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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

What kind of home care should I expect

8 replies

Gail54 · 17/05/2025 20:07

I need the knowledge of you younger ladies or others out in that Mum's world. AIbu. I am getting on now, in fact flaming old. And I've come to needing home care. I know you're mainly concerned with the younger element of life, but I need some insight into what I would like. I am fully bedridden. Due to arthritis and being overweight. I want carers who can give me a decent daily wash, not just odd bits of me but more or less all of me. Change my bedding and clothes when required. Provide edible meals of the usual british mixture of tastes, therefore are able to read and understand the english written labels on food packaging, ensure what I'm being given to eat is safe, throwing away obviously gone off food, like mouldy bread, frozen food that's been defrosted and refrozen a couple of times because the freezer door gets left open. Knows the difference between food that's hot and cold, defrosted and heated to eat against still frozen halfway through. Knowing what is inside usual food packaging and how its normally eaten. Wash up dishes and clean up the kitchen things and areas, be able to understand how to use a washer/dryer to do the laundry. The room where i live in bed is the sitting room, keep it a bit tidy, not piling up the chair or small sofa with all and sundry. Keep the house reasonably clean and tidy, I do employ a cleaner once a fortnight to do a fuller clean, dusting, vacuuming, steam clean the kitchen floor. She has also taken on the task of checking the fridge for food no longer suitable to be eaten or to remove the half used packages left open and drying up or half used tins with the spoons still in them that should have gone into a sealable container. I'm visited by 2 persons 4 times a day, my one insistence was that I have female carers to see to me, due to past events. But for the oast 6 months or more the new company who have been given my contract only employ mixed sex teams, so it was decided by the company that this would be OK, that the male carer would stay in the kitchen and prepare meals, do laundry etc. I'd also like people who will have a conversation with, I don't see any family, and it's getting that I don't actually speak and talk with practically anyone. The council and care company think and say I'm being unreasonable in my demands. By the way my carer's are primarily of Nigerian origin here on a government funded sponsorship scheme. I have ascertained that the majority don't really understand English, they don't read English or even think and understand the general English spoken here in South Wales. When the majority arrived last September they had never come across anything we take as normal. I never thought I was racist I don't think I am, after a life of nursing mainly Psychiatric care and then teaching the subject, I was well used to working and being friends with all nationalities. Is wanting to communicate with the only people I have to care for me racist? I'm lost at understanding. Please give me your thoughts. The only family I talk to is a neice, also ex Psychiatric nurse and a Mum, who can't give practical support as she lives and works the other end of the country, and I don't mean Wales.

OP posts:
Danceswithweasels · 17/05/2025 20:23

Would you be willing to have Direct Payments? https://www.gov.uk/apply-direct-payments you can then either choose your own care provider or employ a PA? If you want to go the PA route but don't want the hassle of recruiting etc most counties have organisations who will manage your Direct Payments for you. I manage contracted Care Providers for a living and the situation you describe is unfortunately not uncommon.

Apply for direct payments

If you get help from social services, direct payments let you choose and buy the services you need yourself, instead of getting them from your council

https://www.gov.uk/apply-direct-payments

BakelikeBertha · 17/05/2025 20:30

First of all OP, I'm so sorry to hear this, it sounds like life is really tricky for you, which I can understand to some degree, being disabled and stuck in bed a lot of the time myself. However, I am lucky enough to have a DH who looks after and feeds me.

I don't think the things you're asking for are unreasonable, but sadly the service you appear to be receiving, seems to be the way things are these days. I honestly don't think you are racist to want to have someone who cares for you, to understand every nuance of what you ask for, as it's so important when you can't do things for yourself,

If the Council and Care company, are truly saying that you are being unreasonable to request that your Carers speak, and read English clearly, then I think that is most unfair, and would suggest that you contact your MP, and ask what they think. Particularly in view of the announcements made just this last week, as it seems that for new immigrants, they are going to have to prove that they have a good standard of English before being issued with visas, so this would lead me to think that lots of people have complained about the fact that so many, particularly in the nursing/caring community, can't speak English clearly.

I'm assuming that you possibly don't have the money to pay for private carer's, however if you do, it may be worth looking into, as then I'm assuming it would be easier to dictate who you see, etc.

If you ever need a chat, do please feel free to DM me.

BakelikeBertha · 17/05/2025 20:32

Looks like I crossed posts with 'Danceswithweasels', but I'm pleased that someone with knowledge of how these things work, has been able to point you in the right direction OP.

B0D · 17/05/2025 20:43

Same situation for my DF who struggles to understand non standard English due to being hard of hearing and dementia.
the carers do care and respond when the family make requests but he has us to advocate on his behalf.

Can you vet the carers and contact agency vetoing those who you can’t communicate with?

Wakemeupbe4yougogo · 17/05/2025 20:45

Having worked in care homes and domicilliary care, I fail to understand how care managers think very elderly people who are often hard of hearing are supposed to understand carers with heavy accents/poor levels of English. Let alone be able to dose medication safely. When my Dad was terminally ill, he needed support with personal care but it was incredibly stressful having new carer after new carer in who couldn't be bothered to read the care plan and ask Dad what they needed to do - often in accents he just couldn't understand. We gave it up as a bad job after 4 weeks. And I feel very angry that the Government has made this situation by giving younger generations the option of having a better lifestyle on benefits than working.

I would see as a PP suggested if you can get direct payments and employ a regular team yourself. There are some charities which help with this (locally to me there is Penderels Trust).

tarheelbaby · 17/05/2025 21:01

Hello OP,
I think the semi-socialism of Britain means that you'll have the carers you're sent. At best, they will be functional. Male carers doing general tasks and female carers doing personal tasks seems workable. (If you were paying for servants, a male cook/footman would be fine, even preferable for heavier tasks and low-level maintenance like laundry.) If English is not their first language, I'd give them all the time they need to figure out how to do their tasks

I think expecting 'free' staff to converse with/entertain you is, unfortunately, a step too far. (But not racist per se.) From the council/taxpayer's point of view, they are there to care for you and nothing more and it sound like there is plenty to do and so not much time for chatting. (Not everyone can stir fry AND discuss current events)

This is in no way an answer to your question but are you well enough to participate online in English conversation? You could sign up with an app. It wouldn't address your carers' paucity of language but you could converse, if only trivially, to help people improve their English?
My dad in the US takes in Airbnb guests and they give him a constant stream of new faces.

Rocknrollstar · 17/05/2025 21:59

My DMs carers came three times a day. In the morning they showered her, dressed her and gave her breakfast - cereal, toast and tea. At lunchtime they would heat a microwave ready meal. There was no time to heat the oven. In the evening it was a light supper and change ready for bed. She had a cleaner once a week who changed the bed but the carers would do so if necessary. None of them were born here and mum had a lot of trouble understanding them but they really did care for and about her. I’m afraid that is the state of social care. People can earn more working in the local supermarket. Could you afford to pay for someone else to come in and have a chat with you? In our area there is a Borough volunteer scheme or perhaps your local church could arrange for someone to come in on a regular basis? Do you have a spare bedroom? Perhaps a student would live with you and have a chat a few times a week in return for a reduced rent.

Gail54 · 18/05/2025 19:00

I have discussed with the people who deal with this but they have been rather off-putting. I want exact details on costs etc. I am able to deal with my own finances. But need to know the bottom line. Each time I've seen the ones concerned they've kind of hinted and said "of course we will deal with all of that for you" but I don't need that level of assistance. I am 71 next week, I have all my faculties, I'm an ex nurse and nurse tutor. The only problem I have is my mobility in a very small house that hasn't room for even a cat, let alone swinging it. (Weird saying and I'm not advocating animal cruelty). There's no room for my old wheelchair to go through doorways or turn into the hall. If I had a hoist it couldn't be moved anywhere just pick me up and plop me back down. I have been told the good news I've been allocated a brand new bungalow built and fitted for my particular needs, but it's not going to be ready till next year at least, and it's not going to be near where I live now. So location is another thing to think of with regard to direct payments. Not wanting to sort out assistance for here then I.move to somewhere the assistance would have travelling problems.

OP posts:
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