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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Trapped caring for ageing parent

61 replies

Dappy777 · 07/08/2025 15:16

I'm worried about my brother and could do with some outside perspective. For context, he's 48 and I'm 45. He lives with our 78-year-old mother in the family home. I live 200 miles away. Brother had MH problems in his teens and 20s which held him back and stopped him working and forming relationships. When he was 29, my dad died. I had moved away by then with my boyfriend (now husband). My mother had been with my dad since they were 15 and was totally broken (anti-depressants, constant crying, near breakdown). She sort of clung to my brother, and it suited both of them to carry on living together – he didn't have to worry about rent or bills, and she got company and support.

Unfortunately, as the years have gone by they've developed a pretty toxic/co-dependent relationship. In his 30s, he grew more confident and did a bit of dating. I know there were a couple of women he could have built serious relationships with, but he let them go, partly (I think) because he felt responsible for my mother. It isn't all one sided, however. He's an avoidant, introverted, depressed sort of character without any interest in a career. Taking care of my mother became an excuse. He did an MA in literature at the local uni and could have been a teacher, but I know he'd have hated it. He isn't on the spectrum btw. That much I'm sure of. I'd say he had a full-blown avoidant personality disorder in his teens (which he still struggles with).

The older he's got, however, the more ashamed he feels, and the shame reinforces the avoidance. He's never really worked and just makes do with side hussles. But I'm worried about the future. He's 48 and she's 78. As he moves into his 50s and she moves into her 80s I can see things getting messy. He doesn't speak to the neighbours (mainly because of shame) and has lost touch with all his friends (again because of shame). If my mother gets ill and has to go into a home, I'm not sure what rights he'd have. Would the LA take the house and sell it? Would he be homeless? Even if my mother dies suddenly and he gets his inheritance, he'll be a 50-something man with no partner, no friends, no job and no experience of surviving on his own.

I was speaking to someone about all this the other day. She said she used to work in social care and often dealt with middle-aged men like him – men who'd never been officially diagnosed with anything, and never had therapy or claimed benefits. They'd just lived with their parents in the family home and hidden away from the world. Then the parents die and everything falls apart. They've often got poor physical health, no life skills, no work experience, and no social life. I've tried talking to them, but they've got their heads in the sand. I know my brother would rather have moved away, but I don't think he ever felt he could, and now he feels trapped. In reality, he is trapped. I wish I could do more tbh, but I'm 200 miles away with three kids and a stressed husband. Whenever I've tried talking to my mother she just cries. And my brother doesn't want to know.

OP posts:
KindnessIsKey123 · 07/08/2025 19:49

Your mother who owns the house needs to put the house in trust for the benefit of your brother. We have a similar situation with my grandma and uncle, he was very slightly disabled but similar in a lot of words to your brother here.The house was put in trust in mine and my brother’s names for the benefit of my uncle for his life. Speak to a solicitor about this.

GreenZebraStripes · 07/08/2025 19:52

Dappy777 · 07/08/2025 15:16

I'm worried about my brother and could do with some outside perspective. For context, he's 48 and I'm 45. He lives with our 78-year-old mother in the family home. I live 200 miles away. Brother had MH problems in his teens and 20s which held him back and stopped him working and forming relationships. When he was 29, my dad died. I had moved away by then with my boyfriend (now husband). My mother had been with my dad since they were 15 and was totally broken (anti-depressants, constant crying, near breakdown). She sort of clung to my brother, and it suited both of them to carry on living together – he didn't have to worry about rent or bills, and she got company and support.

Unfortunately, as the years have gone by they've developed a pretty toxic/co-dependent relationship. In his 30s, he grew more confident and did a bit of dating. I know there were a couple of women he could have built serious relationships with, but he let them go, partly (I think) because he felt responsible for my mother. It isn't all one sided, however. He's an avoidant, introverted, depressed sort of character without any interest in a career. Taking care of my mother became an excuse. He did an MA in literature at the local uni and could have been a teacher, but I know he'd have hated it. He isn't on the spectrum btw. That much I'm sure of. I'd say he had a full-blown avoidant personality disorder in his teens (which he still struggles with).

The older he's got, however, the more ashamed he feels, and the shame reinforces the avoidance. He's never really worked and just makes do with side hussles. But I'm worried about the future. He's 48 and she's 78. As he moves into his 50s and she moves into her 80s I can see things getting messy. He doesn't speak to the neighbours (mainly because of shame) and has lost touch with all his friends (again because of shame). If my mother gets ill and has to go into a home, I'm not sure what rights he'd have. Would the LA take the house and sell it? Would he be homeless? Even if my mother dies suddenly and he gets his inheritance, he'll be a 50-something man with no partner, no friends, no job and no experience of surviving on his own.

I was speaking to someone about all this the other day. She said she used to work in social care and often dealt with middle-aged men like him – men who'd never been officially diagnosed with anything, and never had therapy or claimed benefits. They'd just lived with their parents in the family home and hidden away from the world. Then the parents die and everything falls apart. They've often got poor physical health, no life skills, no work experience, and no social life. I've tried talking to them, but they've got their heads in the sand. I know my brother would rather have moved away, but I don't think he ever felt he could, and now he feels trapped. In reality, he is trapped. I wish I could do more tbh, but I'm 200 miles away with three kids and a stressed husband. Whenever I've tried talking to my mother she just cries. And my brother doesn't want to know.

She needs to put the house into a Trust so it cannot be used for care home fees. Please do this. My DB has severe mental health issue (but is able to live independently) so I get where you are coming from. Good luck.

KindnessIsKey123 · 07/08/2025 19:58

Dappy777 · 07/08/2025 18:52

My mother isn't ill or physically dependent. After my dad died she had a sort of breakdown and ended up on anti-depressants. She met my dad when she was very young and just couldn't cope without him. She's not a very worldly person. She went straight from her parents to living with my dad. She never built up any independence (never went away to university or lived in a house share or anything like that). Our family home is also fairly remote, and the thought of her living there on her own just seemed unimaginable. I have spoken to my husband about moving closer as she ages. His parents live in the same town, so it's likely he'll want to anyway.

As medicine advances, and we keep pushing the lifespan, adult children are going to find themselves trapped like this for longer and longer. Maybe some day we really will have drugs that can slow and reverse ageing (as some promise), but right now we're at a sort of tipping point where we can keep people alive longer but only in poor health. I have a relative, for example, who would certainly have died forty or fifty years ago, but thanks to statins and blood thinners and so on is still going in her late 80s.

You make an intelligent point here. My husband and I discus this occasionally. My mother-in-law sadly was caring for her own mother until she was 72- her mother passed away last year at 93. Young people these days (my generation) are vilified for waiting till mid to late thirties to have a child. But I know for definite that my son will not be age 70 caring for his aging parents. Medical advance is a wonderful, but being aged 70 caring still for an aging parent is a difficult prospect.

I posted earlier about having a look at putting the house in trust because that would protect your brother. What would really help, is if you could have a mental health professional assess him. I imagine if they can categorise him as something, then he will be very much protected in the law. Spoken as a practicing solicitor myself.

wizzywig · 07/08/2025 20:05

Another time Another place he'd be perfect for an arranged marriage nd to continue living with mum

LouisaJG · 07/08/2025 20:13

Dappy777 · 07/08/2025 17:46

Yes, I do think his life has been a waste tbh. I don't just mean career wise. I mean romantically as well. He could have made someone very happy. He's a good looking guy. He's also funny, interesting and emotionally intelligent. Had he wanted to, I think he'd have made a good teacher too – he's well read and very good with children. He had a lot to give the world.

It's not fair to 100% blame my mother. I do think she's partly to blame, and I know he felt (and still feels) he can't leave her. That in turn has meant deep feelings of shame, which led to avoidance and detachment. But he's also an introvert and a bit misanthropic (and lazy). I'm not sure how he feels about his life. And I'm not sure what sort of person he'd have been if he'd gone off to Australia in his early 20s before dad died. I suspect he regrets not having had a good, long-term relationship. I know they're not for everyone, and I'm glad society is more tolerant of the long-term single, and more accepting of those who opt out of kids and marriage, but he's quite a sensitive, emotional, arty sort of guy. Had he found the right person, I think he'd have been very happy. The cynicism and detachment are a mask. He's become that way because he's full of shame and because he's spent years avoiding people. Over time you get used to it and it becomes the norm.

Like your friend (maybe?) he's a shadow of the person he could have been. Not that there's a 'right' way to live your life of course. But it does seem so empty and unfulfilling – sexually, socially, romantically and creatively. He's had so little intimacy and fun, that's the sad thing.

Actually, the tragedy of his life is that he overcame his mental health problems too late. In his 20s he was crippled with social anxiety and probably had an avoidant personality disorder. In his 30s, he did a lot of (casual) dating, did an MA, took up hobbies, and grew in confidence. But by then he felt trapped, and that's how he's lived ever since. Had he left home at 18, my mother would have had to adapt to my father's death. Tbh I think he sort of gave up on life when he turned 40.

It’s lovely that you care about him, but I don’t think you’re helping him honestly by viewing his life as a waste and a tragedy. You’re making a lot of assumptions about what his life would have been if he had left home, but you don’t actually know they’re true. Plenty of people leave home for example without finding a successful long term relationship - as is often reflected on these boards.

In any case the past can’t be changed. I think you’re better off encouraging him to accept his life as it’s been, try and let go of the shame, and make the most of the time he has remaining by e.g. allowing himself to make connections with the neighbours etc, (and in an ideal world find his way into some sort of employment which I do think would help to build self-esteem?) It sounds a bit like he thinks he isn’t entitled to a social life, which simply isn’t true. Men do much worse things in the world than stay home and look after their mums. Think about all the abusive shits we hear about on here who would never dream of feeling that their past meant they weren’t entitled to a girlfriend and whatever else they wanted.

GreenZebraStripes · 07/08/2025 20:22

To add more to my post, I have a DB with severe MH (schizophenia) that developed in his 20s and relate to a lot of your feelings. I've not had children for non related health reasons so have possibly had more time to work through it. I tried a lot in my 20s and 30s to help DB, out of sense of injustice really and I suppose a degree of guilt (coming from a good place - I wanted him to have similar opportunities).

He wasn't very nice as a teenager and I once asked him why - he said he was jealous of me having better social skills. I do think that is possibly why men struggle more in leaving home- they don't have the same social skills (highly generalising and am talking about men with mental health issues that may be related to some kind of high functioning neurodivergence) and its also drummed into them to be strong and not talk about their struggles. My DB is the most sensitive soul, his lip will quiver if he feels vulnerable about something even while he is saying he doesn't care.

Anyway - back to the point - I tried as hard as I could and to be completely honest unless you can really commit to being there almost 24/7 it's extremely hard to make headway. Over the years I focused on creating the conditions/environment for him to be successful, which meant removing things that were barriers (terrible damp housing, the shadow of serious debts) and getting fundamental basics (a safe home in Nice area, a system where his bills are paid, manageable debts).

I would love to have done more for him socially (he has bad friends!) but that was hard to break - he is impulsive and I can see in a way why some people wouldn't like him. Instead I just treat him with kindness now - see him when I can, be caring and loving etc. That's definitely important OP, your role is family, not to live their life for them.

For a while I wondered what the point was - I felt like 40 was the point he would magically sort his life out. He didn't, he got worse in fact.

However a small miracle happened recently which is that he told me he paid his debts off. Now I don't imagine that he did this in a good way, he never paid a debt in his life without help, he probably sold stuff or something, but I felt like something that I'd been trying to impart on him had actually sunk in.

So, it's the small consistent things you do that make a difference.

I do think sorting out the fact of him never becoming homeless would take a huge weight off your mind - what would your dad have wanted for him OP? If you can get the house put into a 2 way trust with you and him then that would mean he can't suddenly be made homeless.

In terms of the looking back at the past, it sounds in a way like you are both sort of stuck there. I had some EMDR therapy recently and it helped me deal with some past traumas - it's been life changing in helping me let go and live more in the now. In the past CBT therapy has also helped (although takes a LOT of sessions for me - it took 20 sessions for me to realise that I just needed to stop comparing myself to other people).

What it means is that I'm better able to model behaviour to my DB - he will come out with things about the past and I can engage with them but I'm not triggered and can try and present him with a different perspective or way of resolving things while still being present. None of that has taken conscious effort, its just been a by product of having therapy myself.

ThreePointOneFourOneFiveNine · 07/08/2025 20:26

rickyrickygrimes · 07/08/2025 19:30

My understanding is that this only applies if the person doing the caring gave up their own house to take on the caring role. The OPs brother did not do this. But there might be ways round that.

My friend hadn’t given up her house to be the carer. It’s worth looking into to find out I think.

Dappy777 · 08/08/2025 09:41

LouisaJG · 07/08/2025 20:13

It’s lovely that you care about him, but I don’t think you’re helping him honestly by viewing his life as a waste and a tragedy. You’re making a lot of assumptions about what his life would have been if he had left home, but you don’t actually know they’re true. Plenty of people leave home for example without finding a successful long term relationship - as is often reflected on these boards.

In any case the past can’t be changed. I think you’re better off encouraging him to accept his life as it’s been, try and let go of the shame, and make the most of the time he has remaining by e.g. allowing himself to make connections with the neighbours etc, (and in an ideal world find his way into some sort of employment which I do think would help to build self-esteem?) It sounds a bit like he thinks he isn’t entitled to a social life, which simply isn’t true. Men do much worse things in the world than stay home and look after their mums. Think about all the abusive shits we hear about on here who would never dream of feeling that their past meant they weren’t entitled to a girlfriend and whatever else they wanted.

I agree. But in reality the abusive shits often take a kind of pride in being that way ("treat em mean keep 'em keen...I've never let no woman push me around, I always let 'em know where they stand" etc). They certainly feel less shame at having bullied and gas lit a woman than they'd feel if they lived at home with their mum.

OP posts:
rickyrickygrimes · 08/08/2025 14:58

@Dappy777

if you are looking for practical advice regarding your mothers situation / future care, the Elderly Parents board on here is really helpful.

Fraudornot · 08/08/2025 20:54

I do think it is worth thinking more deeply about autism and looking at masking. Such intense social anxiety that it impacts his ability to live life would be a red flag for me, hiding himself away and not interacting with others, even neighbours. Not being able to work at all - like why couldn’t he work somewhere even if minimum wage? There are quite a lot of things to me there that would flag overwhelm. Obviously he would need to want to persue that path but it might help with self understanding.

sunshine244 · 08/08/2025 21:45

I have a highly intelligent, empathetic, sensitive and anxious autistic son. One of his biggest issues is being overly sensitive to other people's emotions, reading into situations etc.

Extreme social anxiety is a very common issue for autistic people. Restrictive or repetitive interests is needed for an autism diagnosis but some people (especially AuDHD) have sequential interests so its perhaps less obvious. Psychology is a common interest too.

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