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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Corneal erosion is driving me insane.

32 replies

blooshboon · 16/05/2025 16:10

Posting for traffic, I’ll take you back to the beginning.

Feb 18 - woke up during the middle of the night and went to rub my eye. Instead poked myself directly in the centre of my eyeball, it watered it hurt a little but was fine by the morning.

a week later, went to opticians to pick up new glasses and told them I was having some watering from the eyes, only thing that had happened was the eye poke. Was told “ it usually take a week or two to heal, leave it alone “

March 16 end up at the eye hospital, as watering was uncontrollable, and was hurting so much, I’ve never experienced pain like it. Was told I had RCE and was given Hylo night and sodium chloride.

april 16 I’m back at eye hospital because th is episode is far worse and vision is now becoming affected. Had one incident where I couldn’t open my eye and the light sensitivity was insane. Was then given Hylo forte and chloremphanicol.

01 May - restarts getting again, I’m still using Hylo forte and Hylo night as advised. I double down on the doses as advised by pharmacy, until I find myself in ER on the 7th, as eye pain was unbearable, vision is affected 60% more than last time, I can’t sleep because I’m up every few hours with eye watering, swelling, and painful. they once again give me chloremphanicol, am told if it doesn’t heal I need to head back to eye hospital.

get there today, they check eye pressure, say they can’t see any active erosions, but can see scarring which is in an area it shouldn’t be affecting my vision. They give me levofloxicin ( antibiotic ( drops and chloremphanicol again.

At this point I’m exhausted, I can’t sleep for more than an hour before I’m forced awake with excruciating pain, my eye is now clenching when I’m asleep which I’m sure is down to stress and sleep deprivation. They keep giving me cocktails of ointments and drops, none of which are working and they are NOT listening, I’ve spoke to cues, who are only advising to go back to the eye hospital, of which is 50 miles away and it costing me £70 in a taxi each time I go.

and it’s not like I’m getting any helpful answers as I’m waiting 6-7 hours to be seen and they just want to rush you out so they can see the others waiting.

in at my wits end, I can’t blink, I can’t sleep, I can’t cry, I’m physically and mentally exhausted. I’ve read about bandage lenses? But these haven’t been mentioned to me, and now there’s scarring on my eye! Which I feel could’ve been avoided had I actually had more helpful treatment.

has nobody got any experience with this awful injury? Any tips for sleeping? Any tips at all would be great. I’m using cotton pads and ice water to help with the swelling, but it isn’t doing much now.

OP posts:
Toddlerteaplease · 17/05/2025 12:05

BananaPalm · 16/05/2025 17:28

Can you go to a private eye doctor? If you have a Polish/Eastern European clinic that has an eye doctor anywhere near you I’d probably try going there. I’ve found that their treatments tend to be far more extensive than the NHS (which is sometimes unnecessary but in your case seems very necessary!). Alternatively try any other private eye doctor. When my son scratched my cornea (if that’s what you really have!) I got a special corneal gel to put on every few hours and a strict routine of lubricating drops. But the gel was key to recovery (wouldn’t get it from the NHS).

Of course you would get that from the NHS. If that’s what you need.

blooshboon · 17/05/2025 16:16

Munchyseeds2 · 17/05/2025 11:10

I would get myself to the eye hospital in Windsor if I were you
Your eyes are to important to mess with
Find the money for the train tickets
Good luck

It’s not just train tickets if need. I would need to arrange a stay for god knows how long. Do you think I’d be able to go and be sorted in one day jump back on a train home in the afternoon?

London isn’t realistic for me and I can’t blame myself for not being closer to those eye hospitals.

All I need is for BMEC to actually refer me to a cornea specialist within THAT hospital.

OP posts:
BananaPalm · 17/05/2025 23:19

Toddlerteaplease · 17/05/2025 12:05

Of course you would get that from the NHS. If that’s what you need.

Nope, I did NOT get that from the NHS. I was told to just use normal hydrating drops. Had I not used the gel though I would have had corneal scarring (which was later confirmed by a different NHS doc).

blooshboon · 18/05/2025 12:14

Just got back from the eye hospital again. They’ve said there’s an erosion at the bottom of my eye and then also alot of allergy bumps at the top so they’ve gave me a huge prescription, but drove to 2 different pharmacies and none had any of the stuff.

They can’t give me a Bcl as my erosion isn’t big enough to qualify for one. On the plus side there’s no infection.

Had to have numbing drops too as they had to flip the lid. And they’ve made me super anxious too, as they make me feel weird, dizzy, numb lips. Hoping they’re out my system now thought as that was 10am.

OP posts:
WickWood · 18/05/2025 12:40

Oh OP, what an ordeal you're having. Can you/someone on your behalf call around pharmacies checking for the prescription so you don't have to do anymore driving?

blooshboon · 18/05/2025 13:54

WickWood · 18/05/2025 12:40

Oh OP, what an ordeal you're having. Can you/someone on your behalf call around pharmacies checking for the prescription so you don't have to do anymore driving?

Unfortunately those 2 were the only ones open today!

OP posts:
SuffolkBargeWoman · 18/05/2025 13:59

Have you checked that you're not allergic to the Hylo products?
Some people can't tolerate a particular ingredient in them and have exactly the symptoms you describe.
Trying a different brand might make a difference.

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