How the hell is this not in the media

[Sprinkles211]

https://www.birmingham.ac.uk/news/2024/more-than-40-of-parents-with-disabled-children-have-thought-about-suicide-study

This quite frankly is terrifying, with the current war on the disabled happening as the parent of disabled children I've found myself in darker places then I knew existed all due to how I know my children are viewed by society, they didn't choose this, I didn't choose this but they have value, they are valuable, if society acted with more humanity and less selfishness and greed we would learn so much about humanity from children like mine

No one disabled themselves would agree with you. No-one.

Nothing but love to you OP. Having a child with disabilities can be one of the most difficult things a human can experience. We live in a society that values productivity and assimilation over everything due to greed. You can measure a society by how it treats the most vulnerable, and, well..

As a sidenote I recommend Special Books by Special Kids on YouTube. They interview people of all ages with every kind of disability or health condition that you can imagine. They include family members in the interviews and put a candid light on the struggles of people with disabilities and their parents/carers.

It’s absolutely the issue. Especially when the press and the media are intent on supporting government of whatever colour in painting the sick and disabled as workshy scroungers in order to make cuts affecting the most vulnerable more palatable to Joe Public.

They interviewed 750 people, whilst the number is alarming, the way they collected their sample will change the results, what was the threshold for inclusion into the study, are we talking only about children needing 24/7 care? Disability is a wide spectrum

With respect - and l I absolutely understand that it’s hard for everyone - but now take the problems you have and add in trying to exist on benefits because your child needs round the clock care. Add in not being able to afford the electricity it costs to charge equipment essential to their well being. Imagine being permanently exhausted because the care or respite you need just isn’t there. Having to fight for appropriate school provision. Having to fight social services for every hour of (mostly inadequate) care. Having to face constant reassessment and explanation of your childs’ condition to qualify for benefits. And on top of all of this, and countless other worries, having to face the reality of what will become of your child when you are no longer there to advocate for them. You have no clue.

Agree. Unfortunately, a lot of people seem to think that disabled people are a nuisance. There are enough threads on here to show that.

It’s usually the people who object to sickness and disability benefits who support reintroducing institution and hospital based care. And usually without even a nod to the fact that this would cost significantly more per capita than any combination of disability/sickness benefits currently in payment.

Some heart breaking and exceptionally eloquent posts on here. A 'Post Office Scandal' type drama on the subject might help understanding. Also I think any pharmaceutical and technology companies profiting from the various medical advances that are saving and extending the lives of people from premature babies to the chronically sick and/or dementia suffering elderly need to contribute to fund any social cost fallout of said advances.

Just look at the cost of dementia care ffs, running at about £1000 per week. I mean, £80 in Carer's Allowance and less than £200 in PIP is kind of the state getting a bargain, isn't it?

You would have thought so wouldn’t you ? Unfortunately the people frothing about the cost of disability benefits are usually not disabled, not carers and with little no experience of disability from any other source. But still they sit in judgement.

In my experience (I have lpa for elderly relative with dementia) that's cheap. We've burned through getting on for £600k. My nightmare is what happens when the money runs out. The fact that she's been in her home for years is testament to the care she gets. The thought of moving her is awful.

Absolutely. Parents are saving the state a fortune.

Honestly I am suicidal - been a carer for my Ds is just classed as a protective factor. 🤷‍♂️

I have disabled dc so am well aware of the fight for independence.

The hospital I mentioned dealt purely with those with severe mental health issues who were there for both their and the public's safety. It was a wonderful community and provided a standard of care over and above what exists these days.

You can buy melatonin through YourHealthBasket. You have to phone them, unlike all the other stuff you can get online then I think you have to set up an account but I get posted to me whenever I need it.