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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Could this be a form of Tourette’s?

29 replies

sharkattacka · 05/08/2025 15:41

Dd (7) does something continuously for a few weeks and then she’ll do something else, each time it’s completely compulsive and every few minutes.
it could be a scream, a word, a movement or just opening her mouth and shutting it or touching the floor every few steps.
At the moment it’s a very high pitched noice which goes right through me and even though I tell her to stop that, she doesn’t seem to know until after but the strange part is the way she’ll repeat it for weeks and then suddenly start a new compulsive repetitive motion.
She’s always done this.
Does this sound like Tourette’s?

OP posts:
Fraggeek · 08/08/2025 13:40

So we had our appointment Wednesday morning. My son has been diagnosed as having tourettes syndrome. On the milder side of the spectrum.
She also asked if he'd been diagnosed as autistic. Something we are awaiting assessment for. She took info regarding traits and will be writing a letter we can use when it comes to his assessment.

So for us, it have been confirmed. She said tics tend to get worse around 10 or onset of puberty and should get better from about 18+. Some may eventually have no tics, but others will always have some form of tic.
We have an open appointment in case they become much worse.

I would absolutely recommend booking that appointment.

Weepixie · 08/08/2025 19:13

@Fraggeek hi there, I just wanted to acknowledge the update about your son. It must be quite a relief to know for sure but at the same time I know how upsetting it can be. 💐

Harry12345 · 09/08/2025 00:17

My son did this and has asd

AleaEim · 29/08/2025 07:40

I used to do stuff like this as a kid, I just got diagnosed recently with Tourette’s at age 37. My advice is to ignore as much as possible as paying attention to tics makes them worse. If you feel it’s affecting her badly I would speak to a neurologist, they can diagnose and offer medication.

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