight, or taking early retirement!

Of course the "cure" was none of those things. My case was atypical and I've just been very, very lucky. I'd never suggest otherwise. I don't even try to offer hope to other people with the same diagnosis as I had as my case is ATYPICAL (as I may have mentioned!) and it would be cruel to give false hope. Yes, I had cancer, and I have copies of the histology reports to prove it - but that's the way the story went for me, it's not going to extrapolate to other people unless they are also very, very lucky.

The Walkers, with TWs ATYPICAL presentation and putative diagnosis have done the opposite and I find that really immoral, if not downright cruel.

Thank you for sharing from your deeply personal perspective.

PullTheBricksDown · 11/08/2025 17:46

Glad you are still with us and able to pitch in on this whole debacle @indignantfrother . Luck is the element of all this that science can't account for and it sounds like you had it! But this is exactly why science deals in statistics and numbers, and those are pretty stark for CBD. So any major departure from those numbers, like Moth, is up for discussion. Even the neurologists are baffled by him, if that helps!

Featherbeds · 11/08/2025 17:54

@indignantfrother, we eagerly await your book on the curative properties of learning a musical instrument. If you made it the bagpipes, you could also add a walking and nature angle, because you have to climb a small mountain outside your picturesque to be able to practice in peace…

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