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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To not take my mum to the GP? (Mild cognitive impairment)

87 replies

Didimum · 23/05/2025 19:34

Sorry this is long. I'm fairly certain my mum has mild cognitive impairment. She is 68 and lives alone, after my dad passed away two years ago.

She has had a fairly stressful life for at least the last couple of decades. Firstly my dad had always been very controlling and, to be honest, mildly abusive. She was always very anxious of him. He controlled bills, finances, things around the house etc. She worked in the NHS and the workload was horrendous – she used to cry often and was very beaten down. Luckily she could retire early, so she did. Shorty after she left the NHS, Covid hit and my parents did not fair well – all loss of routine and socialisation, my dad grew worse in his behaviour towards her. She lost an enormous amount of confidence during all this.

My dad then passed suddenly in 2023 after a very short illness. She was shattered and shocked. Her brain fog was severe. She has improved since this, has got happier and does enjoy life on her own – she sees her friends, has a cat, joined a pilates class, keeps up with all medical appointments. I do not worry about her living day to day – she is able to follow her routine perfectly well. She struggles with bills, paperwork, insurance, pensions, computers, etc – but she never had these skills as my dad just took over all of it. Myself and my sister help her mange these things.

My sister and me noticed, probably 5 years ago, that her memory was beginning to be affected in stand out ways. Her short term recall is quite poor (with some things and not others, though she can remember when prompted). For an example, I'm sorted out some insurance stuff for her – I asked if they had called her the day before and she said no. They told me they had, so I prompted her and then she recalled it. Later that evening, my sister asked her the same question and again she said no ... this is fairly typical. However, it's more typical it happens with things like insurance as she just seems to blank it out. She was babysitting my kids recently and asked repeatedly what time to put them to bed. She also repeats questions and stories a fair bit – to the point where others have noticed. She has also been scammed by phone scammers a few times as she panics over the phone when strangers call about something seemingly 'complicated'. She doesn't struggle to find words or follow conversations or take care of herself, cat, medication, her appointments etc. That appears to be the extent of it right now, and it has remained fairly stable over last 5yrs, perhaps dipping a bit when my dad passed.

My sister and I sometimes discuss getting her assessed, but we both really fear that she will be extremely upset and anxious over it and that it will be a detriment and not benefit her. Another really important part of this story is that her sister was diagnosed with dementia in 2019 and just passed away a month ago (sister was 20yrs older than her however, and there is no other family history). My mum, again, was devastated by her sister's rapid decline and death. She is aware of her memory issues and I know she is very anxious that the same fate awaits her.

Long story short - while my mum is still independent and functioning well, AIBU to leave her be and not cause her distress unless it becomes necessary, since there is no treatment for MCI? She has regular check ups and blood tests and is physically very fit and well.

I do know MCI can be caused by stress/depression/anxiety, and my mum is still prone to bouts of upset and crying. She says she feels stupid and that everyone feels annoyed at her all time. This is not true, and I fear her confidence in herself has been battered by decades of how my father used to treat her. He always used to call her stupid and tell her she wasn't capable of anything. I think counselling might be a good option for her?

AIBU? Or is the GP and memory clinic always the best?

OP posts:
BakelikeBertha · 23/05/2025 19:42

OP, I'm a couple of years younger than your Mum, and I can be very similar. The day after the General Election, my DH asked me who the new Prime Minister was, and I had no clue as to his name! I think with a lot of people in my/your Mum's age group, do start to forget things that have happened in the more immediate past. Sometimes we're simply not concentrating.

However, while at this stage I don't think I have anything to worry about, it might be worth getting your Mum checked due to there being dementia in the family, as it can be hereditary, but if you think it will upset her to that degree, I would probably leave it until things seem to be getting worse.

PictureCandleStick · 23/05/2025 19:44

Get POA sorted now. Finance and health.

But in terms of your question. My dad is similar to your description of your mum. But very resistant to anything to do with loss of memory/dementia. He wouldn't see the Dr, so I had a conversation in general terms so as not to breach his medical privacy. The upshot is that there's not a lot to do to slow or prevent decline in terms of medication. So it wasn't something that I felt I should force.

The Dr provided information around good lifestyle. Staying well hydrated can improve cognition and being alert for UTIs or medications which can reduce cognition

Lovemydoggie · 23/05/2025 19:46

I would just wait and observe. There is nothing to gain from going to the memory clinic until it becomes a problem.Also your Mum would have to agree to it .
I definitely struggle more with my memory the older I get . Losing keys , rubbish at learning new skills , particularly with technology,forgetting details in conversations etc I am in my early 60s . Friends and colleagues of a similar age can all relate to this.
I do think that anxiety can really mess with your brain ,the older you get .
Do you have friends whose parents are a similar age ? Maybe you can discuss any comparisons with them .

Didimum · 23/05/2025 19:47

BakelikeBertha · 23/05/2025 19:42

OP, I'm a couple of years younger than your Mum, and I can be very similar. The day after the General Election, my DH asked me who the new Prime Minister was, and I had no clue as to his name! I think with a lot of people in my/your Mum's age group, do start to forget things that have happened in the more immediate past. Sometimes we're simply not concentrating.

However, while at this stage I don't think I have anything to worry about, it might be worth getting your Mum checked due to there being dementia in the family, as it can be hereditary, but if you think it will upset her to that degree, I would probably leave it until things seem to be getting worse.

We have checked up on the hereditary element and it’s only early onset (below 65) or a fairy specific type that accounts for a tiny percentage. Since her sister was diagnosed in her 80s, and no one else in family (her parents or other siblings, aunts, uncles), this hasn’t been a concern. But I do understand why you are saying that.

Our worry it that even with that possible link, it still wouldn’t benefit her at the moment. I guess I am looking for something about diagnosis that might benefit her that I’m not realising.

OP posts:
Didimum · 23/05/2025 19:50

Lovemydoggie · 23/05/2025 19:46

I would just wait and observe. There is nothing to gain from going to the memory clinic until it becomes a problem.Also your Mum would have to agree to it .
I definitely struggle more with my memory the older I get . Losing keys , rubbish at learning new skills , particularly with technology,forgetting details in conversations etc I am in my early 60s . Friends and colleagues of a similar age can all relate to this.
I do think that anxiety can really mess with your brain ,the older you get .
Do you have friends whose parents are a similar age ? Maybe you can discuss any comparisons with them .

My MIL is my mum’s age and incredibly mentally robust. She has noticed my mum repeating questions and has asked me about it. But I don’t think she suffers from any ‘senior moments’ at all. I haven’t asked my friends though, I can do that.

OP posts:
user8642096713 · 23/05/2025 19:51

Excellent advice above to get POA in place as soon as possible.
my friends mother has recently been diagnosed with dementia, she is now taking tablets that have significantly improved her symptoms. She’s no longer quite so forgetful and less anxious about being forgetful. I believe they will only work for so long, but worth a try.

saraclara · 23/05/2025 19:51

I'm 69, and almost every time I met up with friends of a similar age, this comes up. We're all really disconcerted about the changes in our brains. We forget names, we mislay things constantly, we can rarely set off anywhere without having to return to the house within a minute because we've left something behind. All stuff that we might have done occasionally when younger, but which now happens almost daily.

It's truly anxiety inducing, but it's happening to us all.

I'd wait it out until or unless she does something odd that really lies outside the kind of thing that we all do occasionally.

Timpot · 23/05/2025 19:52

I disagree. I think if dementia is identified she can be given meds to significantly slow the progress of the condition, but she can't get back what has been lost. She's young enough that she could have 15 or 20 years of quality life ahead of her. I would definitely make an appointment.

NerrSnerr · 23/05/2025 19:54

It sounds like she’s depressed more than anything which would probably really benefit from a GP appt and some meds.

There sounds like there’s a lot of talk about what should be done about her, when really it should be you talking to her and her deciding what happens. From what you’ve written her mental health does seem fairly poor but there’s nothing to suggest she can’t make her own decisions about health. Personally I think you need to talk to her, however difficult that conversation is, and suggest that you could support a GP appt to address her mood.

One thing to highlight to her is that if the GP does think there is some cognitive impairment going on a trip to the doctors or diagnosis won’t speed up the cognitive decline- there is no harm in seeing the GP and being honest as there may be some support out there.

Agree with PP that a conversation about POA may be very useful too.

JDM625 · 23/05/2025 19:54

I would get her to the GP for initial tests- YES.

There are several conditions/disorders which can cause memory issues which are treatable and reversable! This may not be the case, but it would be far worse thinking this was permanent, if it actually wasn't!

I live in the UK, my mum is widowed and lives abroad. Family were saying that she was telling them the same stories and repeating things etc. When I was next there, I made a GP appointment and went with her. I discussed the concerns beforehand. He did a raft of tests including syphilis and checking for deficiencies which aren't common, day to day, blood tests. She was then referred to a geriatrician. Long story short, her memory was absolutely normal for her age and she was advised to concentrate on 1 thing at a time- don't be speaking on the phone whilst also watching TV and cooking dinner.

I appreciate its much harder if the person doesn't want any testing. I would also be getting POA in place ASAP if nothing else.

Didimum · 23/05/2025 19:55

saraclara · 23/05/2025 19:51

I'm 69, and almost every time I met up with friends of a similar age, this comes up. We're all really disconcerted about the changes in our brains. We forget names, we mislay things constantly, we can rarely set off anywhere without having to return to the house within a minute because we've left something behind. All stuff that we might have done occasionally when younger, but which now happens almost daily.

It's truly anxiety inducing, but it's happening to us all.

I'd wait it out until or unless she does something odd that really lies outside the kind of thing that we all do occasionally.

This is interesting and I did not realise it was this common. As I say above, my MIL is very mentally robust and my grandparents were all too and lived to their 80s/90s independently quite well. So although of course I know memory is affected with age I feel I have only been surrounded by pretty sharp elderly people and my mum is not following this pattern.

OP posts:
Didimum · 23/05/2025 19:56

Timpot · 23/05/2025 19:52

I disagree. I think if dementia is identified she can be given meds to significantly slow the progress of the condition, but she can't get back what has been lost. She's young enough that she could have 15 or 20 years of quality life ahead of her. I would definitely make an appointment.

My understanding is that there is no medication for MCI though?

OP posts:
W0tnow · 23/05/2025 19:56

Of course! There are medications that can slow down things like Alzheimer’s. The earlier they are taken, the better. Surely it can be mistaken for MCI in its early stages?

Didimum · 23/05/2025 19:58

NerrSnerr · 23/05/2025 19:54

It sounds like she’s depressed more than anything which would probably really benefit from a GP appt and some meds.

There sounds like there’s a lot of talk about what should be done about her, when really it should be you talking to her and her deciding what happens. From what you’ve written her mental health does seem fairly poor but there’s nothing to suggest she can’t make her own decisions about health. Personally I think you need to talk to her, however difficult that conversation is, and suggest that you could support a GP appt to address her mood.

One thing to highlight to her is that if the GP does think there is some cognitive impairment going on a trip to the doctors or diagnosis won’t speed up the cognitive decline- there is no harm in seeing the GP and being honest as there may be some support out there.

Agree with PP that a conversation about POA may be very useful too.

I have spoke to her, as has my sister. She does not feel the need to get her memory checked (but I don’t know if this is anxiety) but she would like to seek counselling for her anxiety.

The harm I am concerned about is that it will make her mental state and worry much worse then there is nothing that can be done at this stage.

OP posts:
notenoughhere · 23/05/2025 19:58

Didimum · 23/05/2025 19:56

My understanding is that there is no medication for MCI though?

She could be diagnosed with CI now but will be revived annually (at least that’s what happens with mine) and dementia would be spotted and potentially treated far sooner. I would definitely be seeking a referral to the memory clinic at this stage.

Didimum · 23/05/2025 20:00

W0tnow · 23/05/2025 19:56

Of course! There are medications that can slow down things like Alzheimer’s. The earlier they are taken, the better. Surely it can be mistaken for MCI in its early stages?

Edited

You have to reach a certain criteria beyond MCI to be eligible for medication, and this when it has progressed much further.

OP posts:
CalmFox · 23/05/2025 20:02

Your post is very similar to what happened to my mum. I could write more or less the same as you have.. As a family we noticed issues with her memory, she'd denied anything was wrong but her doctor picked up on this at a routine appointment, and sent her for a brain scan. I wasn't aware of this until my mum told me she went to this. I then wrote to her doctor who rang me and an appointment at the memory clinic was arranged which I went with her. The diagnosis was dementia. I would advise ASAP to arrange Power of Attorney if your mum still has capacity to understand this. Otherwise you will have to go through the court of protection for deputyship, which I had to do for my dad he too had dementia (my parents are divorced) COP is a longer process. I have POA for my mum for health and finances. Contact her doctor with your concerns. Take care.

ThePure · 23/05/2025 20:03

To be honest the medications are pretty rubbish and the ‘slowing down’ is marginal so I don’t think she’d be missing out much.

The main reason to get an assessment/ diagnosis is for better understanding of your condition and to put future plans in place like will and LPA. I would make sure she does those things now in any case.

W0tnow · 23/05/2025 20:03

It may not be that though. I’m only saying as my aunt was recently diagnosed with Alzheimer’s, after my cousin noticed a few things. I’m close to my Aunt, and I hadn’t noticed much beyond what I though was normal aging. Sadly it’s progressing, but maybe not as quickly as if she’d not been diagnosed yet.

JDM625 · 23/05/2025 20:04

To add to my earlier post, if she wouldn't be willing see the GP, I'd call and speak to the practice manager. Discuss your concerns and ask if an appointment could be made, ideally where you or your sister goes too, and make it look more like a general check-up.

ShodAndShadySenators · 23/05/2025 20:18

With her history of being abused by your dad, I think I'd be rather surprised if she didn't present with symptoms showing lapses of clarity or memory. She's been hectored and belittled for years, that absolutely would have a significant effect on a more timid person's self esteem and feelings of worth and intellectual ability. She feels stupid because he told her she was, and believing you're stupid and worrying about that will have an impact on your concentration and critical thinking abilities.

I agree with you that counselling or therapy would be a good thing, it likely won't undo the years of harm but it might help her feel less anxious, poor lady. POA is a good idea also.

Didimum · 23/05/2025 20:22

ShodAndShadySenators · 23/05/2025 20:18

With her history of being abused by your dad, I think I'd be rather surprised if she didn't present with symptoms showing lapses of clarity or memory. She's been hectored and belittled for years, that absolutely would have a significant effect on a more timid person's self esteem and feelings of worth and intellectual ability. She feels stupid because he told her she was, and believing you're stupid and worrying about that will have an impact on your concentration and critical thinking abilities.

I agree with you that counselling or therapy would be a good thing, it likely won't undo the years of harm but it might help her feel less anxious, poor lady. POA is a good idea also.

This is why it feels like such a complex issue that I don’t want to cause further damage to. I understand why many of the above posters’ are giving the advice they are, but I’m so worried about doing the wrong thing for her.

My sister and I are very caring, loving and try to boost her confidence wherever we can. This was hard to do with my dad around, and we know at this stage we can’t undo all the damage to her. It’s so upsetting.

OP posts:
beetr00 · 23/05/2025 20:24

@Didimum

It is important.

An early diagnosis gives your Mum a better chance of slowing the progress.

There are, in fact, new medications for MCI.

Please look here, remain vigilant but do act earlier rather than later.

Harassedevictee · 23/05/2025 20:45

@Didimum as pp have said get both types of LPoA in place. In particular the finance and property LPoA can be invoked now so you and your sister can help manage her financial affairs.

I say this as someone who is currently having to work out my parent’s finances without LPoA. My circumstances are complicated by unusual factors but my parent has a MCI diagnosis.

My advice is:

  • LPoAs
  • Set up a separate email just for your DMs information - it keeps it separate from your own finances etc.
  • Start to sort out your Mum’s financial papers so you know which companies she has her household bills with, where her savings are.
  • Contact her GP and Local Authority to find out what activities are going on. The advice I had was keep my Mum physically active, so the Pilates class is good, but also find groups so she gets social interaction, look for quiz groups, crafting anything that stimulates her brain. Memory lane/ memory cafe’s are also good.
  • I know you don’t want to think about this but start looking at sheltered accommodation and residential care homes. It may be a long time before you need them but knowing what’s out there is helpful. Your Mum doesn’t need to know at this stage it’s about you being prepared.
  • Take her up on the counselling for anxiety.
Rosscameasdoody · 23/05/2025 20:55

OP I would take her to the GP. My mum started with vascular dementia like this and the progress/deterioration can vary. The GP will make an appointment for an assessment at the surgery and depending on the results, she may be referred on. If the GP thinks there’s nothing to worry about then there will be no referral - but at least you’ll know one way or the other.

And regardless of the outcome of the testing, as others have said it’s common sense to get lasting power of attorney as soon as possible because without it you will have little say in what happens to her should she lose capacity. LPA can’t be given once that happens and you would have to get the court of protection to appoint a legal guardian to look after her affairs - I know someone this happened to and it was a nightmare.

My own mum was diagnosed with late onset vascular dementia at the age of 90. She was fine for a few months but then had a major seizure which accelerated the dementia. Had we not got the LPA before that happened, it would have been very difficult. It’s a very difficult time, and I know it’s easier said than done, but I would talk to your mum and explain your fears, as well as what could happen if you don’t take action, as well as the fact that without an LPA she could well be left having a stranger make her decisions instead of family.

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