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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To keep going to doctors?

3 replies

throwawayanxiety · 17/03/2025 17:38

namechange as this is all personal. I dont know if this is the right place for this either.

For the last couple years, l've deal with arm and facial numbness, of my left side. Always got told it was anxiety, and never fought my case as it's hard being a young female. In terms of not being listened to, and all issues being brushed off.

Finally got taken seriously by a cardiologist who has ran a 24hr holter and an echo - normal results. Tilt table test is booked for April.

However over the last week, the numbness is worse, it tingles all the way down to my leg, there is no visible droop, and it isn't NUMB as I still have all sensation- it just feels... off. Like a weakness of sorts, but my stregnth is fine. A numbness of sorts, but I have all sensation. It's my left side only, has never happened to my right side.
I have been referred to a long covid clinic, as l've had an array of symptoms since my first covid bout in 2022.

Heart palpitations PVC & PAC
Fast heartrate after eating - this is a big one and causes me to barely eat as I don’t look forward to being uncomfortable for hours after eating.
Headaches & Migraines
I need glasses now
Stomach issues - not pooping then pooping all day. Indigestion
Shortness of breathe that I feel in my stomach but ox levels are always above 97%.
Pulsatile tinnitus and normal tinnitus.
fast heartrate for no reason (90-95), other times hr is 60
weird pains in upper arm
skin lesions
tired all the time, but then also can’t stay asleep
odd jaw pain
I never get a "cold" or quick virals anymore, it's always a month long feeling like absolute s*, never a quick illness anymore.

I'm just at a loss now of what I can do, the numbness is affecting me the most, as my maternal grandmother has history of TIA and ishemic* strokes.

I'm 24 years old and can't live this way anymore, and I have no idea who l'm meant to try and talk to, to discuss these symptoms.
Last had bloods done 12 Feb, l'm due a retest in 10 da because my WBC came back as elevated at 11.2. They going to test them again and also check vitamins and thyroid.

Any ideas what this could be? Is it all anxiety? FTR, I do have diagnoses of OCD and GAD (health centred) but l'm no longer anxious, and more angry at how I'm feeling every single day.

I've also lost so much weight, I was 71KG and happy, and now I'm 57KG and utterly miserable.

aibu to keep going to drs and getting tests done and getting no answers aside from “ you’re too young to have any issues “ and “ it’s anxiety “

OP posts:
AudiobookListener · 17/03/2025 17:56

Definitely not necessarily anxiety. Most of those symptoms are consistent with ME ( or CFS or long covid, in many cases they are all the same thing really). But not weight loss, so unless you are sure your reduced eating is enough to cause that much weightloss don't accept a diagnosis of ME without having that thoroughly checked.

If it's ME you need to rest and pace. While waiting for a diagnosis, resting and pacing will likely still do some good, so you might as well give it a go.

I am not a doctor.

throwawayanxiety · 17/03/2025 18:02

@AudiobookListenerI haven’t lost the weight in a short amount of time, it’s been over time lost abit then eating got better, then slipped then lost more weight. It’s been over the last few months especially, but have had a very stressful time, and then also moved out which had thrown me off balance too, thank you for the words, I’ll do some research into it.

OP posts:
throwawayanxiety · 17/03/2025 21:10

Bump

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