Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Heartbreaking situation - advice needed

74 replies

Juggletits · 03/05/2025 17:43

I'm posting on AIBU for traffic.

My darling sister has been at the bedside of her beloved ex-DP for 9 days since he suffered a massive heart attack. He nominated her as next of kin (NOK)whilst lucid to the paramedics.
Neither of them were aware that he was having a heart attack when the ambulance arrived. He's only just turned 46, that day.

DSis has been the only person in his life for years. He barely sees his family and has no friends anymore.

I'll call him Tom for ease.

Tom is a an addict. Alcohol, cigarettes and weed. He cannot function without any of these crutches.

DSis met him 18 years ago and they were in a serious committed relationship for 13 years. When younger his addictions weren't so concerning but as they grew older and started discussing children etc it became clear he wasn't able to make healthy choices and was deeply in the grip of a spiralling addiction. DSis financially supported him for years, begged and pleaded with him to get support but ultimately realised he was not able to change. So in 2020 she made the desperately difficult decision to end their relationship and leave their home.

She still loves him and he loves her. She has stayed in his life as a friend and as the years have passed he has lost anyone else who may have cared once as it's very hard to understand and support an addict who is slowly destroying themselves.

Rewind 7 years - DSis, knowing that Tom needed help and at her wits end with what to do, appealed to his parents for help. This backfired hugely as they took it as criticism of them, there was a massive falling out and they have refused to speak to her ever since. They have very little to do with Tom. They give him money when asked but don't seem able to accept how very unwell and in need of support he has been. They absolutely HATE DSis for asking them to help Tom.

Following the heart attack they did not come to the hospital for 8 days. His mother still hasn't visited. His father arrived on thursday and by yesterday afternoon he had managed to get his delirious, gravely unwell son to revoke DSis' status as his NOK.

He has now banned her from visiting Tom and also told the medical staff to no longer update her on his health.

She's been there every hour she's been allowed to be. For 9 days. Despite the fact they aren't together, they love each other. He needs her to advocate for him. He has been asking the staff for her when she isn't there.

His prognosis is dire. He needs a heart transplant. His heart is destroyed by years of alcohol and smoking.

As she was told to leave yesterday, she learnt that things look even worse with a further clot in his heart.

His father watched them saying their goodbyes, both distraught. And cared not a jot. He has sent away his son's only person for his own selfish reasons.

I've been googling frantically and trying to figure out where to turn for advice but all the avenues look shut for the bank holiday. We don't know if he'll still be here on Tuesday.

So I'm appealing to you wise MNers for any advice.

Is there anyone who can intervene?

It is so cruel so keep them apart and the only reason is a bizarre form of revenge...

It seems he must have coerced the change of NOK as Tom hasn't been lucid for days

Anyway - it's long and complicated. I hope that someone has some advice for us.

OP posts:
Elboob · 03/05/2025 19:05

I'm so sorry for your sister.
I think she should just go to the hospital in visiting hours and try to visit. Tom has asked for her - she is there. She may well not be able to make medical decisions as she does not have medical power of attorney but if he is asking for her she should be able to visit.

PinkCatInATree · 03/05/2025 19:06

Might there be a chaplaincy team in the hospital who could mediate with Tom's father and your sister? To allow them both some time with him - even if only whilst his Father goes to eat or shower?

Livelovebehappy · 03/05/2025 19:08

This is an example of needing the full uncut story here. I’m sure there must be some sort of back story, ie another side. I can imagine if he has been an addict for so many years, his parents may have had to put up with a lot, and for their own sanity and well being they stepped back, and so your dsis asking them to step up may have triggered them.

Boreded · 03/05/2025 19:13

ThriveIn2025 · 03/05/2025 18:17

She’s not been in a relationship with him since 2020 and yet she wants to be nominated as his NOK? Feels a bit strange to me. All this “they love each other”, well not enough to be together!

I think she should step back and respect his parent’s wishes. Their child is dying.

Maybe read the post…you can love someone but obviously know you shouldn’t be with them if they’re an addict…ffs

Motherofdragons24 · 03/05/2025 19:14

I’m an ICU nurse so see this kind of thing a lot as our patients are usually incapacitated and not able to make decisions for themselves. Unfortunately these types of family dynamics are very tricky to deal with and staff will rightly not get involved. If the patient is deemed not to have capacity and as his parents are his legal Nok and closest family then yes staff would be unable to give information to your sister unless explicitly given permission from the Nok. To give some reassurances though as the parents don’t have any legal POA or gaudianship the patient will come under an AWI (adults without capacity) which allows doctors to make medical decisions on their behalf therefore his parents won’t be able to interfere with medical management. Unfortunately I don’t think there is much your sister can do until her ex regains capacity.

Lanzarotelady · 04/05/2025 08:59

This is not for the hospitals safeguarding team or the duty social worker.
As far as the family are concerned, your sister "may" have been complicit in his drug taking previously and "may" hold her responsible - not saying this is right or wrong - its a dreadfully sad situation - but if your sister loves him - maybe she just needs to step aside and let his parents have this time

LovedFedAndNoonesDead · 04/05/2025 09:07

Juggletits · 03/05/2025 18:17

Yep this is what I thought too. But can't contact anyone in this team until office hours.
We need a staff member to call it in to the out of hours team.

Outside of office hours there will be a site team who are in charge of running the hospital and managing critical situations; they will also have access to the hospital’s safeguarding team including social workers and, if necessary, legal advice.

I would encourage your DSis to ring the hospital switchboard and ask to speak to the on call site manager; then, when they are on the phone, discuss the situation and ask if there is any way someone can speak to her ex partner while his family aren’t present to see if he is in agreement with her being kept away or not. If he is lucid then his wishes as the patient should be taken into account.

Lanzarotelady · 04/05/2025 09:16

LovedFedAndNoonesDead · 04/05/2025 09:07

Outside of office hours there will be a site team who are in charge of running the hospital and managing critical situations; they will also have access to the hospital’s safeguarding team including social workers and, if necessary, legal advice.

I would encourage your DSis to ring the hospital switchboard and ask to speak to the on call site manager; then, when they are on the phone, discuss the situation and ask if there is any way someone can speak to her ex partner while his family aren’t present to see if he is in agreement with her being kept away or not. If he is lucid then his wishes as the patient should be taken into account.

Do you really think this is a "critical" situation? Really?

Think SMOC ( senior manager on call ) will have more pressing issues than a visitor dispute?

Legal, safeguarding, really??

Talk about over reaction.

MsTamborineMan · 04/05/2025 09:35

If he's lucid then NOK means bugger all really. NoK is essentially the person you contact when someone is hospital if they can't contact people themselves.

NoK doesn't have any legal power to make decisions. If he wants to see your sister then his NoK can't stop her and the nurses on the ward aren't going to ban someone who the patient wants to see. It sounds a bit of a fantasy situation

Juggletits · 04/05/2025 12:56

So it turns out that Tom's dad left yesterday afternoon and went home. 350 miles away.
Leaving Tom on his own.

Thankfully, someone from the hospital called her today and let her know so she's there with him now.

So Tom's dad just caused all this upset for no reason at all other than because he "could"

For those wondering about the "other side of the story" this is the latest in a long line of horrific actions from a family who's hobbies include rabid narcissim, sadism and bullying.

OP posts:
mindutopia · 04/05/2025 13:26

I’m glad she’s able to be there with him, and hopefully she can continue to support him.

You can well see why he doesn’t have a close relationship with his family and why he probably has the struggles he has. It’s why everyone is under strict instructions never to tell my family if I’m poorly. I wouldn’t want them there or to even know.

What I would encourage her to do is to try to formalise something now if he has sufficient capacity. Would she be willing to be his PoA? What can be done to support him going forward?

Elboob · 04/05/2025 13:28

That's pretty evil isn't it.
I'm really glad though he has gone, far away and your sister can now visit.
Can she talk to the ward staff and get them to see that Tom has requested your DS and the family essentially don't care?

Juggletits · 04/05/2025 13:36

mindutopia · 04/05/2025 13:26

I’m glad she’s able to be there with him, and hopefully she can continue to support him.

You can well see why he doesn’t have a close relationship with his family and why he probably has the struggles he has. It’s why everyone is under strict instructions never to tell my family if I’m poorly. I wouldn’t want them there or to even know.

What I would encourage her to do is to try to formalise something now if he has sufficient capacity. Would she be willing to be his PoA? What can be done to support him going forward?

I'm going to suggest this to her.

She had already explained the backstory to all the staff but now they will have witnessed the dynamic in action I truly hope they will help to keep her there for however long is left.

It is desperately sad but the truth is Tom has been on this trajectory since his teens and his parents are most definitely the cause.

OP posts:
Barney16 · 04/05/2025 13:40

Parents can say she's not welcome to visit but I do not think they can actually stop her visiting. if I was your sister I would go in visiting hours and stay put until I saw him. I wouldn't be confrontational or angry I would just be there.

Lanzarotelady · 04/05/2025 13:54

Juggletits · 04/05/2025 12:56

So it turns out that Tom's dad left yesterday afternoon and went home. 350 miles away.
Leaving Tom on his own.

Thankfully, someone from the hospital called her today and let her know so she's there with him now.

So Tom's dad just caused all this upset for no reason at all other than because he "could"

For those wondering about the "other side of the story" this is the latest in a long line of horrific actions from a family who's hobbies include rabid narcissim, sadism and bullying.

With due respect, your sister left Tom as she couldn't cope with his downward spiral - his parents may not have been able to either.

Muffinmam · 04/05/2025 14:00

He’s dying. He’s an addict and a smoker. He won’t be getting a heart transplant.

Your sister needs to walk away.

There’s nothing that can be done.

blackballfinal · 04/05/2025 14:06

I would encourage your sister not to try and get POA on n this situation. It won’t make any difference to her visiting, if he wants her to visit she can visit. All that will happen is she will gain massive responsibility which she probably doesn't need or want. Having recently used my POA for a family member I can tell you it is an absolute nightmare having to deal with every agency. I had to attend so many meetings, trying to get a care package set up and later a residential placement and it was bloody hard work. If your sister just wants to be a visitor she doesn’t need POA

Juggletits · 04/05/2025 14:07

Lanzarotelady · 04/05/2025 13:54

With due respect, your sister left Tom as she couldn't cope with his downward spiral - his parents may not have been able to either.

She ended their relationship but stayed his friend.
She's continued to spend time with him and help in many ways.
To her own detriment to be honest (and as her sister I wish she'd walked away because shes going to be grief stricken very soon) but she put space between them for her mental health but she never stopped supporting him.

OP posts:
Lanzarotelady · 04/05/2025 14:17

@Juggletits Yet his father has driven 350 miles to see him

Juggletits · 04/05/2025 14:22

Lanzarotelady · 04/05/2025 14:17

@Juggletits Yet his father has driven 350 miles to see him

Seriously? For 2 afternoons? Then gone again leaving him all alone. Dying.
Having banned someone who lives down the road eho loves him from visiting?

Are you Tom's mum?!

OP posts:
Fiver555 · 04/05/2025 14:31

The parents are quite clearly to blame for his alcoholism. How awful.

tuvamoodyson · 04/05/2025 14:32

Fiver555 · 04/05/2025 14:31

The parents are quite clearly to blame for his alcoholism. How awful.

Are they? How?

Lanzarotelady · 04/05/2025 14:32

Fiver555 · 04/05/2025 14:31

The parents are quite clearly to blame for his alcoholism. How awful.

Because of what you have read on here - do you believe everything you read? Do you ever think, what is the other side of the situation? Do you?

Juggletits · 04/05/2025 14:43

It doesn't really matter who is to blame. But despite money being no object they have made no effort to help him.
They have the resources to have sent him to residential rehab but instead refused to acknowledge the problem and continued to send him cash when requested, thus enabling him to keep drinking.

DSis is sure Tom's mother and sister are both also alcoholics based on their drinking behaviour when she used to stay at their home and their late night shrieking phone calls to Tom.

We have experience of alcoholics within our own family. An aunt, an uncle, a grandparent.
All of these were functioning alcoholics and never decended into the depths the way Tom has done but we know the signs so I don't doubt DSis is right

OP posts:
tuvamoodyson · 04/05/2025 14:44

Em…yes. But I still don’t see how they’ve been the cause of his alcoholism.