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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is the start of type 1 diabetes

551 replies

NeuroSpicyCat · 10/07/2025 00:11

Hand hold please.

My 13 year old son informed me tonight that he wet the bed last night.

This has never happened before.

His late father had Type 1 diabetes which started around this age.

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

He seems to have low mood also.

He's always been really thin.

My husband (his stepdad) is driving to A&E with him right now. I’m staying home with the other 4 children. (I can’t drive).

I’m autistic and scared. I’m so worried for him. AI said he is highly likely to be diagnosed given his symptoms and family history, and he’s likely to be urgently admitted to hospital.

Has anyone been in a similar situation?

OP posts:
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MeowCatPleaseMeowBack · 10/07/2025 12:36

AI said he is highly likely to be diagnosed given his symptoms and family history, and he’s likely to be urgently admitted to hospital.

Jesus Christ. As if doctors don't have enough to deal with.

Pickledpoppetpickle · 10/07/2025 12:37

I know several kids with it. It's treatable for most people with medication and dietary changes. I wouldn't have considered it an emergency unless he was having issues remaining conscious

FFS. Do not post about a condition you have ZERO understanding of. Type 1 diabetes is an autoimmune condition whereby a persons own body stops the production of insulin, rendering the pancreas useless. It can only be managed, not treated.

Anyone concerned about symptoms should not wait. When my son was diagnosed, I assumed he had a stomach bug my eldest was suffering with. Gut feeling told me to check it out. He was so far into DKA that I was told he would not have survived the night.

Type 1 is a serious condition which can quickly become life threatening. Sufferers and their carers will tell you there are days when you literally cheat death multiple times.

And Please stop peddling the lifestyle shite. Fuck all to do with lifestyle,

Anxiety17 · 10/07/2025 12:39

Amount of stupid posters on this thread. I’m T1D, had symptoms when I was diagnosed at 11 but wasn’t in DKA. even though I had hospital phobia they would not let me go home and immediately admitted me to the children’s ward after the GP diagnosis. It’s extremely serious when untreated.

OP, if it is diabetes the technological advances are incredible. It feels like a scary diagnosis, but day to day it’s very controllable and you get used to it. Thoughts with you

MarxistMags · 10/07/2025 12:40

Any updates about the child ?

Anxiety17 · 10/07/2025 12:44

Alondra · 10/07/2025 10:29

There is a very strict diet. They need to eat regularly 5-6 small meals a day with carbs being weighted and counted as they are slow released sugars. The proportion of carbs, vegetables and protein is given by a nutritionist who reviews the diet with the diabetes health team, depending on regular blood results.

Not all diabetes 1 are the same, some people are fortunate to control it with insulin, diet and exercise, with a small percentage so severely affected that only a dual kidney and pancreas transplant can offer a longer life.

This is bullshit, you don’t get a pancreas transplant to solve complications of type one diabetes, it’s a trial basis only thing at present and wouldn’t be given to those suffering with it for many years. Do people just come on these threads to run their mouths about information they’ve heard at the bus stop?

Alondra · 10/07/2025 12:57

Anxiety17 · 10/07/2025 12:44

This is bullshit, you don’t get a pancreas transplant to solve complications of type one diabetes, it’s a trial basis only thing at present and wouldn’t be given to those suffering with it for many years. Do people just come on these threads to run their mouths about information they’ve heard at the bus stop?

I didn't say pancreas. I said kidney and pancreas transplants because of type 1 diabetes. When insulin no longer works, the first major organ affected are the kidneys, leading to kidney failure. Failure that in severe cases leads to heart attacks and affects other organs.

I live in Australia and you only need to google kidney/pancreas transplant diabetes 1, if you don't believe me.

BTW, none of my posts are from googling. What I'm posting is from professional and personal experience.

blackpooolrock · 10/07/2025 13:05

I think it was a little unreasonable to take your son to A&E based off an AI diagnosis. The reason to call 111 is to talk to a healthcare professional who can will use their experience to help provide some kind of answer to what may have happened.

I do know someone who's son was taken into hospital and diagnosed as T1 but they were extremely ill when it came on. They get helicoptered into hospital he was so ill with it.

I this it's a big leap from a vague sore stomach to wetting the bed once to get them to A&E quickly thinking they are a type1.

AI is a dangerous tool. No one should be using it in this kind of scenario.

LSTMS30555 · 10/07/2025 13:35

NewishT1Mum · 10/07/2025 10:08

Great cue for me to share this petition after a little girl sadly recently did pass away due to her T1 being missed.

https://petition.parliament.uk/petitions/728677

Her family are fighting for it to be tested for more routinely. So many kids passed off as having a bug, UTI when actually they’re heading towards something really serious.

I’ve signed it

To think this is the start of type 1 diabetes
FourLove · 10/07/2025 13:45

I really wouldn't rely on AI for things like this, OP. It can be very , very wrong.
Fingers crossed that DS's investigation and treatment turn out well.

Blank1234 · 10/07/2025 13:57

Wow OP, you need to get some help for your anxiety. Your son has wet the bed once and you jump straight to type 1 diabetes! Instead of actually seeking the first port of call for medical advice (111), you jumped to dr google and scared yourself witless???

DuckbilledSplatterPuff · 10/07/2025 14:04

The hospital thought there was enough symptoms to test him. So you did the right thing.

It must be a huge worry for you but I just wanted to say wait for the diagnosis. I known two families with Type 1 children one went on to be a professional national sports person, the other very active in sports.. So their medical care and medicine meant that they could live very full, normal and active lives.
The advances in blood glucose monitors mean they have much more info about how to manage their condition. It's something schools are much more aware of these days.

So even if he does turn out to have it, its still a manageable condition. But in any case its good that you got him checked. I hope you get a good outcome and its not serious. Hope he's on the mend.

MsJemimaPuddleDuck · 10/07/2025 14:05

Blank1234 · 10/07/2025 13:57

Wow OP, you need to get some help for your anxiety. Your son has wet the bed once and you jump straight to type 1 diabetes! Instead of actually seeking the first port of call for medical advice (111), you jumped to dr google and scared yourself witless???

And you should get some help for your lack
of empathy.

BeltaLodaLife · 10/07/2025 14:07

Wrong thread

OchreSnail · 10/07/2025 14:21

steff13 · 10/07/2025 00:21

I know several kids with it. It's treatable for most people with medication and dietary changes. I wouldn't have considered it an emergency unless he was having issues remaining conscious.

AI is not helping your anxiety.

Undiagnosed and therefore untreated T1 diabetes is very much an emergency.

My daughter was diagnosed about this age. OP did right to get it checked

Goldengirl123 · 10/07/2025 14:33

I’m waiting for an update from the OP as I think this was a massive overreaction to him wetting the bed. I wonder if she got any answers

x2boys · 10/07/2025 14:41

Blank1234 · 10/07/2025 13:57

Wow OP, you need to get some help for your anxiety. Your son has wet the bed once and you jump straight to type 1 diabetes! Instead of actually seeking the first port of call for medical advice (111), you jumped to dr google and scared yourself witless???

well its better than turning to mumsnet where uninformed posters are quick to dismss everything
Untreated type 1 Diabetes can get very serious very quickly.

Cati482 · 10/07/2025 14:47

My daughter has been diagnosed with Chronic Kidney disease at 8 years old and her only ever symptom has been bed wetting after being dry since 3. Maybe something to consider having checked? It’s a simple blood test to test creatinine levels in the blood to check kidney health. Hope everything works out, OP x

lessglittermoremud · 10/07/2025 14:51

I think it’s always best to get things checked if you are worried.
My middle child wet the bed last week, total surprise as has been dry overnight since he was 2 and is now 11.
It only happened the once, he hadn’t been for a wee before bed and had had a really busy week with sporting events etc so was exhausted.
He sometimes has aching legs as well because of growing/super active.
Hopefully you’ve now had confirmation that all is ok with the blood tests. Being a parent is sometimes pretty scary, and I definitely have an overthinking brain so can see why you were worried.

Horserider5678 · 10/07/2025 15:03

NeuroSpicyCat · 10/07/2025 00:21

And his biological father had type 1 diabetes.

When I put all this into AI (Google Gemini) it freaked out and said he needs urgent medical attention.

Sudden bed wetting is a sign of type 1, right?

Urgent medical attention means a GP appointment not rushing to A&E! Does he have any of the other symptoms of diabetes? I think you e hugely over reacted!

Rosscameasdoody · 10/07/2025 15:08

Blank1234 · 10/07/2025 13:57

Wow OP, you need to get some help for your anxiety. Your son has wet the bed once and you jump straight to type 1 diabetes! Instead of actually seeking the first port of call for medical advice (111), you jumped to dr google and scared yourself witless???

Funny, the hospital thought there was enough of a reason for him to wait to see a doctor. And if you read the OP’s post very carefully - out loud if it helps your comprehension - it wasn’t just the fact that he wet the bed. It was other symptoms and the fact that his father had T1D - and passed away. He’s the right age and had symptoms that could be connected. What did you want her to do, wait until he was in a coma ? She had concerns, she took him to A&E. After triage he was advised to wait and see a doctor, despite a two hour wait - and even after posting that she was advised by some posters here to leave against medical advice and take him home. It’s batshit.

MeowCatPleaseMeowBack · 10/07/2025 15:08

Alondra · 10/07/2025 12:57

I didn't say pancreas. I said kidney and pancreas transplants because of type 1 diabetes. When insulin no longer works, the first major organ affected are the kidneys, leading to kidney failure. Failure that in severe cases leads to heart attacks and affects other organs.

I live in Australia and you only need to google kidney/pancreas transplant diabetes 1, if you don't believe me.

BTW, none of my posts are from googling. What I'm posting is from professional and personal experience.

Edited

You're talking utter rubbish. There is no form of Type 1 diabetes that can be managed by a "very strict diet".

Rosscameasdoody · 10/07/2025 15:10

Horserider5678 · 10/07/2025 15:03

Urgent medical attention means a GP appointment not rushing to A&E! Does he have any of the other symptoms of diabetes? I think you e hugely over reacted!

Well thankfully the hospital are not of the same opinion. So many posters here don’t understand what type 1 is and how quickly things can deteriorate - especially in children.

Goldengirl123 · 10/07/2025 15:10

He wasn’t ill. He had a sore stomach that comes and goes, same with his legs. This absolutely could have waited for a GP

Rosscameasdoody · 10/07/2025 15:13

Blank1234 · 10/07/2025 13:57

Wow OP, you need to get some help for your anxiety. Your son has wet the bed once and you jump straight to type 1 diabetes! Instead of actually seeking the first port of call for medical advice (111), you jumped to dr google and scared yourself witless???

I would have thought having a husband - the boy’s father - who had T1D and passed away was enough of a reason to be anxious. But you carry on regardless with your unthinking criticism.

Pricelessadvice · 10/07/2025 15:15

Rosscameasdoody · 10/07/2025 15:10

Well thankfully the hospital are not of the same opinion. So many posters here don’t understand what type 1 is and how quickly things can deteriorate - especially in children.

It’s got nothing to do with people “not understanding T1”, it’s because his very vague ‘symptoms’ are also symptoms of a hundred other things. So arguably by your defence, he should also have been rushed to A+E with cancer, kidney disease etc etc.
Do you not realise how ludicrous it sounds?

I might wake up in the night with a headache. The same headache that’s woken me up a few nights in the last few weeks. Do I rush to A+E with a suspected aneurysm or brain tumour? No. I ring my GP the next day.

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