Has anyone else been diagnosed wrong ?

[Painrelief]

So I went to A&E last week with what they told me was a dislocated knee and 5 days later they rang me to tell me actually it’s a fractured tibia and I need surgery !!

Im still in hospital now and I jus feel like it’s never gonna get better .

What did they tell you v/s what has actually happened to you?

‘Soft tissue injury’ = Broken shoulder!

A bit different but I’ve been diagnosed from 14-44 with a variety of medical issues and have endometriosis. It never showed on scans so I had to pay for private wide excision surgery not knowing that I 100% had it either. Turns out it’s the culprit for my entire life’s issues.

‘It’s just anxiety’ —-> lung cancer

I was told there was nothing wrong with my knee and that my X-ray looked normal. Turns out I had a bone tumour, and the tumour was clearly visible on the xray!

Migraines > cluster headaches > brain tumour.

It's not their fault, the wait for an MRI was very, very long and as soon as I presented with more classic brain tumour symptoms they sent me for a CT and bumped me up the list. It was still 8 months from first symptoms to diagnosis though.

Many a time. Diagnosed as being 'too fat' which was causing my back pain (then BMI of under 25) and it turned out to be arthritis and 2 bulging discs. (I paid for an MRI privately as I was tired of being dismissed with 'lose weight'

Diagnosed with a lipoma that ended up being severely swollen lymph glands and an indicator of my (third) autoimmune condition. The consultant who was about to cut out said 'lipoma' said to me 'It's tethered and not a lipoma'.

Ds1 was told his tics were mere attention seeking by his paediatrician- but he has tourettes. (Anyone who knows DS knows that attention seeking is the very last thing he does). Paediatrician also said 'It;s not tourettes because he does not swear'. Outdated and ill informed this is.

I could go on and on. FIL was diagnosed as having dementia when actually he was in acute renal failure.

TBH - most of the misdiagnoses I have experienced is because HCPs are in a rush and don't actually LISTEN to what we are telling them about our own experiences. I have rarely felt as if I am being really heard and they are taking actual note of what I am saying. Half the time you don't even get eye contact.

DH was repeatedly told he had constipation and was prescribed increasingly large amounts of laxatives. For many months.

In desperation a private scan disclosed a massive aortic aneurysm (he shouldn't have still been alive) and was operated on immediately...

Anxiety and panic attacks. It was a massive amount of gall stones and the consultant wouldn’t let me leave the hospital without operating to remove it.

@GetOffTheCounter that's interesting I think I have lipoma what's the link to an auto immune condition?

It's more often that I have been misdiagnosed. I get frequent infections and am used to making multiple appointments before being given any medication, then having to return for the correct medication. I used to get fobbed off with 'come back in a few days,' which was really pointless as then I would have to live with a worsening infection and come back anyway, sometimes to be hospitalised if it'd progressed far enough. So now I refuse to leave until I get treatment.

My son aged 4: He’s just tired (by a junior dr in hospital). Was having asthma attack. As an asthmatic my whole life I knew and refused to leave. Nurses know more about asthma.

Same son: GP surgery. Went back 3 times (3 different Drs) telling them it WAS an asthma attack. They didn’t even know what the peak flow for his age should be and guessed! Demanded practice manager and 3rd more senior GP came and actually reprimanded 2 Drs in front of us!

My mother aged 40: she’s making a fuss. Has a burst fistula and was at risk of blood poisoning.

My sister aged 48: It’s nothing. It was fast growing head and neck cancer. Luckily she had private health care otherwise she’d have died.

My mother aged 77 (recently): It’s nothing (didn’t even check). Infected cyst. Infection travelled around her body and infected her jaw and skin on her legs. Had been on antibiotics for a month. Still no diagnosis.

I sometimes agree but in a rush where? To the next misdiagnosis?

Too busy to do their job.

My dad was repeatedly told he had IBS and irritable bowel. He passed away from Colon cancer aged 65 😞🤬

I was told I had plantar fasciitis for five months. My foot had completely broken down, I couldn’t walk and nearly lost my leg. Five months later they decided it might be vascular and indeed I had a 30cm blockage in my artery. I ve been left with permanent pain and numbness in my foot but luckily they saved my leg.

A whole variance of mental health conditions = Autism.

Sprained foot = stress fracture

Too fat = lung condition

I was dismissed as my fatigue was because I'm overweight. 6 months later it disappeared overnight once I had breast cancer surgery. Must have been a bloody heavy tumour.

Hearing loss - told it was wax by an audiologist and then congestion by my GP. I told both I could hear nothing at all from my affected ear, I had loud tinnitus, aural fullness and it was sudden. Saw an ENT privately and it is sudden sensorial hearing loss - nerve damage most likely caused by a virus but probably never know, MRI ruled out anything sinister. Frustrating thing is there is a 2 week window to treat it with steroids as it's an inflammation /attack on the hearing nerve which may or may not got me some of my hearing back. 😭

It wasn;t the lipoma, I basically had elevated white blood cells which caused a lump in my neck. The nurse practitioner said 'lipoma and cosmetic only so we won't do anything about it' and I went private to have ti removed.

It turned out that I have pernicious anaemia and rheumatoid arthritis (and currently being investigated for lupus) and the lump was basically caused by my immune system going into overdrive. I had a number of scans and a biopsy and eventually it went down on its own.

My GP told me my increasing abdo pain was IBS, and I needed to avoid alcohol and spicy food & drink more water.

I don't drink alcohol or like spicy food. When I kept making appts over 5 months, asking for help because the pain was escalating, he finally told me I was "a woman of a certain age seeking attention" Patronising arse! 😡

10 days after my last request for help, I passed out in A&E at 3am. I had a twisted and necrotic ovarian dermoid the size of a grapefruit, a raging abdo infection and sores all up my back. I woke up the following day on women's surgical with a hip to hip scar and minus an ovary & tube. I spent seven days on women's surgical and 6 weeks at home.

Someone at the hospital must have called him because he came in to the ward on day two (I think, morphine makes it a bit hazy). I imagine he was supposed to apologise but he just said "oh, so there was something wrong with you." and then disappeared.

I've had a female GP ever since, who is lovely and actually listens.

Not me personally but:

DM spent two years being told she had IBS and dicking around on the Fodmap diet - finally got told at 76 it was stage 4 ovarian or momentum or peritoneal cancer, it was found by accident when they did a blood test for potential HRT to address her fatigue.

Step Dad - told his symptoms indicated constipation for months, then shoulder pain turned out to be referred from liver cancer secondary to stomach cancer, died in under 6 months.

Good friends wife was diagnosed with anxiety - turned out to be bladder cancer.

Those are the worst ones I know of, but have plenty of incidents where lack of communication and lack of listening has lead to poor outcomes in both physical and mental health.

Am currently pursuing complaints regarding my DF and SM and how their really complicated situation was handled by almost every agency that dealt with them.

I've had enough and am frankly out for blood at this point.

Virus......bacterial meningitis and acute cerrebellitus.

Period pains......ruptured ectopic pregnancy.