To think that people should not expect me to function as normal

[Redspottyfrog]

I have fibromyalgia, epilepsy and narcolepsy. I deal with these and manage to live an almost normal life. There are days when I am in so much pain or so tired i can’t do anything or I may have a big seizure but on the whole I manage by pacing myself.

Iver the last month symptoms have got worse especially the tiredness and I have gradually been doing less and less. Went to the doctors who did bloods I have been diagnosed with anemia and glandular fever

someday I can’t even get out of bed due to feeling tired. My husband is great but everyone else still expects me to function as normal such as my mum expects visits twice a week and daily phone calls, my friends can’t understand why I am not seeing them. I did drag myself out last night and I had to come home after an hour. My MiL is telling my DH I am milking it.

just want to tell them all to fuck off and leave me alone for a month so I can get better.

Even without your pre existing conditions, a combo of anaemia and GF will totally wipe you out. My DD2 had GF and she basically slept for 3 months and took another two years before she was back to her old self.. every small virus would wipe her out again (she also has an autoimmune disease).
My Mum also had GF and ditto.
Tell your family to fuck off, ... direct them to some info...and go back to bed!

My MiL is telling my DH I am milking it

Your DH shouldn't be repeating this.

You sound very ill. I hope you make a fully recovery.

She said it in my earshot.

this is actually my second bout of glandular fever which is very rare. My gp thinks my immune system must be shot at for it to happen again. I am scared as the glandular fever is what left me with fibro.
i am putting all my effort in being with my son and helping him revise for his upcoming exams.

It's unreasonable that you haven't told your mother, MIL and "friends" to fuck off already.

😥God thats awful.

You really really need better people around you.

Have you got anyone that's good to you? What about kids?

Fancy being so ill and your DH, DM, and DMIL not having your back or helping you

My DH is being great sorry I should have said he told MIL to not be stupid

It must be exhausting. Take no notice of MIL. I hope your health begins to improve.
Look after yourself

You’re the only one who can set boundaries on your time and energy. If you start cutting back of course people are going to complain about it because they benefit from it. Start with telling your mum you can’t visit for a month

People are dreadful when you are chronically ill.

They'll never understand so don't try to explain.
set your boundaries to prioritise your health and stick to them.
I'm glad your dh is understanding. Hope you are on the up soon.

I hope you recover well, OP. Put these people out of your mind. DH can deal with MIL. You can message DM - once. Ignore the so-called friends.

I've been there , it's awful isn't it. You fight so hard to keep going and then feel criticised anyway

People have a bizarre lack of empathy for invisible conditions

Some people really are incredibly ignorant of chronic illness.

I know it’s hard, I have endometriosis but you really need to put them out of your mind and focus on yourself.
As other posters have said. Tell them to fuck off.
If someone can’t understand you are unwell and in pain, they don’t deserve to live rent free in your head and in your life right now.