Thread 2. To feel disappointed after reading this in The Observer about the author and her husband from The Salt Path book and film?

[AWanderingFool]

Thread Two for The Salt Path and Raynor Winn/Sally Walker/Sally Winn discussions.

Thread One is here: www.mumsnet.com/talk/am_i_being_unreasonable/5368194-to-feel-disappointed-after-reading-this-in-the-observer-about-the-author-and-her-husband-from-the-salt-path-book-and-film?

This is what is says in The Salt Path, page 15. Who knows if this is a true account since the parts about the court and judge patently are untrue.

'I believe you have corticobasal degeneration, CBD. We can't be absolutely certain about the diagnosis. There is no test, so we'll only know at post-mortem.'

So, no, it's not even definite in the book that he has it. Or wasn't when she wrote this.

I’m sorry @Aspanielstolemysanityboth for your illness and not being detailed enough in my post. What I meant was that he looked very healthy for someone who was diagnosed with a degenerative illness which attacks the brain 12 years ago. I was the one who posted that CBD kills brain cells but as I wanted to use the rhyme ‘healthy and wealthy’ I left out a lot of detail.

Sorry.

I guess. But that requires the reader of The Observer piece to have read and remember that from the book (which I clearly didn't!), so it's not clear enough for me (as a journalist myself I'd have flagged it in the edit).

I assume because the husband was paid back, and had signed an NDA agreement and they didn’t want the publicity.

From what other posters have dug out on the other thread, her name is actually Sally Ann - it was common for a while to use them together as a name/middle name, without Sally being a diminutive.

I stand corrected! I didn't see that box. All good then!

Also didn't know there were 3 articles

Has anyone else worked out why he's called Moth yet? I just did...it's pretty obvious as it turns out.

From the PSP Association website it does seem to be a condition ’diagnosed’ by excluding other diagnoses and can only be confirmed by post mortem. But he has been rushed to hospital ill according to Sally in tv interviews and must have consulted doctors and his GP over the years. Plus he was heavily involved with the charity. If his progression wasn’t as expected, they would have seen enough medical people to have had someone say ‘I don’t think this is CBD’. Yet still they carried on saying it was for another 7 years after the book was published and 12 years from his ‘diagnosis’. Because it was financially in their interests to keep pretending he had a terminal condition.

“The diagnosis of CBD is complicated because its symptoms can closely resemble those of other neurological conditions. For example, the motor symptoms of CBD, such as stiffness and tremors, may be mistaken for Parkinson’s Disease, while its cognitive impairments might suggest Alzheimer’s Disease or Frontotemporal Dementia. Additionally, the rare and variable nature of CBD means that it may not be the first condition considered by healthcare professionals, further complicating the diagnostic process.
Another challenge is the highly individual nature of how CBD develops; symptoms can differ significantly from one person to another, and the progression of the disease can vary widely. The wide range of symptoms that can develop means that currently, there is no single test that can definitively diagnose CBD. Instead, the diagnosis is often made through a combination of clinical evaluation, neuroimaging, and the exclusion of other conditions. A definite diagnosis of CBD can only be made post-mortem.”

Here's an interview from The One Show where the illness is referred to as untreatable and incurable and terminal.

.

I know that was the reason given for them not being given any type of housing whatsoever in the film and even as I was watching that stretched my credibility a bit. Even illegal asylum seekers stepping off the boats get some kind of housing .. even if just a hotel room ...so why not them 🤔 That's what I was thinking as I watched. it just seemed unrealistic. I didn't think necessarily that they were lying at that point ...just that they were ill informed and hadn't pushed enough for temporary accommodation. In the light of the observer suggesting that they had reason to flee the law I I am less inclined to believe they were misinformed ...just lying about why they set off wild camping.

That was for @Fandango52 😀

Yes, we've had the same. If you critise you get closed down quickly, accused of not caring, being jealous, not knowing what you are talking about. Let them get on with the good and stop worrying about minor things like accounts and expenses being paid or any evidence that anything has actually worked or been done. Give the money and feel good about it.
I don't blame people who were more knowledgeable not calling it out when it got some momentum. Nobody wants to hear.
And isn't it time none disclosure contracts became a thing of the past. They just cover up criminal behaviour whilst paying people off.

I think this is an illness you cannot be diagnosed with if you do not have the clinical symptoms to support it. I find it so bizarre he is involved with the charity who must know this. It’s such a rare diagnosis too. I am really interested to see how this plays out.

My recollection from the book was that they were offered a coincil house but declined because of what their friends and neighbours would think.

Off topic, but I hated that book so much.

Massive self-pity and everything was someone else's fault.

In my head I re-named her Whiner Rain.

Is it because it’s a nickname for Timothy? I hadn’t worked it out until someone on the previous thread pointed it out!

But The Observer doesn't say they fled the law. It says Sally "vanished" according to the source, by not turning up to an arranged police interview. Instead she travelled to London, arranged a loan with a distant relative of Tim's, and the theft was paid back with legal costs to avoid criminal action.

Yes. TI-MOTH-Y. Not as mysterious as it might have been

From her Big Issue interview:
”It was the end of one of those weeks that happen to someone else. A financial dispute with a lifetime friend had led to a court case that lasted for three years, culminating in us being served with an eviction notice from our home of 20 years. Two days later a doctor sat on the edge of his desk and told my husband, Moth, that he had a rare neurodegenerative disease, that there was no cure, no treatment and he was going to die. The only help available was physiotherapy that may help retain some muscle strength. My world and all that kept me stable slipped from beneath my feet.”
Sounds like she’s claiming it was a definite diagnosis.

And eff all to do with eco stuff in the 80s and 90s!

This leaves wriggle room to say it wasn't the correct diagnosis after all and, thankfully, everything is fine. So thanks for everything, we're off to France to celebrate that we've been given this new opportunity to see out our life as a couple. Our final message is you can achieve anything if you lie put your mind to it. Bye.

That’s a very good point. If he’s not officially been diagnosed with it, as other posters have said the book seems to suggest, why was he publicly involved with that charity?

Weird. And different to what she says in The Salt Path.

It’s like a reveal in a particularly shit mystery novel 😂😂😂