To be worried about my friend and her partner with Huntingtons?

[Stanwyck]

My friend J has huntingtons. Lovely man, not a bad bone in his body before the illness.

Through him I met S, and they started dating. Two weeks after they started dating, he revealed to her he had huntingtons. At the time I hoped she wouldn’t stay with him because while I sympathised with him, it was early days and I knew how bad it would get and would be a carer at 40ish.

Now he lives with her and he is deteriorating. While she sought medical advice, they said they didn’t think he was depressed and provided no medication.

Yesterday she admitted she is sometimes scared of him. He is pouring water in her shoes to stop her going out, hiding her belongings, having tantrums, being nasty, smearing food on walls and she is struggling.

I don’t know what to suggest or how to help. Does anyone have advice?

Please urge her to get help. She could support him in a way that doesn’t mean living in fear.

She is very vulnerable. One of my family members died in this situation as the caring burden became so much she saw the only way out as suicide.

Definitely point her towards the Huntingdon's Specific support and also a local Carers Support Group which most areas have. She needs urgent advice and support.

How is your friend?